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boot2aboot

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      boot2aboot
      Participant

        who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?  

        boots

        boot2aboot
        Participant

          who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?  

          boots

          boot2aboot
          Participant

            who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?  

            boots

            boot2aboot
            Participant

              sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

              boots

              boot2aboot
              Participant

                sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

                boots

                boot2aboot
                Participant

                  sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

                  boots

                  boot2aboot
                  Participant

                    Maybe a visit to Sloan Kettering for another opinion on what to do next?

                    Hang in there…

                    boots

                    boot2aboot
                    Participant

                      Maybe a visit to Sloan Kettering for another opinion on what to do next?

                      Hang in there…

                      boots

                      boot2aboot
                      Participant

                        Maybe a visit to Sloan Kettering for another opinion on what to do next?

                        Hang in there…

                        boots

                        boot2aboot
                        Participant

                          Kevin,

                          i forgot to mention that celexa helped my anxiety a lot…no more panic attacks

                          boots

                          boot2aboot
                          Participant

                            Kevin,

                            i forgot to mention that celexa helped my anxiety a lot…no more panic attacks

                            boots

                            boot2aboot
                            Participant

                              Kevin,

                              i forgot to mention that celexa helped my anxiety a lot…no more panic attacks

                              boots

                              boot2aboot
                              Participant

                                Kevin,

                                I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing

                                boots

                                boot2aboot
                                Participant

                                  Kevin,

                                  I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing

                                  boots

                                  boot2aboot
                                  Participant

                                    Kevin,

                                    I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing

                                    boots

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