Forum Replies Created
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- March 16, 2012 at 3:40 am
who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?
boots
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- March 16, 2012 at 3:40 am
who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?
boots
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- March 16, 2012 at 3:40 am
who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?
boots
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- March 14, 2012 at 7:36 pm
sounds like you are in good hands…good move…yes, this disease is usually….dissapointing
boots
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- March 14, 2012 at 7:36 pm
sounds like you are in good hands…good move…yes, this disease is usually….dissapointing
boots
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- March 14, 2012 at 7:36 pm
sounds like you are in good hands…good move…yes, this disease is usually….dissapointing
boots
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- March 14, 2012 at 7:15 pm
Maybe a visit to Sloan Kettering for another opinion on what to do next?
Hang in there…
boots
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- March 14, 2012 at 7:15 pm
Maybe a visit to Sloan Kettering for another opinion on what to do next?
Hang in there…
boots
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- March 14, 2012 at 7:15 pm
Maybe a visit to Sloan Kettering for another opinion on what to do next?
Hang in there…
boots
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- March 14, 2012 at 7:31 pm
Kevin,
i forgot to mention that celexa helped my anxiety a lot…no more panic attacks
boots
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- March 14, 2012 at 7:31 pm
Kevin,
i forgot to mention that celexa helped my anxiety a lot…no more panic attacks
boots
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- March 14, 2012 at 7:31 pm
Kevin,
i forgot to mention that celexa helped my anxiety a lot…no more panic attacks
boots
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- March 14, 2012 at 7:28 pm
Kevin,
I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing
boots
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- March 14, 2012 at 7:28 pm
Kevin,
I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing
boots
-
- March 14, 2012 at 7:28 pm
Kevin,
I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing
boots
-