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      Participant

      I haven't had experience with your type of melanoma, but I want you to know I am thinking of you and sending prayers your way. Hopefully others can chime in with their experiences with immunotherapy and nasosinus mucosal melanoma. 

      contributor
      Participant

      Thanks! I feel so much better hearing this. It sounds like from what I have heard that 5mm is small but the scar will be decently big. Like I said, I really don't care if I have a scar in the end as long as I am healthy and able to use my leg muscle like usual. Do you have an opinion on using a plastic surgeon vs a regular dermatologist (who is not a Mohs surgeon)? 

      contributor
      Participant

      Also I noticed you mentioned having a WLE on your calf and it being very tight and a bad area to have a WLE in? I have to admit…this is my concern. That it will be tight, uncomfortable, and there will be muscle pain. 

      contributor
      Participant

      Thanks for this! It's really good to hear from another active person who has had several of these. I am actually a bit overweight but have very thin calves and legs below the knee so everytime I think of them cutting into my leg…I think about cutting into muscle and affecting my ability to be physical. I think it is particularly disheartening because I have been doing really well in terms of building up my exercise intensity level and fixing my nutrition. I've been losing weight and toning up and exercising even more intensely and feeling great. So now knowing that they want me to go back in freaks me out :/ When you said that Mohs would offer more conservative and larger margins did you mean it would be bigger?! I would like to take the least amount possible. I definitely want to take 4mm vs 6mm, etc. I was under the impression that Mohs would take less and leave me with more skin/not go as deep. 

      contributor
      Participant

      It didn't affect your muscle at all? What was your mm width/depth? It's encouraging to hear that yours turned out okay. I know I'm lucky compared to so many people dealing with this but I also don't want to not do my due diligence and make sure I make the best decision for my body. Hopefully I have another 60 years with it. 

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The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

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