Forum Replies Created
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- November 14, 2010 at 2:30 pm
Janner,
Thanks for the info you posted about having the SNB done before the WLE. After reading these comments I am a little freaked out! My Dr. opted not to do the SNB and my labs came back with rogue cancer cells even though I had clear margins. So 2 weeks ago he went back in and did a wider incision and the SNB. He took two nodes which turned out to be negative but after reading your post I am worried. I wonder why he decided not to do the SNB during the first surgery. He is regarded as the best surgical oncologist in my local so what gives? I go for my final post op on Tuesday and will have some ??? for him.
I am so grateful for the people on this site.
fliberdy
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- November 14, 2010 at 2:30 pm
Janner,
Thanks for the info you posted about having the SNB done before the WLE. After reading these comments I am a little freaked out! My Dr. opted not to do the SNB and my labs came back with rogue cancer cells even though I had clear margins. So 2 weeks ago he went back in and did a wider incision and the SNB. He took two nodes which turned out to be negative but after reading your post I am worried. I wonder why he decided not to do the SNB during the first surgery. He is regarded as the best surgical oncologist in my local so what gives? I go for my final post op on Tuesday and will have some ??? for him.
I am so grateful for the people on this site.
fliberdy
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- November 10, 2010 at 11:52 pm
OK, I will start slow with the green tea. The body is so fascinating the way you can acclimate yourself to different foods. When I first became a vegetarian I had a hard time with all the legumes but now they don't bother me at all.
I have been taking a turmeric supplement but Im going to do like you, and start sprinkling it on foods too. I do use the other supplements you mentioned including chocolate (is chocolate a supplement? he he) but I think if we can eat the foods with the nutrition in it, its more beneficial don't you? I wish that western medicine was more balanced and gave good nutrition more credit. When I first found out about my MM I read a lot about fighting it with nutrition and started to take many different supplements. Then, when I had my first oncologist appointment they of course had me list everything I was taking. They looked at me like I was nuts. Thats OK, we do what we can right. And I think it makes us feel like we are doing SOMETHING to fight this thing.
Not to turn this into a nutritional bb, but I was wondering about kale. Its up there with the other #1 greens to eat right? Well, someone just told me that you have to cook it or it could be bad for you to eat too much of it. Something about the thyroid. Have you heard of this? I have not been able to find any info on it. I have been throwing raw kale in my green drink every morning so I am wondering if I should stop doing that.
Thanks for your input
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- November 10, 2010 at 11:52 pm
OK, I will start slow with the green tea. The body is so fascinating the way you can acclimate yourself to different foods. When I first became a vegetarian I had a hard time with all the legumes but now they don't bother me at all.
I have been taking a turmeric supplement but Im going to do like you, and start sprinkling it on foods too. I do use the other supplements you mentioned including chocolate (is chocolate a supplement? he he) but I think if we can eat the foods with the nutrition in it, its more beneficial don't you? I wish that western medicine was more balanced and gave good nutrition more credit. When I first found out about my MM I read a lot about fighting it with nutrition and started to take many different supplements. Then, when I had my first oncologist appointment they of course had me list everything I was taking. They looked at me like I was nuts. Thats OK, we do what we can right. And I think it makes us feel like we are doing SOMETHING to fight this thing.
Not to turn this into a nutritional bb, but I was wondering about kale. Its up there with the other #1 greens to eat right? Well, someone just told me that you have to cook it or it could be bad for you to eat too much of it. Something about the thyroid. Have you heard of this? I have not been able to find any info on it. I have been throwing raw kale in my green drink every morning so I am wondering if I should stop doing that.
Thanks for your input
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- November 10, 2010 at 12:57 am
So true, so true. Prayer is wonderful and helpful but even the bible says something about "time and unforeseen circumstances befall us all".
That article sounds interesting, Im gonna check it out. I cant seem to read enough about this subject.
Glad you are "Here for now" Grady
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- November 10, 2010 at 12:57 am
So true, so true. Prayer is wonderful and helpful but even the bible says something about "time and unforeseen circumstances befall us all".
That article sounds interesting, Im gonna check it out. I cant seem to read enough about this subject.
Glad you are "Here for now" Grady
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- November 10, 2010 at 12:44 am
I guess I am going to have to make myself drink green tea, I keep hearing such good things about it. Its just that it gives me a stomach ache. Even the decaffeinated ones do.
I sure do like your attitude! Im with you, no hidden under the blanket. Just keep putting one foot in front of the other… In some ways I kind of feel like I have been going abound like a robot keeping my emotions in check for everyone else. I guess we all have our own ways of dealing with it. The important thing is we ARE dealing with it. Thats why this bb is such a wonderful resource.
Keep doing what you are doing,
sounds like you have got it figured out.
fliberdy
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- November 10, 2010 at 12:44 am
I guess I am going to have to make myself drink green tea, I keep hearing such good things about it. Its just that it gives me a stomach ache. Even the decaffeinated ones do.
I sure do like your attitude! Im with you, no hidden under the blanket. Just keep putting one foot in front of the other… In some ways I kind of feel like I have been going abound like a robot keeping my emotions in check for everyone else. I guess we all have our own ways of dealing with it. The important thing is we ARE dealing with it. Thats why this bb is such a wonderful resource.
Keep doing what you are doing,
sounds like you have got it figured out.
fliberdy
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- November 10, 2010 at 12:35 am
Yes, thanks for asking. I had my post op 2 day with a dr who is filling in for mine while he is away at a MM convention in Australia. I will see Dr J when he gets back. The good news is there is no MM in the nodes!! As far as the original site on my back, there does not seem to be anymore rogue cells. Since it was not my dr. he was very unfamiliar with my case and what my concerns were about the rogue cells. So, Im a little frustrated and will feel much better when I see dr J and can ask more questions. That being said this dr 2day asked if I had done a pet scan, no I have not. He wondered why and suggested I request one. What do you think? Is that standard protocol?
I am tender from the node removal but no big Whoop.
Oh, did you ever find a dr to go to in our local?
Thanks for your concern and I hope things are tolerable for you.
Keep up the fight
fliberdy
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- November 10, 2010 at 12:35 am
Yes, thanks for asking. I had my post op 2 day with a dr who is filling in for mine while he is away at a MM convention in Australia. I will see Dr J when he gets back. The good news is there is no MM in the nodes!! As far as the original site on my back, there does not seem to be anymore rogue cells. Since it was not my dr. he was very unfamiliar with my case and what my concerns were about the rogue cells. So, Im a little frustrated and will feel much better when I see dr J and can ask more questions. That being said this dr 2day asked if I had done a pet scan, no I have not. He wondered why and suggested I request one. What do you think? Is that standard protocol?
I am tender from the node removal but no big Whoop.
Oh, did you ever find a dr to go to in our local?
Thanks for your concern and I hope things are tolerable for you.
Keep up the fight
fliberdy