Melanoma Research Foundation | chrispl1974 | Activity https://forum.melanoma.org/user/chrispl1974/activity/ Activity feed for chrispl1974. Tue, 21 Apr 2026 15:05:44 -0400 https://buddypress.org/?v= en-US 30 hourly 2 f0004b1064788e1a3ff7c4e818f12fb4 chrispl1974 replied to the topic We Lost a Marvelous Friend in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/we-lost-a-marvelous-friend/#post-280528 Fri, 08 Nov 2024 00:22:10 -0500 I am utterly shocked. Celeste was the heart and soul of this forum. Apart from being compassionate and kind, she also had tremendous knowledge and gave me a lot of hope when I was first diagnosed nearly 6 years ago.

She overcame melanoma and it seems that she lost the battle against adenocarcinoma from what I read in previous posts.

May god…Read more

]]> 3804408980e9d4ac2bc911c740412481 chrispl1974 replied to the topic Question on Mitotic in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/question-on-mitotic/#post-279488 Thu, 09 Nov 2023 20:28:26 -0500 Hi, I am sorry that you have joined our club of Melanoma Warriors.

Mitotic rate indicates how many cancerous cells are dividing . The higher, the more prone to spreading the cells are.

However, from what I understand, mitotic rate is not taken into account anymore in the latest staging standards for Melanoma. Besides, the mitotic rate and…Read more

]]> 1665af494aa5806a34cbd30655ca2962 chrispl1974 replied to the topic Still Here! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-here-3/#post-279204 Thu, 14 Sep 2023 20:03:16 -0400 Dear Beany,

Those are fantastic news. I am very happy for you. Getting a complete response to immunotherapy lasting already approx 3 years is amazing. From what I understand after so many months with clear scans,according to statistics, you have there moved from NED to the “cured” category !!!! Love Christian

]]> 2c85e900cdff13a701e4ecb2411b809f chrispl1974 replied to the topic 1 year NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/1-year-ned-5/#post-278916 Tue, 18 Jul 2023 23:02:11 -0400 Fantastic news. I am very happy for you.

]]> dd8c66207399586322caa9635bb438b0 chrispl1974 replied to the topic Home after neck dissection for melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/home-after-neck-dissection-for-melanoma/#post-278868 Fri, 07 Jul 2023 22:16:54 -0400 I am glad you did not have to wait too long and you got the neck dissection behind you.
You will be fine. I am also stage III and my dissection was nearly 5 years ago. All good so far. Keep up the spirirt. You will do just fine. I know it is difficult, especially in the beginning, there are tons of people on this forum ,who bounced back and are…Read more

]]> 0ca6441ad2cc1de030d453007032dcbe chrispl1974 replied to the topic 5 Year Nedaversary! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/5-year-nedaversary/#post-278163 Thu, 26 Jan 2023 18:13:55 -0500 Fantastic news. I am very happy for you. Wish you another 100 years of NED :)))

]]> b0ff822178dbb36f3f50cdd060665a5d chrispl1974 replied to the topic 4 years NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/4-years-ned-2/#post-277981 Fri, 23 Dec 2022 23:19:17 -0500 Fantastic news, thanks for sharing. I am very happy for you. What a milestone !!

I wish you and all fellow melanoma fighters a Merry Christmas and a great start into the New Year.

Love you all.

Christian

]]> b39439d4e101b2e014656b6b48d19d0e chrispl1974 replied to the topic 5 Year Nedaversary! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/5-year-nedaversary/#post-277288 Tue, 27 Sep 2022 01:45:04 -0400 Fantastic news Bill. I am very very happy for you. Take care Chris

]]> 720729cc4b6c8e5062ba9739ca0639b2 chrispl1974 replied to the topic Greetings! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/greetings/#post-276749 Mon, 16 May 2022 22:54:36 -0400 Thats great news Scout. I vividly remember my negative CT & MRI scans, a week after getting told about the positive SLNs in my groin. Did BRAF/MEK for a year after that with hardly any side effects. I now in my 4th recurrent free year, although I had a scare about 2 months ago, when they found slightly swollen nodes in my groin. However, they…Read more

]]> e06fd822f0582531bbb0eaf544c4d302 chrispl1974 replied to the topic Happy News! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/happy-news-3/#post-276723 Tue, 10 May 2022 21:35:43 -0400 Fantastic news. I very very happy for you.

Have a great honeymoon in England.

I hope you get good weather 🙂

Take care

Chris

]]> cb949827b7c3905aa75e40439cd5769f chrispl1974 started the topic Why it is always advisable to seek a 2nd or even 3rd opinion.. in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/why-it-is-always-advisable-to-seek-a-2nd-or-even-3rd-opinion/ Thu, 07 Apr 2022 19:46:10 -0400 Hi fellow melanoma fighters. Since my 3A diagnosis nearly 3.5 years ago , I have been visiting the forum on a daily basis, but I don´t write that often.

4 weeks ago I had my last CT and MRI scan (in Germany the guideline suggests to stop CT & MRI scans after 36 months of beign NED) and everything seemed to be ok. However, this time a young and…Read more

]]> c60f93262f633f02137b8bd93f94454e chrispl1974 replied to the topic Update BillB in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-billb/#post-276516 Thu, 24 Mar 2022 19:22:28 -0400 Fantastic news. I am very happy for you !

]]> 9eb7be2e765450d6a91df886e45c52d9 chrispl1974's profile was updated https://forum.melanoma.org/activity/p/13439/ Mon, 07 Feb 2022 22:39:42 -0500 0 fad42c6cb9f2140ed3d05d68ecc3e6f6 chrispl1974 replied to the topic Still NED - Almost 5 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-almost-5-years/#post-276300 Mon, 07 Feb 2022 22:38:39 -0500 Hi Jenn,

so wonderful to hear that you have passed the 5 year mark. When I was first diagnosed 3 years ago, I used to read a a lot of your posts and I know the road to being cancer free was not an easy one for you.

Enjoy life and dont forget to post a similar message (marking 10 years NED) in 2027 :)))

Take care

Christian

]]> 880fea5740c1555c8000565a30372eba chrispl1974 replied to the topic I rang the bell today, folks! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/i-rang-the-bell-today-folks/#post-276249 Sat, 22 Jan 2022 23:05:13 -0500 Great news. I am very happy for you. I hope these stories will become the norm soon.

]]> 26913d2300815eab41c68f00bb7138c1 chrispl1974 replied to the topic Sad news from Joanne Towens. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/sad-news-from-joanne-towens/#post-276189 Wed, 05 Jan 2022 23:40:47 -0500 Very sad news indeed. I followed his struggle and I wish his family strength during this most difficult time.

]]> 07846c3c23c964de11e8b0470fcd31ad chrispl1974 replied to the topic Updates to the Patient Forum! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/updates-to-the-patient-forum/#post-276130 Tue, 21 Dec 2021 22:05:43 -0500 Hi Amy,

whilr I welcome any functionality improvement on this forum, I think the most important issue has not been adressed yet.

When will we get the Profile information / patient history back?

All this data somehow did not make it into the new forum when the transition occurred.

Thanks in advance

Christian

]]> 1a41aa82663bf9a883d13bf039474a01 chrispl1974 replied to the topic Anxious in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anxious/#post-276050 Fri, 03 Dec 2021 00:55:23 -0500 Hi,

I am no expert, but luckily , there are many very knowledgeable people on his forum. That being said, the fact that your lymph nodes have become palpable, basically from one day to the next and  your risk having melanoma in your lymph nodes is in the very low  single digits, taking into account  your primary 3.5 years ago was less than 1mm an…Read more

]]> 4921454ae4ca2402f6ed3575e68dd2e1 chrispl1974 replied to the topic Forum activity has virtually ceased and MRF does not seem to care in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/forum-activity-has-virtually-ceased-and-mrf-does-not-seem-to-care/#post-275870 Tue, 26 Oct 2021 11:29:11 -0400 Dear all,

Thanks for the replies. In the meantime, I received an email from MRF staff . I will answer in due course.

I think we all agree that the activity has subsided since the new format was adopted.

Also, I agree with some of you that the most annoying aspect of new forum format is the fact that all PROFILE INFORMATION has been lost.

In my…Read more

]]> f7e190e690e16caad3ee1eaefc7ea6ed chrispl1974 started the topic Forum activity has virtually ceased and MRF does not seem to care in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/forum-activity-has-virtually-ceased-and-mrf-does-not-seem-to-care/ Sun, 24 Oct 2021 17:02:59 -0400 Dear fellow melanoma fighters,

I joined this forum at the beginning of 2019 to seek advice and support after having been diagnosed with melanoma stage IIIa.

The responses and the empathy shown by others was overwhelming and I am eternally grateful to many of you. Bubble was my support during those difficult month of targeted therapy and I will…Read more

]]> f7ad43bae92d5370d4f66ba91dbab56e chrispl1974 replied to the topic Julie in SoCal in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/julie-in-socal-2/#post-275194 Mon, 28 Jun 2021 22:59:19 -0400 Very sad news indeed.

]]> 716b285763a9afca4bd675dbc5658e10 chrispl1974 replied to the topic NED after surgery! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-after-surgery/#post-275162 Sun, 27 Jun 2021 15:36:18 -0400 Fantastic news. As Ed mentioned previously, get out there, enjoy the summer and have a blast !!!

Big hug.

Christian

]]> 8c08bc57825c2b53545f81b6f306b183 chrispl1974 replied to the topic Am I the only one, who finds the new forum software/ layout very annoying ? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/am-i-the-only-one-who-finds-the-new-forum-software-layout-very-annoying/#post-275027 Thu, 17 Jun 2021 14:12:09 -0400 Thanks guys,

I have written to the email addresses, Bubbles provided and expressed by discontent.

Lets see if they gradually come to realize that this forum is losing members.

It is such an important platform in so many ways and I am puzzled by the indifference of the administrators on this site.

Regards

Christian

]]> 941f320686d0c690acf2b21e38ba00a7 chrispl1974 started the topic Am I the only one, who finds the new forum software/ layout very annoying ? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/am-i-the-only-one-who-finds-the-new-forum-software-layout-very-annoying/ Mon, 14 Jun 2021 21:44:11 -0400 Dear fellow Melanoma Fighters , Dear MRF,

Am I the only one, who finds the Melanoma Forum terrible compared to the previous version. Here is why:

a) all photos and personal data of forum members is gone

b) the icon /badge function does not work. I find it impossible to configure the badges according to my melanoma history

c) It does not work…Read more

]]> bbb73ea55d4557ca56831c4440c928eb chrispl1974 replied to the topic Need the best for my dad. Anyone in UK/Europe with good news? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/need-the-best-for-my-dad-anyone-in-uk-europe-with-good-news/#post-274941 Wed, 09 Jun 2021 20:00:04 -0400 Hi,

I am very sorry to hear about your dad. The good news is that the therapeutic landscape changes monthly and for the better.

If you are looking for one of the top 5 Melanoma experts globally, I would recommend Prof. Axel Hausschild at Kiel University Hospital in Kiel. He is one of the fathers of the the BRAF – MEK targeted therapy and he sees…Read more

]]> 165bb1a10d2acfbfe19160ca1205cc8f chrispl1974 replied to the topic Melanoma and Psoriasis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-and-psoriasis/#post-274514 Thu, 15 Apr 2021 23:04:09 -0400 Interesting thread. I also have Psoriasis and was diagnosed with Melanoma on the thigh *Stage IIIa” at the end of 2018.

There are various studies, which compare psoriasis patients to healthy control groups and they state that :

a) Other types of skin cancer tend to be more frequent among the Psoriasis group, but melanoma is much less frequent in…Read more

]]> 1da2cad3ad0350debda4a401e7aab028 chrispl1974 replied to the topic Just finished Opdivo in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/just-finished-opdivo/#post-274465 Wed, 07 Apr 2021 21:05:22 -0400 Hi Rob,

Fantastic news. Glad to hear you have finished your treatment with hardly any side effects and keep being NED. I was diagnosed in January 2019 with a very similar risk profile. Stage IIIa with micrometastasis in 2 lymph nodes. Here in Germany they don’t measure the size of the deposits in each lymph node, but I had very small pockets in…Read more

]]> a212dcf0e1aaac8504fb78b9a566e638 chrispl1974 replied to the topic Update on Yesterdays Scans ( Finally some good news ) 80% Response in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-on-yesterdays-scans-finally-some-good-news-80-response/#post-274312 Fri, 05 Mar 2021 06:50:19 -0500 Fantastic news. Lets hope your  lung nodules are related more to inflammation than progression.

VERY VERY HAPPY FOR YOU !!!!

]]> 130255bc4e738d82c02c1c88cbd23ca4 chrispl1974's profile was updated https://forum.melanoma.org/activity/p/1886/ Mon, 22 Feb 2021 00:28:29 -0500 0 0c1bec527fe919787cbb9cf947d99c79 chrispl1974 replied to the topic 20 year survivor - long term mpip member in the forum User https://forum.melanoma.org/forums/topic/20-year-survivor-long-term-mpip-member/#post-273883 Mon, 11 Jan 2021 23:17:02 -0500 Very comforting and encouraging to hear that there are many stage III long term survivors and now the number of stage IV survivors is also increasing. I wish you all a Happy 2021. May this be the year ,where they find the “silver bullet” !

]]> 3eefc7cc63fc4e32a2efea354a4b549c chrispl1974 replied to the topic Melanoma Mike in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-mike-8/#post-273666 Tue, 22 Dec 2020 23:19:26 -0500 Very sad news. Since I joined the forum approximately 2 years ago, his courage, his wits and support for others helped me enormously.

I never had the privilege to meet him in person, nor did I ever correspond with him directly, but I believe that one can get to know the true spirit of a person by reading what he supported others.

Rest in peace…Read more

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