The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

bigb0624

Forum Replies Created

Viewing 2 reply threads
  • Replies
      bigb0624
      Participant

      Tina,

      How did you know you had "endocrine" issues (what were your symptoms)?  Did you have any other side effects from the IPPI?

      Barry

      bigb0624
      Participant

      Tina,

      How did you know you had "endocrine" issues (what were your symptoms)?  Did you have any other side effects from the IPPI?

      Barry

      bigb0624
      Participant

      Tina,

      How did you know you had "endocrine" issues (what were your symptoms)?  Did you have any other side effects from the IPPI?

      Barry

      bigb0624
      Participant

      It is a study being conducted by Ravi Amaravadi, M.D. at the Pennsylvia University Medical School.  It is the Perelman School of Medicine (Abramson Cancer Center).  The name of the drug is hydroxycholoroquine.  If you can't find it let me know and i can fax the article to you.

      Good luck to you and your wife.

      bigb0624
      Participant

      It is a study being conducted by Ravi Amaravadi, M.D. at the Pennsylvia University Medical School.  It is the Perelman School of Medicine (Abramson Cancer Center).  The name of the drug is hydroxycholoroquine.  If you can't find it let me know and i can fax the article to you.

      Good luck to you and your wife.

      bigb0624
      Participant

      It is a study being conducted by Ravi Amaravadi, M.D. at the Pennsylvia University Medical School.  It is the Perelman School of Medicine (Abramson Cancer Center).  The name of the drug is hydroxycholoroquine.  If you can't find it let me know and i can fax the article to you.

      Good luck to you and your wife.

      bigb0624
      Participant

      Recent;y i stoppefd taking Zelboraf and swithed to GSK's combo drugs.  At first my insurance company refused to pay for the Mekinist but then my oncologist filed a protest and within 4 days they both were approved.  I pay $60 co-pay for both drugs. 

      bigb0624
      Participant

      Recent;y i stoppefd taking Zelboraf and swithed to GSK's combo drugs.  At first my insurance company refused to pay for the Mekinist but then my oncologist filed a protest and within 4 days they both were approved.  I pay $60 co-pay for both drugs. 

      bigb0624
      Participant

      Recent;y i stoppefd taking Zelboraf and swithed to GSK's combo drugs.  At first my insurance company refused to pay for the Mekinist but then my oncologist filed a protest and within 4 days they both were approved.  I pay $60 co-pay for both drugs. 

      bigb0624
      Participant

      Wait until the snow melts before coming here. We had 10 inches of snow yesterday and it's spring?  When you come to St. Lou let me know.  My email is bigb0624@sbcglobal.net.

      Stay positive and keep up the good work.  I'll tell Joann we have met on the MRF website. Keep up the good work.

      Barry

      bigb0624
      Participant

      Wait until the snow melts before coming here. We had 10 inches of snow yesterday and it's spring?  When you come to St. Lou let me know.  My email is bigb0624@sbcglobal.net.

      Stay positive and keep up the good work.  I'll tell Joann we have met on the MRF website. Keep up the good work.

      Barry

      bigb0624
      Participant

      Wait until the snow melts before coming here. We had 10 inches of snow yesterday and it's spring?  When you come to St. Lou let me know.  My email is bigb0624@sbcglobal.net.

      Stay positive and keep up the good work.  I'll tell Joann we have met on the MRF website. Keep up the good work.

      Barry

      bigb0624
      Participant

      Tina,

      Thanks for getting back to me.  Your explanation was great and i appreciate it.  So far after 3 infusions i have had some fatigue and some itching and mild rash.  Benadryl & Clairiton have helped.  My 4th infusion is April 9th so we will see what happens in the next 2 1/2 weeks as far as side effects.

      If you do visit St. Louis i would like to meet you and your family.  We have some great attractions here for your kids and you.  Our zoo is one of the best (and it is free), we have the Magic House, City Museum, Top of the Arch, etc. and the Cardinals.  If you need any assistance with regard to visiting here let me know.  By the way, are you near Peru, In.?  My ex-wife use to live there.

      Have a great day and the best to you,

      Barry

      bigb0624
      Participant

      Tina,

      Thanks for getting back to me.  Your explanation was great and i appreciate it.  So far after 3 infusions i have had some fatigue and some itching and mild rash.  Benadryl & Clairiton have helped.  My 4th infusion is April 9th so we will see what happens in the next 2 1/2 weeks as far as side effects.

      If you do visit St. Louis i would like to meet you and your family.  We have some great attractions here for your kids and you.  Our zoo is one of the best (and it is free), we have the Magic House, City Museum, Top of the Arch, etc. and the Cardinals.  If you need any assistance with regard to visiting here let me know.  By the way, are you near Peru, In.?  My ex-wife use to live there.

      Have a great day and the best to you,

      Barry

      bigb0624
      Participant

      Tina,

      Thanks for getting back to me.  Your explanation was great and i appreciate it.  So far after 3 infusions i have had some fatigue and some itching and mild rash.  Benadryl & Clairiton have helped.  My 4th infusion is April 9th so we will see what happens in the next 2 1/2 weeks as far as side effects.

      If you do visit St. Louis i would like to meet you and your family.  We have some great attractions here for your kids and you.  Our zoo is one of the best (and it is free), we have the Magic House, City Museum, Top of the Arch, etc. and the Cardinals.  If you need any assistance with regard to visiting here let me know.  By the way, are you near Peru, In.?  My ex-wife use to live there.

      Have a great day and the best to you,

      Barry

Viewing 2 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.