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caper01

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      caper01
      Participant

        My melanoma started on the calf also.  The mole was removed in 1998.  You can expect to have regular checkups after surgery.  I hadn't noticed anything else until some 8 years later when I had a lymph node swell in my upper leg.  Good luck on the surgery and I hope that will be all you will ever need! 

        caper01
        Participant

          My melanoma started on the calf also.  The mole was removed in 1998.  You can expect to have regular checkups after surgery.  I hadn't noticed anything else until some 8 years later when I had a lymph node swell in my upper leg.  Good luck on the surgery and I hope that will be all you will ever need! 

          caper01
          Participant

            I understand the shock you must have felt when informed of your status and though you may likely have to undergo more than one treatment protocol, don't despair. My story may help some.  I went into Stage IV four years ago, underwent several chemo treatments, and have now been cancer free for two years.  I initially received Interferon. The next treatment was IL2 combined with several other chemos.  This treatment was rugged and they had to back off the IL2.  Lastly I was placed in a clinical trial which made all the tumors, save one, disappear.  The last was eventually removed (along with the other lymph nodes in that side of my abdomen) with surgery.  The hair is back, my strength is back, I gained the pounds back I lost (sigh), and almost as healthy as before all this started.  I have some residual neuropathy in  the hands and feet caused by the chemo but that is very manageable.

            The best recommendation I can give is to get to MD Anderson (if you have not already) as soon as you can.  I was told by my local oncologist I had 6 months after my first round of chemo failed.  After seeing several others in several other hospitals/med centers I contacted MD Anderson.  I had been told by some people about it and had heard about it before but hadn't considered it.  There are many knowledgeable oncologists out there and many very good hospitals.  But I have found none that can compare with the cutting-edge knowledge, broad treatment possibilities, and quality of care that I found there.

            My insurance company initially said that MD Anderson was not, oh…what was the term…"In Network", and so I initially had to bring a big check along.  But a day after my first meeting with them the folks at MD Anderson called and said their atty's talked with my insurance company atty's and I am now "In Network".  I mentioned this because it shows how they were willing to go above and beyond in my estimation to help.  

               

            caper01
            Participant

              I understand the shock you must have felt when informed of your status and though you may likely have to undergo more than one treatment protocol, don't despair. My story may help some.  I went into Stage IV four years ago, underwent several chemo treatments, and have now been cancer free for two years.  I initially received Interferon. The next treatment was IL2 combined with several other chemos.  This treatment was rugged and they had to back off the IL2.  Lastly I was placed in a clinical trial which made all the tumors, save one, disappear.  The last was eventually removed (along with the other lymph nodes in that side of my abdomen) with surgery.  The hair is back, my strength is back, I gained the pounds back I lost (sigh), and almost as healthy as before all this started.  I have some residual neuropathy in  the hands and feet caused by the chemo but that is very manageable.

              The best recommendation I can give is to get to MD Anderson (if you have not already) as soon as you can.  I was told by my local oncologist I had 6 months after my first round of chemo failed.  After seeing several others in several other hospitals/med centers I contacted MD Anderson.  I had been told by some people about it and had heard about it before but hadn't considered it.  There are many knowledgeable oncologists out there and many very good hospitals.  But I have found none that can compare with the cutting-edge knowledge, broad treatment possibilities, and quality of care that I found there.

              My insurance company initially said that MD Anderson was not, oh…what was the term…"In Network", and so I initially had to bring a big check along.  But a day after my first meeting with them the folks at MD Anderson called and said their atty's talked with my insurance company atty's and I am now "In Network".  I mentioned this because it shows how they were willing to go above and beyond in my estimation to help.  

                 

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