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- April 23, 2013 at 11:31 pm
Even a small OM can put you at risk of mets. If you look at the studies you will understand how important it is that you seek treatment ASAP.
You also need to preserve sight and the OM is impacting your vision.
There are OM specialists to research you can find lists on the OM sites look for physician finder for surgeons practicing in OM from this list.
Find out what tests/scans are needed for the procedure and find an ocular melanoma oncologist. As I mentioned you
May be at a lesser risk. But that is not saying you have no risk .this disease is rare and those who seem to survive are proactive, determined and fearless. Ann Wilson -
- April 23, 2013 at 11:31 pm
Even a small OM can put you at risk of mets. If you look at the studies you will understand how important it is that you seek treatment ASAP.
You also need to preserve sight and the OM is impacting your vision.
There are OM specialists to research you can find lists on the OM sites look for physician finder for surgeons practicing in OM from this list.
Find out what tests/scans are needed for the procedure and find an ocular melanoma oncologist. As I mentioned you
May be at a lesser risk. But that is not saying you have no risk .this disease is rare and those who seem to survive are proactive, determined and fearless. Ann Wilson -
- April 23, 2013 at 11:31 pm
Even a small OM can put you at risk of mets. If you look at the studies you will understand how important it is that you seek treatment ASAP.
You also need to preserve sight and the OM is impacting your vision.
There are OM specialists to research you can find lists on the OM sites look for physician finder for surgeons practicing in OM from this list.
Find out what tests/scans are needed for the procedure and find an ocular melanoma oncologist. As I mentioned you
May be at a lesser risk. But that is not saying you have no risk .this disease is rare and those who seem to survive are proactive, determined and fearless. Ann Wilson -
- April 23, 2013 at 7:58 pm
I was recently treated with radio plaque for a small ocular melanoma at Shields & Shields at Wills Eye Hospital in Philadelphia Pa. Shields treats 500 new ocular melanoma patients a year. It was an easy decision for me to seek treatment that had so much experience. I did not wait for treatment …in fact I cancelled an appointment and sought out the place of best immediate care. You have a lesser risk of mets with a small melanoma but my OM was also impacting my eyesight. You are on a mission to salvage as much vision as possible and also to save your life. So what might fit into your doctor’s appointment book and what is best for your health may not jive.
Join the ocu-Mel list serve and you’ll learn a great amount about being a good advocate for your survival. There is a list of international sites that so at least 50 percent of the practice in OM . Post questions here and on the ocumel list serve for insights from other patients. Ann Wilson -
- April 23, 2013 at 7:58 pm
I was recently treated with radio plaque for a small ocular melanoma at Shields & Shields at Wills Eye Hospital in Philadelphia Pa. Shields treats 500 new ocular melanoma patients a year. It was an easy decision for me to seek treatment that had so much experience. I did not wait for treatment …in fact I cancelled an appointment and sought out the place of best immediate care. You have a lesser risk of mets with a small melanoma but my OM was also impacting my eyesight. You are on a mission to salvage as much vision as possible and also to save your life. So what might fit into your doctor’s appointment book and what is best for your health may not jive.
Join the ocu-Mel list serve and you’ll learn a great amount about being a good advocate for your survival. There is a list of international sites that so at least 50 percent of the practice in OM . Post questions here and on the ocumel list serve for insights from other patients. Ann Wilson -
- April 23, 2013 at 7:58 pm
I was recently treated with radio plaque for a small ocular melanoma at Shields & Shields at Wills Eye Hospital in Philadelphia Pa. Shields treats 500 new ocular melanoma patients a year. It was an easy decision for me to seek treatment that had so much experience. I did not wait for treatment …in fact I cancelled an appointment and sought out the place of best immediate care. You have a lesser risk of mets with a small melanoma but my OM was also impacting my eyesight. You are on a mission to salvage as much vision as possible and also to save your life. So what might fit into your doctor’s appointment book and what is best for your health may not jive.
Join the ocu-Mel list serve and you’ll learn a great amount about being a good advocate for your survival. There is a list of international sites that so at least 50 percent of the practice in OM . Post questions here and on the ocumel list serve for insights from other patients. Ann Wilson -
- April 24, 2013 at 10:48 pm
You can contact Dr. Shields office at
1-215-928-3105 and the staff will be able to give you an estimate of the cost for the plaque for your tumor. If you do a google search for “ocumel” you will see a website for the ocular melanoma community. In the upper right hand area of the page go to “patient info” there you will find “doctor finder.” It is an International listing of doctors; all doctors listed must spend 50 percent of their practice in eye cancer.
Doctors listed for Vancover include: Jack Rootman and Katherine Paton. Other doctors are listed in Toronto, Quebec City and Montreal.
To choose your doctor find out how many OM patients they treat a year. Your surgery includes a custom plaque that is created to tr e at “your” tumor by a physicist. Take time to look at the symposium videos listed here. Be sure to do some research and google small ocular melanoma tumors mortality. Size of the tumor, characteristics of the tumor, location of the tumor and your age are important
considerations. Make sure that you have a gene study of your tumor taken before the tumor is radiated if you want to get a prognosis of possibility of mets. Find out how many gene biopsys (sp) have been done successfully on small tumors…if this is important to you. Sometimes knowing the make up of the cancer gene can direct your treatment later if you have mets. Yes, patients with small ocular melanomas can develop mets.
Keep advocating for yourself. Be determined, informed and fearless.
I want to see good news here from you. It lifts all of our spirits when we know someone is on the right path forward.
Sincerely,
Ann Wilson -
- April 24, 2013 at 10:48 pm
You can contact Dr. Shields office at
1-215-928-3105 and the staff will be able to give you an estimate of the cost for the plaque for your tumor. If you do a google search for “ocumel” you will see a website for the ocular melanoma community. In the upper right hand area of the page go to “patient info” there you will find “doctor finder.” It is an International listing of doctors; all doctors listed must spend 50 percent of their practice in eye cancer.
Doctors listed for Vancover include: Jack Rootman and Katherine Paton. Other doctors are listed in Toronto, Quebec City and Montreal.
To choose your doctor find out how many OM patients they treat a year. Your surgery includes a custom plaque that is created to tr e at “your” tumor by a physicist. Take time to look at the symposium videos listed here. Be sure to do some research and google small ocular melanoma tumors mortality. Size of the tumor, characteristics of the tumor, location of the tumor and your age are important
considerations. Make sure that you have a gene study of your tumor taken before the tumor is radiated if you want to get a prognosis of possibility of mets. Find out how many gene biopsys (sp) have been done successfully on small tumors…if this is important to you. Sometimes knowing the make up of the cancer gene can direct your treatment later if you have mets. Yes, patients with small ocular melanomas can develop mets.
Keep advocating for yourself. Be determined, informed and fearless.
I want to see good news here from you. It lifts all of our spirits when we know someone is on the right path forward.
Sincerely,
Ann Wilson -
- April 24, 2013 at 10:48 pm
You can contact Dr. Shields office at
1-215-928-3105 and the staff will be able to give you an estimate of the cost for the plaque for your tumor. If you do a google search for “ocumel” you will see a website for the ocular melanoma community. In the upper right hand area of the page go to “patient info” there you will find “doctor finder.” It is an International listing of doctors; all doctors listed must spend 50 percent of their practice in eye cancer.
Doctors listed for Vancover include: Jack Rootman and Katherine Paton. Other doctors are listed in Toronto, Quebec City and Montreal.
To choose your doctor find out how many OM patients they treat a year. Your surgery includes a custom plaque that is created to tr e at “your” tumor by a physicist. Take time to look at the symposium videos listed here. Be sure to do some research and google small ocular melanoma tumors mortality. Size of the tumor, characteristics of the tumor, location of the tumor and your age are important
considerations. Make sure that you have a gene study of your tumor taken before the tumor is radiated if you want to get a prognosis of possibility of mets. Find out how many gene biopsys (sp) have been done successfully on small tumors…if this is important to you. Sometimes knowing the make up of the cancer gene can direct your treatment later if you have mets. Yes, patients with small ocular melanomas can develop mets.
Keep advocating for yourself. Be determined, informed and fearless.
I want to see good news here from you. It lifts all of our spirits when we know someone is on the right path forward.
Sincerely,
Ann Wilson
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