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boot2aboot

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      boot2aboot
      Participant

      who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?  

      boots

      boot2aboot
      Participant

      who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?  

      boots

      boot2aboot
      Participant

      who is doing the primary research on this? Do we know how far along a Gal3 inhibitor is?  

      boots

      boot2aboot
      Participant

      sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

      boots

      boot2aboot
      Participant

      sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

      boots

      boot2aboot
      Participant

      sounds like you are in good hands…good move…yes, this disease is usually….dissapointing

      boots

      boot2aboot
      Participant

      Maybe a visit to Sloan Kettering for another opinion on what to do next?

      Hang in there…

      boots

      boot2aboot
      Participant

      Maybe a visit to Sloan Kettering for another opinion on what to do next?

      Hang in there…

      boots

      boot2aboot
      Participant

      Maybe a visit to Sloan Kettering for another opinion on what to do next?

      Hang in there…

      boots

      boot2aboot
      Participant

      Kevin,

      i forgot to mention that celexa helped my anxiety a lot…no more panic attacks

      boots

      boot2aboot
      Participant

      Kevin,

      i forgot to mention that celexa helped my anxiety a lot…no more panic attacks

      boots

      boot2aboot
      Participant

      Kevin,

      i forgot to mention that celexa helped my anxiety a lot…no more panic attacks

      boots

      boot2aboot
      Participant

      Kevin,

      I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing

      boots

      boot2aboot
      Participant

      Kevin,

      I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing

      boots

      boot2aboot
      Participant

      Kevin,

      I can imagine the terror of having seizures…i am sorry that you have had this ordeal…i am hoping zelboraf works…i have had a lot of probs with zelboraf…but i have enzyme defiencies so i was overdosing on recommended doses…i got my dose reduced and other than skin rashes and arthragia doing OK, oh, and a big squamous on my nose…if you are experiencing any side effects tell the doctor…they can do stuff for you like pred creams and the like…it takes a few months for side effects to subside…make sure you are seeing a derm once a month…this is a good drug because it is 80% effective in brafys and it crosses brain barrier…stretching (like yoga or tai chi ) helps arthragia, so do hot baths…ibuprofin (sp) helps reduce fevers and body aches…exercise and regular sleep habits important to keep strength up…even if only 10 min a time…some people get keratosis pilaris-chicken skin-the derm will tell you how to manage…also they advise that you wear sun protection and not go out in sun until after 4p…i know that kinda sucks…actually, i DO go out in sun sometimes without protection and didn't get anything…but, don't be stupid like me…protect eyes with good sunglasses…maybe check out UV protection clothing

      boots

Viewing 8 reply threads
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