Melanoma Research Foundation | Amy-MRF | Activity https://forum.melanoma.org/user/amarbaugh/activity/ Activity feed for Amy-MRF. Thu, 23 Apr 2026 02:58:33 -0400 https://buddypress.org/?v= en-US 30 hourly 2 730af9707dae39f9a90dfe8f639eebc7 Amy-MRF started the topic Happy Melanoma Awareness Month from the MRF! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/happy-melanoma-awareness-month-from-the-mrf/ Wed, 04 May 2022 23:56:15 -0400 Happy Melanoma Awareness Month from the MRF! We have a number of events planned for this month to raise awareness and provide melanoma educational opportunities. You can find more by visiting our MAM webpage!

Visit the MRF’s Facebook page to see additional content!

While we know that melanoma affects each of you every day, be sure to continue…Read more

]]> 12e22587d1c2d970ddd72758557205f3 Amy-MRF started the topic Now available: User profiles from previous Patient Forum! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/now-available-user-profiles-from-previous-patient-forum/?view=all Wed, 20 Apr 2022 16:31:47 -0400 Hi everyone,

The MRF is excited to announce that we have been able to retrieve the user profiles from the previous version of the Patient Forum! These profiles would have been last updated during the Fall of 2020. If you were a Forum user prior to late 2020 and would like to have your previous profile content, please email patientforum@melanoma.or…Read more

]]> 52b85972ac67aef05304592812a040ad Amy-MRF replied to the topic Spam block idea in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/spam-block-idea/#post-276451 Thu, 10 Mar 2022 21:34:06 -0500 The MRF has multiple spam blockers on the Forum that catch bots who are spamming. These are not bots who are posting, but actual people signing up with accounts and making individual posts. The only way to prevent this type of spam from being posted is if someone from the MRF reviewed each and every message and made determinations if a post is…Read more

]]> 9718878fbcabf8cf6d7be8839f37a9a7 Amy-MRF started the topic Calling All TIL Cell Therapy Patients! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/calling-all-til-cell-therapy-patients/ Tue, 08 Feb 2022 21:35:38 -0500 TIL cell therapy is a new treatment for melanoma that is showing promising results! The MRF would like to highlight those patients who have received TIL cell therapy to share your treatment experience. These opportunities may include writing a blog post, participating in a webinar, or telling your story to our industry partners. Sharing your…Read more

]]> 5abdb8c743be995fa799aa2d58af57da Amy-MRF replied to the topic Updates to the Patient Forum! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/updates-to-the-patient-forum/#post-276274 Sat, 29 Jan 2022 15:45:03 -0500 Additional changes as of January 28, 2022
1) Removed the badges, as few people were using them.
2) Moved the FAQ and other icons from the right side of the page to the top for easier access.
3) Switched to a private messaging option. This is similar to direct messaging on other social media platforms and will allow users to have private, direct…Read more

]]> d8c56a8986be9d21065415e0c95538d3 Amy-MRF replied to the topic Updates to the Patient Forum! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/updates-to-the-patient-forum/#post-276132 Wed, 22 Dec 2021 00:42:55 -0500 We are addressing the profile issue and are considering 3 or 4 options of how best to move forward; however, this is a large undertaking and will take the longest time to implement. Please continue to be patient on this specific issue. I can’t promise how it will be resolved at this time, but we’re hopeful it will meet most people’s needs.

]]> 1963a5d387ee2245350045f5508cc4ff Amy-MRF started the topic Mentor needed for a special melanoma case in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/mentor-needed-for-a-special-melanoma-case/ Mon, 20 Dec 2021 19:31:28 -0500 Hi everyone,

The MRF partners with Imerman Angels to provide newly diagnosed melanoma patients with a cancer peer mentor. Our contact at Imerman Angels is looking for a melanoma survivor that has had to have their entire ear removed due to their melanoma diagnosis. If you (or your family member) have had this experience and would be willing to…Read more

]]> bbfb2fa4a3e7f4f152a7979244ba3ae2 Amy-MRF replied to the topic Updates to the Patient Forum! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/updates-to-the-patient-forum/#post-276114 Fri, 17 Dec 2021 15:26:47 -0500 Additional changes as of December 17, 2021
1) Edited the number of tags (relevant keywords that can help in categorizing posts) from 40+ to approximately 10
2) Changed out the editor to allow for easier/cleaner posting (hopefully no more garbled posts when trying to copy/paste!)

As always, please reach out to education@melanoma.org should you…Read more

]]> d3719cb67df7c8c78bd962bc7a3e0b99 Amy-MRF replied to the topic Attend a virtual Patient Symposia event this spring! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/attend-a-virtual-patient-symposia-event-this-spring/#post-274563 Tue, 20 Apr 2021 13:47:44 -0400 It’s not too late to sign up for the Ohio State (May 1st) and Univ. of Pennsylvania’s (May 21st) virtual Patient Symposium events! See the original post for links to sign up!

]]> ad691535205f5e0ca66d230321cb24ae Amy-MRF started the topic Attend a virtual Patient Symposia event this spring! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/attend-a-virtual-patient-symposia-event-this-spring/ Thu, 08 Apr 2021 16:24:36 -0400 The MRF is pleased to support the Patient Symposia series again this year! Please consider registering for any or all of the following virtual events:
Northwest Melanoma Symposium: Updates in Melanoma hosted by Seattle Cancer Care Alliance–April 10th from 9am-12pm PT
Ohio State University Symposium: Updates in Melanoma–May 1st from 9am-12pm…Read more

]]> 8197322f4c2f6e9fca3208143b548c39 Amy-MRF started the topic Participate in a survey: Experiences in Accessing Mental Health Treatment in the forum Pediatric & AYA Melanoma Community https://forum.melanoma.org/forums/topic/participate-in-a-survey-experiences-in-accessing-mental-health-treatment/ Thu, 25 Mar 2021 20:20:44 -0400 The MRF was recently contacted by the Children’s Friend, Inc., an affiliate of Seven Hills Foundation, in Worcester, MA. They are conducting a survey regarding accessing mental health treatment, and want feedback from parents/caregivers with a child with a mental health condition, medical condition, and/or a rare disease.

Please consider taking <…Read more

]]> 0797793689b349e0df89cd5541ecbe99 Amy-MRF started the topic TIL therapy survey for stage III and IV unresectable cutaneous melanoma patients in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/til-therapy-survey-for-stage-iii-and-iv-unresectable-cutaneous-melanoma-patients/ Tue, 16 Mar 2021 20:17:38 -0400 Our partners at Iovance want to learn more about your understanding and perspective of TIL Therapy. In support, the MRF is conducting a survey that is open to patients, thrivers and survivors who were diagnosed with stage III to stage IV unresectable melanoma. Follow this link to learn more: https://www.surveymonkey.com/r/7NXR83V

]]> 6cde1820bd53b9f39845f9c17f219ae0 Amy-MRF started the topic Request education materials from the MRF! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/request-education-materials-from-the-mrf/ Fri, 12 Mar 2021 16:25:40 -0500 With Melanoma Awareness Month starting on May 1st, the MRF wants to make sure that you have education materials that you can provide to family, friends, fundraisers, schools, events, and other places to help raise awareness about melanoma prevention! Please visit our website to see what items are available to request. All education materials are…Read more

]]> 047b2c5d3e5c8f6c0798212dc6856f42 Amy-MRF started the topic Webinar from NORD: The Rare Sibling Experience in the forum Pediatric & AYA Melanoma Community https://forum.melanoma.org/forums/topic/webinar-from-nord-the-rare-sibling-experience/ Fri, 12 Mar 2021 16:21:14 -0500 Please see the below information about this important webinar hosted by NORD:
The Rare Sibling Experience
Thu, Mar 25, 2021 2:00 PM EDT
The impact of a rare disease extends beyond the patient and is interwoven into the entire family dynamic. Siblings of rare disease patients often face personal challenges inside and outside of the home. Guidance…Read more

]]> 46c9e7888750f75a696c2b53b76ca796 Amy-MRF started the topic A student survey that may benefit skin cancer patients in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/a-student-survey-that-may-benefit-skin-cancer-patients/ Fri, 19 Feb 2021 16:51:02 -0500 Hi everyone,

A student who is conducting a survey as part of a research project that may benefit skin cancer patients reached out to the MRF. Below is a message from her as well as a link to her survey. Please consider completing the survey! For any questions, please reach out to Lauren Johnston, MRF Senior Patient Engagement Officer…Read more

]]> 0602db22feecd07508caee788749de42 Amy-MRF replied to the topic Be sure to take the MRF's Covid-19 survey! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/be-sure-to-take-the-mrfs-covid-19-survey/#post-274202 Wed, 10 Feb 2021 17:39:18 -0500 Don’t forget to take the MRF’s Covid-19 impact survey! The survey will close soon and we want your insight!

___________________________________________________________________

To help the Melanoma Research Foundation (MRF) better understand the continuing impacts and challenges COVID-19 is having on the melanoma community, we ask you to respond…Read more

]]> 0bad736cfc45e3bb3ccf4cab88ccd851 Amy-MRF started the topic Be sure to take the MRF's Covid-19 survey! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/be-sure-to-take-the-mrfs-covid-19-survey/ Mon, 01 Feb 2021 14:06:10 -0500 Hi everyone,

I’m Amy, the MRF’s new Education Officer. Along with some other staff, I will be helping with forum issues, among many other projects!

Last year, the MRF launched a Covid-19 impact survey. Now, the survey is being re-launched to determine how Covid-19 continues to impact the Melanoma community. Please note: this survey can be taken…Read more

]]> 7fff83df85966ddd05b8f8c26a071c7d Amy-MRF's profile was updated https://forum.melanoma.org/activity/p/1270/ Thu, 21 Jan 2021 21:20:43 -0500 0