Addie_C
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Addie_C

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      • November 1, 2017 at 4:36 pm
      Addie_C
      Participant

      Oh wow. You are so organized and informed. I really like your breakdown and graphics. I will be sure to share all of this info with my husband and his treating doctors. 

      • November 1, 2017 at 4:31 pm
      Addie_C
      Participant

      This is good to know! We have just been seeing a general oncologist, but it makes sense to find someone who specializes in melanoma. Really want to find someone who is on the up and up and is really doing a lot of good things and is up with current treatments. So glad to your are doing well after what sounds like a really severe diagnosis. I will click the link and see what we can find. Thank you.

      • November 1, 2017 at 3:00 pm
      Addie_C
      Participant

      Hi. Immunotherapy has been discussed a lot and think that that is possibly the first route that we are going to take. We are just so scared of the thought of all of the drugs and chemicals that will more than likely need to be used. At this point though it's pretty much whatever we have got to do. Taking it one day at a time as you said, but it's hard to not want the time to speed up a bit so that we, especially my husband, can hopefully get past this.

      • November 1, 2017 at 2:56 pm
      Addie_C
      Participant

      There's just so much reading involved. I'm going to have to look at all of the drugs you described. I think maybe some of them were brought up at the last appointment. We are from the suburbs of Buffalo, NY. I haven't heard of a Braf mutation, but we will definitely see if this is something that has been tested for. So overwhelming with blood tests, scans – trying to get as much information as quickly as possible to proceed in the right direction with treatment. Thank you for the video.

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