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accaldwell
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accaldwell

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      • March 17, 2022 at 3:08 pm
      accaldwell
      Participant
        Go to a specialist! I had my wle 6 months ago for a stage 1a, very low risk lesion… and it has recurred in the scar, meaning they didn’t remove enough! I now have to have another wle and an slnb. I was just getting to the point where I was ok with living with this diagnosis and not being scared all the time. My primary was on my back, .4mm.
        • April 8, 2022 at 9:32 am
        accaldwell
        Participant
          Thank you! I just had my second wide excision of the entire scar yesterday, along with three lymph nodes. Hoping everything comes back clear. My doctor won’t say that it was an incomplete removal. He said it could have been an incomplete removal, a completely new melanoma, or micro cells that were left behind that couldn’t have been detected initially. I was treated as if it were true local scar recurrence which under the NCCN guidelines is persistent melanoma…. I am going to get a second opinion at MD Anderson and see what they think. I am being treated at Balboa Navy Medical Center, so… maybe they are trying to avoid litigation or something by not telling me the first surgery was done improperly? idk… It is annoying that they won’t give me an exact reason for this. But I appreciate your opinion so much. There is almost no information online about this type of recurrence, so hearing from others is very helpful. I hope you are doing well.
          • March 18, 2022 at 5:10 pm
          accaldwell
          Participant
            I am so sorry to hear that you progressed. That is always so worrying to hear. I hope that you are doing well and your treatment is successful.
            • March 18, 2022 at 5:09 pm
            accaldwell
            Participant
              This reply has been reported for inappropriate content.

              Thank you so much! I appreciate your prayers so much! I am really nervous about this next surgery. The side margins on the biopsy weren’t clear and the surgery is not for 3 weeks. I am hoping that the cells do not grow deeper. I am also really nervous about the lymph node removal… I have never had surgery like that before. My dermatologist thinks it is unlikely that there will be melanoma cells found in the lymph nodes, but I still worry. My primary was .4mm, clark 3, 0 mitosis, no vascular invasion… so hopefully low risk. I will update the post after the surgery and results have been given.
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