Ellenb
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Ellenb

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      • May 11, 2019 at 9:02 pm
      Ellenb
      Participant
      Thanks for confirming my reason for being confused., Laurie. It’ll be two weeks on Tuesday – am anxiously waiting to hear the test results. . I did get a call back about the biopsy telling me that the margins are clear and that the staging didn’t change. So relieved about that. I am enjoying communicating with you – sort of a kindred spirit!
      • May 9, 2019 at 10:02 pm
      Ellenb
      Participant
      Hi, Laurie,
      Here is where I’m confused. Is this test to determine risk of recurrence as well as possible metastasis? On the company’s website, both issues are mentioned. It’d be great if it did cover both. I’m so glad for you that no cancer cells were found in your lymph nodes. What a relief! And 14% doesn’t sound like much, does it? I called my doctor today to discuss the SLN biopsy even though she initially said I didn’t need it. No call back!
      $8500-WOW!
      • May 9, 2019 at 9:54 pm
      Ellenb
      Participant
      Thanks so much, ThinkingPositive! Here’s hoping! I’m very glad for your results!
      • May 8, 2019 at 9:44 pm
      Ellenb
      Participant
      Thanks again, Ed. I’ll definitely go to the link you sent. I’m beginning to better understand this test after reading your post and Laurie’s.
      • May 8, 2019 at 9:39 pm
      Ellenb
      Participant
      Hi, Laurie,
      Thank you very very much. Did you also have a SLN biopsy in addition to the Castle test? Also if I may ask, when you mentioned that you were staged at 1B initially, did it change after further testing? My doctor did mention that the company would absorb any of the cost that insurance didn’t cover. That’s a relief because it’s quite pricey as I understand. Best of luck, Laurie, and thanks again for your response.
      Ellen
      • May 8, 2019 at 6:26 pm
      Ellenb
      Participant
      Thank you so much, Ed. Yes, I am very early in the journey, and it’s so difficult waiting for results. As of now, I’ll be seeing the doctor every three months, but who knows once more is known. The doctor tells me that a SLN biopsy isn’t necessary since we’re doing the Castle test. What worries me too is that my daughter was diagnosed with melanoma many years ago. Thank God she has not had a reoccurrence. My other daughter is of course extremely upset.
      Anyway, thanks again for your response.
      • May 8, 2019 at 6:17 pm
      Ellenb
      Participant
      I hope this helps. It’s all new to me too.
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