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danipersing

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      danipersing
      Participant

      Hi!  I was also Stage I in late 2004 (Breslow 0.4mm, Clarks IV), and was just diagnosed with Celiac Disease about a month ago.  Did not have classic Celiac symptoms, but some of the symptoms I've had since I was 13!  So one of the websites I'm reading says that Celiac patients have a higher risk of Melanoma…..I'm thinking, WHAT???  I do think that, for me, my melanoma was Vitamin D deficiency related.  After diagnosis (about 4 years after) I was tested for Vit D levels and found to be extremely low.  I have been taking the high-dose Vitamin D once weekly ever since.  I was diagnosed with atypical mole syndrome and I was getting biopsies on my "weird" moles every 6 months and always have 3 or 4 excisions (lots of moderate to severe atypia) but since I've been on the Vitamin D I've had maybe 2 biopsies, no excisions.  My last appointment in December was the first time, since diagnosis, that I had no biopsies!  It was great!  I'm hopeful that now that I've gone gluten free my Vitamin D absorption problems will resolve and that my chances for future melanomas will be that much less! 

       

      Danica

      danipersing
      Participant

      Hi!  I was also Stage I in late 2004 (Breslow 0.4mm, Clarks IV), and was just diagnosed with Celiac Disease about a month ago.  Did not have classic Celiac symptoms, but some of the symptoms I've had since I was 13!  So one of the websites I'm reading says that Celiac patients have a higher risk of Melanoma…..I'm thinking, WHAT???  I do think that, for me, my melanoma was Vitamin D deficiency related.  After diagnosis (about 4 years after) I was tested for Vit D levels and found to be extremely low.  I have been taking the high-dose Vitamin D once weekly ever since.  I was diagnosed with atypical mole syndrome and I was getting biopsies on my "weird" moles every 6 months and always have 3 or 4 excisions (lots of moderate to severe atypia) but since I've been on the Vitamin D I've had maybe 2 biopsies, no excisions.  My last appointment in December was the first time, since diagnosis, that I had no biopsies!  It was great!  I'm hopeful that now that I've gone gluten free my Vitamin D absorption problems will resolve and that my chances for future melanomas will be that much less! 

       

      Danica

      danipersing
      Participant

      Hi!  I was also Stage I in late 2004 (Breslow 0.4mm, Clarks IV), and was just diagnosed with Celiac Disease about a month ago.  Did not have classic Celiac symptoms, but some of the symptoms I've had since I was 13!  So one of the websites I'm reading says that Celiac patients have a higher risk of Melanoma…..I'm thinking, WHAT???  I do think that, for me, my melanoma was Vitamin D deficiency related.  After diagnosis (about 4 years after) I was tested for Vit D levels and found to be extremely low.  I have been taking the high-dose Vitamin D once weekly ever since.  I was diagnosed with atypical mole syndrome and I was getting biopsies on my "weird" moles every 6 months and always have 3 or 4 excisions (lots of moderate to severe atypia) but since I've been on the Vitamin D I've had maybe 2 biopsies, no excisions.  My last appointment in December was the first time, since diagnosis, that I had no biopsies!  It was great!  I'm hopeful that now that I've gone gluten free my Vitamin D absorption problems will resolve and that my chances for future melanomas will be that much less! 

       

      Danica

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