aweatherred

Well, PET revealed 3 more nodes… #1 1.7cm x 1.6 cm left inguinal/upper thigh, #2 medial left upper thigh 1/1 cm x 1.0 cm and # 3 left upper thigh 09 x 0.7 cm. I assume I’m up for another surgical procedure. Oncologist was unhappy that pathology did not include Caiden’s (sp?) she is requesting pathology send for additional testing, and to return in 3 weeks. Pretty devastated that I have to wait so long for results. Will be discussing PET w/ surgeon on Monday. So unclear about treatment

Thanks Darla! I’m awaiting word from Oncologist/Rad Oncologist and surgeon as to when to start these medications, MRI revealed more tumors, oncology would prefer another (6th!) surgery to debulk, but I have such a hard time with post operative complications and once out of the post op period, seem to “birth” more tumors. My surgeon is leaning to treatment hopefully shrinking these tumors and then possible surgery if results not optimal. I’m just awaiting the final word. I’ll keep you posted.
Again, thanks for the words of encouragement! I’m so ready to get back to my life!
Audrey

Hukill,
Thanks for the words of encouragement, I feel like a whiney butt even voicing my fears, but again, I’m petrified that the side effects will be so debilitating. I am trying to meet this head on, although fearful. I’ll keep ya posted.
Audrey

Chrissy,
Thanks for the encouragement! I am actually petrified of these chemo drugs, and I’m sure that I sound like an idiot for voicing these fears, but I just want to remain functional and enjoy my life with my husband of 45 years in these golden years of our lives together. Most blogs and comments that I have viewed were so negative. I am grateful to hear something positive!
Your story has given me a glimmer of hope!
Audrey

Thanks Celste! Very good and informative post, I’m so full of questions, and not quite sure what questions to ask! Look for more to come after my oncology visit!

Hey Mike! Thanks for replying, I was really hoping this was all behind me last November w/ the negative lymph nodes negative margins (and I’m with ya with that wide local excision!!) I’m thankful I work w/ a very skilled surgeon, and have a close relationship with the oncology office that we refer to as well.
Tell me about your immunotherapy, how was the dosing? PO, injection? How about your response/side effects? I’m currently out on leave, not sure what to expect., back to work/time to heal, side effects etc
I’m somewhat of a control freak, and I’m used to driving that bus, not a passenger kind of girl!
Thanks for the words of encouragement, I think I’m over the initial shock, now i’m ready to get things going!