cheryl98006

Tracy,

I am new to this site, I have been reading the posts and wanted to respond to yours because you have some history with melanoma of the scalp.  I started with a typical "bump" on my head that I ignored ( not a smart move ), after a few months went to my local University of Washington clinic thinking it would be a simple procedure to remove it, maybe a few stitches at worst. WOW!!, I have never been so wrong in my whole life. The good news is UW medical moves FAST, real fast. Time from iniital appointment at clinic to nuclear mapping, WLE, and Sent lymph biopsy was less than a month. I was not ulcerated according to the original punch biopsy but it was already a thickness of 5mm. I had surgery 9 days ago, still no biopsy results. is that normal?  I am stressed, worried, and quite frankly going out of my mind with all the information I am getting off line, so I wanted to write to you because it looks like you have been there and and the t-shirt to prove it.  I would greatly appreciate any info from you, and once again I wish you all the best.

cheryl

Tracy,

I am new to this site, I have been reading the posts and wanted to respond to yours because you have some history with melanoma of the scalp.  I started with a typical "bump" on my head that I ignored ( not a smart move ), after a few months went to my local University of Washington clinic thinking it would be a simple procedure to remove it, maybe a few stitches at worst. WOW!!, I have never been so wrong in my whole life. The good news is UW medical moves FAST, real fast. Time from iniital appointment at clinic to nuclear mapping, WLE, and Sent lymph biopsy was less than a month. I was not ulcerated according to the original punch biopsy but it was already a thickness of 5mm. I had surgery 9 days ago, still no biopsy results. is that normal?  I am stressed, worried, and quite frankly going out of my mind with all the information I am getting off line, so I wanted to write to you because it looks like you have been there and and the t-shirt to prove it.  I would greatly appreciate any info from you, and once again I wish you all the best.

cheryl

To Everyone,

Thank You, Thank You!!!  It was really begining to feel like I was the only one in this boat.  I tried to no avail to get my results ( even just to see if the results where in!! ), over 4 hours in all on the phone, spoke to several people, but no one seems to know who or where the results are.  Don't misunderstand they are not THAT disorganized it's just a very large Hosptial that I go to and there are actually three hospital that are affilitated with each other.  I finally just gave in and emailed my Doc directly, hopefully he will contact me back soon.  I think the not knowing part is the worst of all of this.

So here is the good news for the day, I have five children in all,  they are 27,23,21,13, and 9,  the 13 year old got his HIGH SCHOOL FOOTBALL HELMENT TODAY!!!!, yeah, I know a little cheezy but Momma is so proud he made the team!!!!

Now her is the question for the day, ( so glad to have Y"all her to ask ), is it normal for my donor site ( upper thigh ) to still hurt like a 3rd degree burn 10 days after surgery??, yes it is healing good just hurts like a %^&*(!!

My scalp removal site has very little if any pain, its basically the size of a softball, as a matter of fact when i came home from the hospital it LOOKED like I have a softball cut in half and stuck on the top of my head!!  I am very thankfull that my face and forehead were in no way effected so far, and the hair loss thing does bother me but if the alternate is cancer BALD IS BEAUTIFUL.  

I wish I was as informed about my personal information as most of you are, I will ask for copies of everything they have done and everything they do in the future, seems most important now, didn't when I was in the daze of  "it's what on my head"!!

Thank All of you once again

cheryl

To Everyone,

Thank You, Thank You!!!  It was really begining to feel like I was the only one in this boat.  I tried to no avail to get my results ( even just to see if the results where in!! ), over 4 hours in all on the phone, spoke to several people, but no one seems to know who or where the results are.  Don't misunderstand they are not THAT disorganized it's just a very large Hosptial that I go to and there are actually three hospital that are affilitated with each other.  I finally just gave in and emailed my Doc directly, hopefully he will contact me back soon.  I think the not knowing part is the worst of all of this.

So here is the good news for the day, I have five children in all,  they are 27,23,21,13, and 9,  the 13 year old got his HIGH SCHOOL FOOTBALL HELMENT TODAY!!!!, yeah, I know a little cheezy but Momma is so proud he made the team!!!!

Now her is the question for the day, ( so glad to have Y"all her to ask ), is it normal for my donor site ( upper thigh ) to still hurt like a 3rd degree burn 10 days after surgery??, yes it is healing good just hurts like a %^&*(!!

My scalp removal site has very little if any pain, its basically the size of a softball, as a matter of fact when i came home from the hospital it LOOKED like I have a softball cut in half and stuck on the top of my head!!  I am very thankfull that my face and forehead were in no way effected so far, and the hair loss thing does bother me but if the alternate is cancer BALD IS BEAUTIFUL.  

I wish I was as informed about my personal information as most of you are, I will ask for copies of everything they have done and everything they do in the future, seems most important now, didn't when I was in the daze of  "it's what on my head"!!

Thank All of you once again

cheryl