@cbrpower
Forum Replies Created
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- November 1, 2013 at 6:19 pm
Hello everyone,just providing a quick update on my situation. So as the previous posts imply, I’ve decided against CLND, for the watch and wait or a far less invasive trial. After meeting with Dr. Antoni Ribas at UCLA, 2 new sets of good news has arised. One, both pet and ct scans came back negative. Two, Dr. ribas said that the original tumor specimen needs to have a new biopsy conducted, as the pathologist comments suggest a potential misdiagnosis. The lesion shares features in common with acral Spitz nevus, which can be easily misinterpreted for melanoma or others.
so this is definitely a positive shed of light after over a month of bad news. I will keep you all posted.
cheers,
Kamran
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- November 1, 2013 at 6:19 pm
Hello everyone,just providing a quick update on my situation. So as the previous posts imply, I’ve decided against CLND, for the watch and wait or a far less invasive trial. After meeting with Dr. Antoni Ribas at UCLA, 2 new sets of good news has arised. One, both pet and ct scans came back negative. Two, Dr. ribas said that the original tumor specimen needs to have a new biopsy conducted, as the pathologist comments suggest a potential misdiagnosis. The lesion shares features in common with acral Spitz nevus, which can be easily misinterpreted for melanoma or others.
so this is definitely a positive shed of light after over a month of bad news. I will keep you all posted.
cheers,
Kamran
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- November 1, 2013 at 6:19 pm
Hello everyone,just providing a quick update on my situation. So as the previous posts imply, I’ve decided against CLND, for the watch and wait or a far less invasive trial. After meeting with Dr. Antoni Ribas at UCLA, 2 new sets of good news has arised. One, both pet and ct scans came back negative. Two, Dr. ribas said that the original tumor specimen needs to have a new biopsy conducted, as the pathologist comments suggest a potential misdiagnosis. The lesion shares features in common with acral Spitz nevus, which can be easily misinterpreted for melanoma or others.
so this is definitely a positive shed of light after over a month of bad news. I will keep you all posted.
cheers,
Kamran
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- October 22, 2013 at 5:17 pm
gossypin is an enzyme found in the hibiscus plant. Making tea out of hibiscus is a great source. Gossypin has recently shown to destroy melanoma cells as well as stopping new growth of tumors. It’s all over Google, just search gossypin and melanoma and the peer reviewed study will come up.as for other remedies, tumeric (capasin) is very effective. Another powerhouse is vitamin b17 which is best taken in form of apricot seeds (kernels). It’s very bitter, but it does kill cancer. It saved Ronald Reagans life.
Other remedies, cinnamon, paw paw extract, graviola, etc are great but their clinical and anecdotal evidence is not as strong as the others. good luck with everything!
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- October 22, 2013 at 5:17 pm
gossypin is an enzyme found in the hibiscus plant. Making tea out of hibiscus is a great source. Gossypin has recently shown to destroy melanoma cells as well as stopping new growth of tumors. It’s all over Google, just search gossypin and melanoma and the peer reviewed study will come up.as for other remedies, tumeric (capasin) is very effective. Another powerhouse is vitamin b17 which is best taken in form of apricot seeds (kernels). It’s very bitter, but it does kill cancer. It saved Ronald Reagans life.
Other remedies, cinnamon, paw paw extract, graviola, etc are great but their clinical and anecdotal evidence is not as strong as the others. good luck with everything!
-
- October 22, 2013 at 5:17 pm
gossypin is an enzyme found in the hibiscus plant. Making tea out of hibiscus is a great source. Gossypin has recently shown to destroy melanoma cells as well as stopping new growth of tumors. It’s all over Google, just search gossypin and melanoma and the peer reviewed study will come up.as for other remedies, tumeric (capasin) is very effective. Another powerhouse is vitamin b17 which is best taken in form of apricot seeds (kernels). It’s very bitter, but it does kill cancer. It saved Ronald Reagans life.
Other remedies, cinnamon, paw paw extract, graviola, etc are great but their clinical and anecdotal evidence is not as strong as the others. good luck with everything!
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- October 13, 2013 at 9:22 am
Hello again,That is amazing news! I am very happy to hear that. Based on everything I have read and researched (thankful for pubmed.gov) I have made my decision to watch and wait. There are many factors involved in this decision, primarily being how low of a percentage of NSLN involvement rates based on piles of data. Of course, figuring out which variables (breslow thickness, location of tumor, ulceration?, and positive sentinel node tumor burden) matter most was tricky, but, I did find out. The question of ulceration and amount of melanoma deposit in the positive node are the most important ones. This was custom tailored to my particular position. My risk is below 6%, and I feel that I could live with that.
Another vital part of my decision is that I truly believe in my body’s immune system and overall condition/health. Hopefully, this will be the end of this (even given the 20-30% chance of recurrence).
Thank you for writing me back with your results! May you live cancer free and healthy…
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- October 13, 2013 at 9:22 am
Hello again,That is amazing news! I am very happy to hear that. Based on everything I have read and researched (thankful for pubmed.gov) I have made my decision to watch and wait. There are many factors involved in this decision, primarily being how low of a percentage of NSLN involvement rates based on piles of data. Of course, figuring out which variables (breslow thickness, location of tumor, ulceration?, and positive sentinel node tumor burden) matter most was tricky, but, I did find out. The question of ulceration and amount of melanoma deposit in the positive node are the most important ones. This was custom tailored to my particular position. My risk is below 6%, and I feel that I could live with that.
Another vital part of my decision is that I truly believe in my body’s immune system and overall condition/health. Hopefully, this will be the end of this (even given the 20-30% chance of recurrence).
Thank you for writing me back with your results! May you live cancer free and healthy…
-
- October 13, 2013 at 9:22 am
Hello again,That is amazing news! I am very happy to hear that. Based on everything I have read and researched (thankful for pubmed.gov) I have made my decision to watch and wait. There are many factors involved in this decision, primarily being how low of a percentage of NSLN involvement rates based on piles of data. Of course, figuring out which variables (breslow thickness, location of tumor, ulceration?, and positive sentinel node tumor burden) matter most was tricky, but, I did find out. The question of ulceration and amount of melanoma deposit in the positive node are the most important ones. This was custom tailored to my particular position. My risk is below 6%, and I feel that I could live with that.
Another vital part of my decision is that I truly believe in my body’s immune system and overall condition/health. Hopefully, this will be the end of this (even given the 20-30% chance of recurrence).
Thank you for writing me back with your results! May you live cancer free and healthy…
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- October 10, 2013 at 11:52 pm
Hello Ninja and thank you for writing to me.I am glad your husband survived and is doing well. Did he take the interferon that was recommended? Or did he just do the lymph node removal and that’s it?
Luckily, I only had 1 node positive with trace amounts of cell build up in the node.
Thank you Ninja…
Kamran
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- October 10, 2013 at 11:52 pm
Hello Ninja and thank you for writing to me.I am glad your husband survived and is doing well. Did he take the interferon that was recommended? Or did he just do the lymph node removal and that’s it?
Luckily, I only had 1 node positive with trace amounts of cell build up in the node.
Thank you Ninja…
Kamran
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- October 10, 2013 at 11:52 pm
Hello Ninja and thank you for writing to me.I am glad your husband survived and is doing well. Did he take the interferon that was recommended? Or did he just do the lymph node removal and that’s it?
Luckily, I only had 1 node positive with trace amounts of cell build up in the node.
Thank you Ninja…
Kamran
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