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Donna C
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Donna C

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      • December 17, 2019 at 9:35 pm
      Donna C
      Participant
        Thank you for your input!!!! I figured there are others out there with this issue!. The doctor spoke to our speech therapist today in fact, to revisit a swallow study to see if there have been some improvements so swallowing the pills safely might be an option…….Right now, applesauce and nectar liquids are approved in small amounts for therapeutic reasons, not caloric.
        • December 17, 2019 at 4:24 pm
        Donna C
        Participant
          Not dumb! Actually we are in Chicago at one of the best hospitals……..But because of the manufacturers guidelines there isn’t any way to do this according to them through a gtube. But because this is our only option with these drugs we need to do it….. I have found that other patients and caregivers sometimes have the best solutions or ideas
          • December 17, 2019 at 2:59 pm
          Donna C
          Participant
            Thank you for responding! Ive spent the day on the phone, finally heard from an oncology pharmacist….My understanding now is that when crushing we are possibly crushing the binders in the pill and this could make it “stronger” or more toxic ………..found out that we can maybe do blood tests to see how much is being absorbed ? Feel like everything is a crapshoot!
            • December 16, 2019 at 4:39 pm
            Donna C
            Participant
              I realize this was years ago but i’m at a standstill now………Looking for any help with giving Tafinlar and Mekinist Targeted drugs through a G-tube feeding tube. We are aware that they are supposed to be given on an empty stomach as well as not crushed. Pharmacist at hospital and doctor are aware that we are crushing and giving with a tablespoon of applesauce through the tube. My concern is that they aren’t effective like this OR harmful? Did you ever find any answers? I can’t?!
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