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Elizabeth A
REGISTER
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Elizabeth A

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      • November 19, 2010 at 11:45 pm
      Elizabeth A
      Participant

        Dian,  thank you!  I actually read your profile a few days ago and had several aha moments.  Hind sight being 20-20, I sure wish we had known that this disease can come back after 25 years.  It just never occured to us.  My mom had CT and PT scans and the disease (I would rather call it something else but I am a lady and don't use that kind of language) is only in her lymph nodes.  I saw the PET scan and it looked kinda scary to me, but all scans look scary to me so who knows.  I am estimating maybe 10 lymphnodes were enlarged. 

        My mom has always been treated at Swedish, you probably remember that up until maybe 5-6 years ago it was Swedish that had the alliance with Fred Hutch.   My husband was treated at U of W before their alliance with Fred Hutch.  I noticed that you travel to California.  I was also very interested in dentritic vacines when my husband was sick, although I couldn't tell you why today (I can barely remember last week, let alone 10 years ago.) 

        I think I will talk to my mom this weekend about getting a second opinion AT SCCA. 

        Elizabeth

        • November 19, 2010 at 11:45 pm
        Elizabeth A
        Participant

          Dian,  thank you!  I actually read your profile a few days ago and had several aha moments.  Hind sight being 20-20, I sure wish we had known that this disease can come back after 25 years.  It just never occured to us.  My mom had CT and PT scans and the disease (I would rather call it something else but I am a lady and don't use that kind of language) is only in her lymph nodes.  I saw the PET scan and it looked kinda scary to me, but all scans look scary to me so who knows.  I am estimating maybe 10 lymphnodes were enlarged. 

          My mom has always been treated at Swedish, you probably remember that up until maybe 5-6 years ago it was Swedish that had the alliance with Fred Hutch.   My husband was treated at U of W before their alliance with Fred Hutch.  I noticed that you travel to California.  I was also very interested in dentritic vacines when my husband was sick, although I couldn't tell you why today (I can barely remember last week, let alone 10 years ago.) 

          I think I will talk to my mom this weekend about getting a second opinion AT SCCA. 

          Elizabeth

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