Again75

Yes the whole process has been very confusing.  I know Dr. Luke is one of the best and I am putting my trust and faith in him right now.  I have only had my first dose of ipi and have had no side effects yet.  I'm going to pray it stays that way!!  I believe I am in a great spot, I live in the burbs of Chicago, so I have access to some of the best Melanoma specialists in the country.  And I truly believe it was caught early enough for me to have long term success with being NED!!  They say positive thinking can do amazing things and that is what I am going to keep doing.  Thinking positive!!

Yes the whole process has been very confusing.  I know Dr. Luke is one of the best and I am putting my trust and faith in him right now.  I have only had my first dose of ipi and have had no side effects yet.  I'm going to pray it stays that way!!  I believe I am in a great spot, I live in the burbs of Chicago, so I have access to some of the best Melanoma specialists in the country.  And I truly believe it was caught early enough for me to have long term success with being NED!!  They say positive thinking can do amazing things and that is what I am going to keep doing.  Thinking positive!!

Yes the whole process has been very confusing.  I know Dr. Luke is one of the best and I am putting my trust and faith in him right now.  I have only had my first dose of ipi and have had no side effects yet.  I'm going to pray it stays that way!!  I believe I am in a great spot, I live in the burbs of Chicago, so I have access to some of the best Melanoma specialists in the country.  And I truly believe it was caught early enough for me to have long term success with being NED!!  They say positive thinking can do amazing things and that is what I am going to keep doing.  Thinking positive!!

Hi Tom,  No my doctor did not do a SLND and I have only had CT Scans.  He said I would get false positives because I just had the surgery to remove the tumor.  This is all so confusing and everything happened so fast.  I have a lot more questions for the doctor on the 22nd.  Thank you for your encouragement!

Amy

Hi Tom,  No my doctor did not do a SLND and I have only had CT Scans.  He said I would get false positives because I just had the surgery to remove the tumor.  This is all so confusing and everything happened so fast.  I have a lot more questions for the doctor on the 22nd.  Thank you for your encouragement!

Amy

Hi Tom,  No my doctor did not do a SLND and I have only had CT Scans.  He said I would get false positives because I just had the surgery to remove the tumor.  This is all so confusing and everything happened so fast.  I have a lot more questions for the doctor on the 22nd.  Thank you for your encouragement!

Amy

OOPS sorry for the double post.  I am a over clicker and impatient!!  LOL

OOPS sorry for the double post.  I am a over clicker and impatient!!  LOL

OOPS sorry for the double post.  I am a over clicker and impatient!!  LOL

Thank you for your reply.  I do take my dad and my cousin (who is like more of a sister to me than a cousin) and she is has been a nurse at RUSH Hospital in Chicago for 17yrs.  The doctor did say Stage 4 because it was in the fattty part underneath the skin.  So I guess that makes it stage 4 because it went beyond the skin.  I am just trying to stay strong and show no fear, but I'm sure everyone on here knows that is not the case!!  I'm terrified.   I am adopted and an only child.  I have one daughter and she is 15.  My biggest fear in life has always been if I die she will be all alone.  I just hope I make it long enough to see her start a family of her own one day.  I guess I will just have to wait and see.  My next appt is Nov. 22.  I meet with Dr. Luke and then go for my 2nd infusion of ipi.  I already have questions written down that I want to ask.  This will be my 4th meeting with him and everytime I have more questions that I overlooked or thought of after the last appointment.  I guess that is to be expected.  I really hope they got it all and it doesn't spread!! 

Thank you for your reply.  I do take my dad and my cousin (who is like more of a sister to me than a cousin) and she is has been a nurse at RUSH Hospital in Chicago for 17yrs.  The doctor did say Stage 4 because it was in the fattty part underneath the skin.  So I guess that makes it stage 4 because it went beyond the skin.  I am just trying to stay strong and show no fear, but I'm sure everyone on here knows that is not the case!!  I'm terrified.   I am adopted and an only child.  I have one daughter and she is 15.  My biggest fear in life has always been if I die she will be all alone.  I just hope I make it long enough to see her start a family of her own one day.  I guess I will just have to wait and see.  My next appt is Nov. 22.  I meet with Dr. Luke and then go for my 2nd infusion of ipi.  I already have questions written down that I want to ask.  This will be my 4th meeting with him and everytime I have more questions that I overlooked or thought of after the last appointment.  I guess that is to be expected.  I really hope they got it all and it doesn't spread!! 

Thank you for your reply.  I do take my dad and my cousin (who is like more of a sister to me than a cousin) and she is has been a nurse at RUSH Hospital in Chicago for 17yrs.  The doctor did say Stage 4 because it was in the fattty part underneath the skin.  So I guess that makes it stage 4 because it went beyond the skin.  I am just trying to stay strong and show no fear, but I'm sure everyone on here knows that is not the case!!  I'm terrified.   I am adopted and an only child.  I have one daughter and she is 15.  My biggest fear in life has always been if I die she will be all alone.  I just hope I make it long enough to see her start a family of her own one day.  I guess I will just have to wait and see.  My next appt is Nov. 22.  I meet with Dr. Luke and then go for my 2nd infusion of ipi.  I already have questions written down that I want to ask.  This will be my 4th meeting with him and everytime I have more questions that I overlooked or thought of after the last appointment.  I guess that is to be expected.  I really hope they got it all and it doesn't spread!! 

Thank you for your reply.  I do take my dad and my cousin (who is like more of a sister to me than a cousin) and she is has been a nurse at RUSH Hospital in Chicago for 17yrs.  The doctor did say Stage 4 because it was in the fattty part underneath the skin.  So I guess that makes it stage 4 because it went beyond the skin.  I am just trying to stay strong and show no fear, but I'm sure everyone on here knows that is not the case!!  I'm terrified.   I am adopted and an only child.  I have one daughter and she is 15.  My biggest fear in life has always been if I die she will be all alone.  I just hope I make it long enough to see her start a family of her own one day.  I guess I will just have to wait and see.  My next appt is Nov. 22.  I meet with Dr. Luke and then go for my 2nd infusion of ipi.  I already have questions written down that I want to ask.  This will be my 4th meeting with him and everytime I have more questions that I overlooked or thought of after the last appointment.  I guess that is to be expected.  I really hope they got it all and it doesn't spread!! 

Thank you for your reply.  I do take my dad and my cousin (who is like more of a sister to me than a cousin) and she is has been a nurse at RUSH Hospital in Chicago for 17yrs.  The doctor did say Stage 4 because it was in the fattty part underneath the skin.  So I guess that makes it stage 4 because it went beyond the skin.  I am just trying to stay strong and show no fear, but I'm sure everyone on here knows that is not the case!!  I'm terrified.   I am adopted and an only child.  I have one daughter and she is 15.  My biggest fear in life has always been if I die she will be all alone.  I just hope I make it long enough to see her start a family of her own one day.  I guess I will just have to wait and see.  My next appt is Nov. 22.  I meet with Dr. Luke and then go for my 2nd infusion of ipi.  I already have questions written down that I want to ask.  This will be my 4th meeting with him and everytime I have more questions that I overlooked or thought of after the last appointment.  I guess that is to be expected.  I really hope they got it all and it doesn't spread!!