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AnitaLoree

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      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

       

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

      10% who retain some contrast that it would build up & give a false read of

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

      10% who retain some contrast that it would build up & give a false read of

      AnitaLoree
      Participant

      Husband's been getting MRIs X 2 yrs now, always both w & w/o contrast as they give a little different picture; the contrast is taken up in metabolically active sites in the body, tumors being one of them.  Sounds like an oversight by prescribing doc. Have to ask @ time of Onc doc visit bcs once request is sent in & you arrive for scan the techs can't change the order bcs scheduled timeslots are full. Happened to husband when crucial scan order was negligently omitted. Recently published finding that ~ 10% patients have small amount residual contrast medium remain in brain. Unknown if the residue is harmful in any way or not. Our Onc Doc doesn't know either, had read about it also. Good hydration before MRI to enhance circulation of contrast and good hydration after to enhance excretion is advised. I would think that in the ~10% who retain that it would build up some & possibly give a false image of hot spot. A.L.

       

       

       

       

       

       

       

       

       

      10% who retain some contrast that it would build up & give a false read of

      AnitaLoree
      Participant

      My husband has been on Keytruda X12 mo., essentially PFS, altho there was a hint on the latest cervical MRI that the tail of the residual tumor "might" be enhanced. So he switched to Plan B which I believed he should go to anyway & had 1st Yervoy/Opdivo combo 3 wks ago, next tomorrow. Keytruda only caused him rash, itching, fatigue, so he has been lucky but also we are careful with diet: organic, no alcohol, sugar, white flour products, GMO, lean toward more alkaline. So far, with the combo, he is experiencing more fatigue and a little more intense rash, itching. Labs have remained normal thruout. Again, lucky. So, as Artie says, right now this is the next game in town, buy some time. If you haven't, perhaps you could try very non irritating, mild, balanced nutritious small meals several times/day and stay hydrated. Maybe eliminate gluten foods just in case you had a potential problem that this immunotherapy unmasked.  Sorry this is hitting you at Thanksgiving time!  Hoping you feel better soon. A.L.

      AnitaLoree
      Participant

      My husband has been on Keytruda X12 mo., essentially PFS, altho there was a hint on the latest cervical MRI that the tail of the residual tumor "might" be enhanced. So he switched to Plan B which I believed he should go to anyway & had 1st Yervoy/Opdivo combo 3 wks ago, next tomorrow. Keytruda only caused him rash, itching, fatigue, so he has been lucky but also we are careful with diet: organic, no alcohol, sugar, white flour products, GMO, lean toward more alkaline. So far, with the combo, he is experiencing more fatigue and a little more intense rash, itching. Labs have remained normal thruout. Again, lucky. So, as Artie says, right now this is the next game in town, buy some time. If you haven't, perhaps you could try very non irritating, mild, balanced nutritious small meals several times/day and stay hydrated. Maybe eliminate gluten foods just in case you had a potential problem that this immunotherapy unmasked.  Sorry this is hitting you at Thanksgiving time!  Hoping you feel better soon. A.L.

      AnitaLoree
      Participant

      My husband has been on Keytruda X12 mo., essentially PFS, altho there was a hint on the latest cervical MRI that the tail of the residual tumor "might" be enhanced. So he switched to Plan B which I believed he should go to anyway & had 1st Yervoy/Opdivo combo 3 wks ago, next tomorrow. Keytruda only caused him rash, itching, fatigue, so he has been lucky but also we are careful with diet: organic, no alcohol, sugar, white flour products, GMO, lean toward more alkaline. So far, with the combo, he is experiencing more fatigue and a little more intense rash, itching. Labs have remained normal thruout. Again, lucky. So, as Artie says, right now this is the next game in town, buy some time. If you haven't, perhaps you could try very non irritating, mild, balanced nutritious small meals several times/day and stay hydrated. Maybe eliminate gluten foods just in case you had a potential problem that this immunotherapy unmasked.  Sorry this is hitting you at Thanksgiving time!  Hoping you feel better soon. A.L.

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