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catahoula

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      catahoula
      Participant

      A second opinion is definitely a good idea, it honestly hadn't occurred to me before because I thought being at the university he was already getting the best care in the area. It is scary to think a Dr could miss so much.

      He had a scan last Monday which showed no new brain mets and the ones he has are smaller now than they were in his scan in April and the same size as the ones he had in his scan in July.

      He isn't on any anti seizure medication, but he does take a steroid.

      Driving hasn't been an issue since he isn't able to sit up for long enough. 

       

       

      catahoula
      Participant

      A second opinion is definitely a good idea, it honestly hadn't occurred to me before because I thought being at the university he was already getting the best care in the area. It is scary to think a Dr could miss so much.

      He had a scan last Monday which showed no new brain mets and the ones he has are smaller now than they were in his scan in April and the same size as the ones he had in his scan in July.

      He isn't on any anti seizure medication, but he does take a steroid.

      Driving hasn't been an issue since he isn't able to sit up for long enough. 

       

       

      catahoula
      Participant

      A second opinion is definitely a good idea, it honestly hadn't occurred to me before because I thought being at the university he was already getting the best care in the area. It is scary to think a Dr could miss so much.

      He had a scan last Monday which showed no new brain mets and the ones he has are smaller now than they were in his scan in April and the same size as the ones he had in his scan in July.

      He isn't on any anti seizure medication, but he does take a steroid.

      Driving hasn't been an issue since he isn't able to sit up for long enough. 

       

       

      catahoula
      Participant

      We live in Aurora,CO and he is being treated by Dr. Rene Gonzalez who is a melanoma specialist.

      He has had some palliative radiation to treat pain in his back in April.

      He also had a gamma knife procedure back in May which seems to be controlling the mets in his brain, they don't seem to think he needs another one right now. 

      He has an appointment with a counselor comming up and we will ask about antidepressants,he has been taking risperdal at night but it isn't doing much for his mood.

      My BIL is going with him to his first Ipi on Monday and he is going to ask about the fatigue since it seems to be getting worse, yesterday he slept for over 20 hrs and basically only woke for meds, water and to take his vitals. Today he is still asleep and it is after 5. I'm about to wake him up to give him his medicine and take his tempature and blood pressure and try to get him to drink a couple of ensure. 

       

      Thank you both for the advice and encouragement. I have also told him about stories of people on this board who have been where he is and have come back, it seemed to brighten his mood. 

      catahoula
      Participant

      We live in Aurora,CO and he is being treated by Dr. Rene Gonzalez who is a melanoma specialist.

      He has had some palliative radiation to treat pain in his back in April.

      He also had a gamma knife procedure back in May which seems to be controlling the mets in his brain, they don't seem to think he needs another one right now. 

      He has an appointment with a counselor comming up and we will ask about antidepressants,he has been taking risperdal at night but it isn't doing much for his mood.

      My BIL is going with him to his first Ipi on Monday and he is going to ask about the fatigue since it seems to be getting worse, yesterday he slept for over 20 hrs and basically only woke for meds, water and to take his vitals. Today he is still asleep and it is after 5. I'm about to wake him up to give him his medicine and take his tempature and blood pressure and try to get him to drink a couple of ensure. 

       

      Thank you both for the advice and encouragement. I have also told him about stories of people on this board who have been where he is and have come back, it seemed to brighten his mood. 

      catahoula
      Participant

      We live in Aurora,CO and he is being treated by Dr. Rene Gonzalez who is a melanoma specialist.

      He has had some palliative radiation to treat pain in his back in April.

      He also had a gamma knife procedure back in May which seems to be controlling the mets in his brain, they don't seem to think he needs another one right now. 

      He has an appointment with a counselor comming up and we will ask about antidepressants,he has been taking risperdal at night but it isn't doing much for his mood.

      My BIL is going with him to his first Ipi on Monday and he is going to ask about the fatigue since it seems to be getting worse, yesterday he slept for over 20 hrs and basically only woke for meds, water and to take his vitals. Today he is still asleep and it is after 5. I'm about to wake him up to give him his medicine and take his tempature and blood pressure and try to get him to drink a couple of ensure. 

       

      Thank you both for the advice and encouragement. I have also told him about stories of people on this board who have been where he is and have come back, it seemed to brighten his mood. 

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