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fenny
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fenny

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      • November 1, 2011 at 1:50 pm
      fenny
      Participant

        Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

        • November 1, 2011 at 1:50 pm
        fenny
        Participant

          Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

          • November 1, 2011 at 1:50 pm
          fenny
          Participant

            Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

            • November 1, 2011 at 1:50 pm
            fenny
            Participant

              Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

              • November 1, 2011 at 1:50 pm
              fenny
              Participant

                Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                • November 1, 2011 at 1:50 pm
                fenny
                Participant

                  Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                  • November 1, 2011 at 1:50 pm
                  fenny
                  Participant

                    Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                    • November 1, 2011 at 1:50 pm
                    fenny
                    Participant

                      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                      • November 1, 2011 at 1:50 pm
                      fenny
                      Participant

                        Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                        • November 5, 2011 at 7:18 am
                        fenny
                        Participant

                          Now that you asked me whether it was c-kit oncroprotein test negative or c-kit DNA mutation test negative, I am really confused as I don't know how to tell from the pathology diagnosis.  My sister's doctor in charge told her that she was c-kit DNA mutation negative and hence she cannot take "vemurafenib", a new drug aimed at  BRAF.He also mentioned that most Chinese are not brafv600e patients, but ipi (ipilimumab) is an option for all melanoma patients.

                          BTW, my email address is [email protected] and would you please tell me yours? Thanks. 

                            patients              

                          • November 5, 2011 at 7:18 am
                          fenny
                          Participant

                            Now that you asked me whether it was c-kit oncroprotein test negative or c-kit DNA mutation test negative, I am really confused as I don't know how to tell from the pathology diagnosis.  My sister's doctor in charge told her that she was c-kit DNA mutation negative and hence she cannot take "vemurafenib", a new drug aimed at  BRAF.He also mentioned that most Chinese are not brafv600e patients, but ipi (ipilimumab) is an option for all melanoma patients.

                            BTW, my email address is [email protected] and would you please tell me yours? Thanks. 

                              patients              

                            • November 5, 2011 at 7:18 am
                            fenny
                            Participant

                              Now that you asked me whether it was c-kit oncroprotein test negative or c-kit DNA mutation test negative, I am really confused as I don't know how to tell from the pathology diagnosis.  My sister's doctor in charge told her that she was c-kit DNA mutation negative and hence she cannot take "vemurafenib", a new drug aimed at  BRAF.He also mentioned that most Chinese are not brafv600e patients, but ipi (ipilimumab) is an option for all melanoma patients.

                              BTW, my email address is [email protected] and would you please tell me yours? Thanks. 

                                patients              

                              • November 5, 2011 at 6:34 am
                              fenny
                              Participant

                                Thanks for your message, James. Pathological section   shows that C-Kit Mutation is negative, so I think my sister cannot take Gleevec. BTW, as far as I know, Gleevec is used mainly for  leukemia  patients and it has lots of terrible side effects, right? May I know what medication are you now on what type of melanoma do you have?

                                • November 5, 2011 at 6:34 am
                                fenny
                                Participant

                                  Thanks for your message, James. Pathological section   shows that C-Kit Mutation is negative, so I think my sister cannot take Gleevec. BTW, as far as I know, Gleevec is used mainly for  leukemia  patients and it has lots of terrible side effects, right? May I know what medication are you now on what type of melanoma do you have?

                                  • November 5, 2011 at 6:34 am
                                  fenny
                                  Participant

                                    Thanks for your message, James. Pathological section   shows that C-Kit Mutation is negative, so I think my sister cannot take Gleevec. BTW, as far as I know, Gleevec is used mainly for  leukemia  patients and it has lots of terrible side effects, right? May I know what medication are you now on what type of melanoma do you have?

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