Melanoma Research Foundation | almostalice | Activity https://forum.melanoma.org/user/almostalice/activity/ Activity feed for almostalice. Tue, 21 Apr 2026 14:14:56 -0400 https://buddypress.org/?v= en-US 30 hourly 2 46966cbb2f7a0d48e72f9c35660ad746 almostalice started the topic Pets catching your scars in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/pets-catching-your-scars/ Thu, 09 Jun 2022 05:53:20 -0400 Something I never considered until living with an energetic puppy … the scars on my legs. When the pup jumps up he can catch some of the scars on the backs of my legs. Another reason to ditch the shorts 😀

Anyone else encounter this regularly? As if summer wasn’t hot enough.

]]> cb954cf62be279a133317d6d104908f4 almostalice replied to the topic Interested in hearing from others with multiple primaries and FAMMM/Atypical Mole Syndrome in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/interested-in-hearing-from-others-with-multiple-primaries-and-fammm-atypical-mole-syndrome/#post-276819 Thu, 09 Jun 2022 05:47:48 -0400 With three primaries it might be worth seeking the test, if only to have more info at hand if needed. I understand that hesitancy, it was almost 10 years ago when I talked to professor Bishop in the UK and I declined the testing. I was planning the move to the states, it was that 4th primary that made me get the test here at Vanderbilt.

]]> 2c164025767a1f5735fb0597dacc1952 almostalice replied to the topic Thyroid in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/thyroid-3/#post-276804 Tue, 07 Jun 2022 05:37:47 -0400 Yikes, I guess if I ever had to have treatment I’d be confined to bed.

My TSH hit 56 (not 5.6) during Swine Flu. Been on Levothyroxine ever since 2009.

]]> dc23801c86d968cd2bbf3bbbd1fd2248 almostalice replied to the topic Interested in hearing from others with multiple primaries and FAMMM/Atypical Mole Syndrome in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/interested-in-hearing-from-others-with-multiple-primaries-and-fammm-atypical-mole-syndrome/#post-276803 Tue, 07 Jun 2022 05:26:10 -0400 Found this thread on search.

My mother was dx’d just a few months after I tested positive for CDKN2A with MCR1. That test came about 17 years after my first primary. Between 2003 my first primary and my mom’s first, I’ve had 3 other primaries and about 12 to 15 biopsies (lost count).

They were not expecting me to come up CDKN2A+ mainly because I…Read more

]]> d219f54aa19432e7249198c9f874c466 almostalice replied to the topic Worried about melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/worried-about-melanoma/#post-276801 Tue, 07 Jun 2022 05:12:56 -0400 I find that photographing a worry can help me file it away. It’s a positive action that can help you feel in control. If in a couple of years something pops up, you have that record and trend to show.

The dermatologist is seeing a snapshot on the day of the appointment. I recently found a stage 1 mole and at the appointment I had two instax…Read more

]]> d50a39f85a57794d920e0a0615f32cfc almostalice started the topic FAMMM Update + Gum Disease P16/P53 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/fammm-update-gum-disease-p16-p53/ Tue, 07 Jun 2022 05:04:34 -0400 I’m approaching my second decade of vigilance and being over 40 now they’ve said I should get regular abdominal CT’s for Pancreatic screening, which I had today. I came up CDKN2A+ with MCR1 and my deepest primary was 6mm nodular with no met or upstaging (somehow). No secondaries yet but over 3 primaries.

Anyways it feels like knowledge continues…Read more

]]> c3dfee74f826e645c2f5f6624fc7260a almostalice replied to the topic Eosinophils without Interferon in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/eosinophils-without-interferon/#post-274375 Mon, 15 Mar 2021 21:39:48 -0400 Thank you for the reply, so sorry for my late reply.  This is good information to have and I can keep a check on my counts at regular physical bloodwork.

]]> 8ce66d40a5de6f829821e6618a2ec143 almostalice replied to the topic Can a mole that has not visually changed be a concern? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/can-a-mole-that-has-not-visually-changed-be-a-concern/#post-274374 Mon, 15 Mar 2021 21:36:22 -0400 I would say you know your moles the best and it’s always good to take the opportunity to take another one out of the picture. For me it was the itching that was usually the sign. So I know itching isn’t always recognized as a sign, in terms of changes without color there could be other characteristics. You’ll know your skin better than anyone.

]]> 87ef963313d479251f8fe9ae83efddd8 almostalice replied to the topic Melanoma and Impact of COVID-19 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-and-impact-of-covid-19/#post-274140 Sat, 06 Feb 2021 17:13:51 -0500 This is great! I would say the biggest impact I’ve seen is delay in WLE and SLNB surgery. Also my dermatology clinic had scheduled telehealth visits in the first months of the pandemic, but then called me for in person after realizing routine skin checks are harder over telehealth.

There could be a way for providers to push skin surveillance apps…Read more

]]> 8ad67a612689ea4981c7060a1c31f22f almostalice replied to the topic 20 year survivor - long term mpip member in the forum User https://forum.melanoma.org/forums/topic/20-year-survivor-long-term-mpip-member/#post-273743 Fri, 25 Dec 2020 04:33:06 -0500 Excellent, it’s always encouraging to see long term members, though I’d rather we all weren’t part of this club.

I’m 16 years on from my Stage 2C, at the age of 24 lurking here and then posting was very helpful.

To a better 2021

]]> 765ba664defcc64632586750b62a5130 almostalice replied to the topic Looking for some positivity while waiting for biopsy results in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/looking-for-some-reasurrance-re-melanoma/#post-273742 Fri, 25 Dec 2020 04:28:27 -0500 Danielle, that’s right. Out of the 12 to 15 moles I have had removed 3 were staged melanoma and 1 insitu. Some of them look like they could be something and turn out to be fine.

]]> 0a0b13d8c89148da29258e272d796272 almostalice replied to the topic Confirmed by 2nd Path, it is Melanoma in the forum User https://forum.melanoma.org/forums/topic/confirmed-by-2nd-path-it-is-melanoma/#post-273741 Fri, 25 Dec 2020 04:23:58 -0500 The Breslow depth is very encouraging. Wishing you a great recovery from the surgery.

]]> 22c7f0b82d27e996c6cc630366978d4c almostalice started the topic Eosinophils without Interferon in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/eosinophils-without-interferon/ Wed, 23 Dec 2020 05:40:25 -0500 I have a curious question about Eosinophils and Melanoma. What do they actually do? No dr has ever explained it to me. History of childhood asthma, ok I’m an adult, but my counts are always high.

I have FAMMM and have survived 6mm Nodular badness without SLNB. My Vitamin D levels always showed up fine even in the UK winter.

Can hypothyroidism…Read more

]]> 7395fb9ea451e3c5e40799a768e4a429 almostalice replied to the topic 2nd Melanoma - Scared and Confused in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/2nd-melanoma-scared-and-confused/#post-273677 Wed, 23 Dec 2020 05:20:49 -0500 Wow what are the chances? Vanderbilt?

I was dx in 2004 in the UK, 1mm SSM and 6mm Ulcerated Nodular and denied or rather talked out of SLNB for both. Passed between pillar and post for quite some time before landing at the QE in Birmingham. Where we trundled along taking out future baddies and they all came back atypical.

Third primary in 2011…Read more

]]> 02f385901c3f7f224060b963a6c4b9a1 almostalice replied to the topic Looking for some positivity while waiting for biopsy results in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/looking-for-some-reasurrance-re-melanoma/#post-273675 Wed, 23 Dec 2020 05:04:57 -0500 Anxiety over test results is the worst. At the same time if they were punch biopsies or regular cuts, there’s the constant reminder right there.
<p style=”text-align: left;”>Know that you did the right thing and that you’re taking care of business. It’s hard to feel in control and what I used to do was focus on my hobbies.</p>
I’ve had ones where…Read more

]]> 43af38503404bcdc3d5c6d6804dce1ab almostalice replied to the topic Hmmmm..... The NEW and IMPROVED MPIP! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hmmmm-the-new-and-improved-mpip/#post-273674 Wed, 23 Dec 2020 04:58:27 -0500 Thankful to have one of the best patient forums going strong after all these years.

]]> 378f511e033a1e99d28a9afc2898a3cb almostalice replied to the topic Melanoma Mike in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-mike-8/#post-273673 Wed, 23 Dec 2020 04:56:21 -0500 Sending my best wishes

]]> 4794ec0429a20e0f8cc9276d7a4c1e7b almostalice started the topic CDKN2A+ now with older relative stage 1 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/cdkn2a-now-with-older-relative-stage-1/ Wed, 23 Dec 2020 04:05:35 -0500 Hey guys, hope you are all holding together in this terrible year 2020.

I have an update on my FAMM, literally. An older immediate relative now has a dx stage 1, thankfully SSM. I’m 16 years in and have had 4 primaries, one being a borderline stage 3 Nodular.

This would be the first primary in an immediate family member. We live in different…Read more

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