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      • April 15, 2012 at 8:27 pm
      abrown
      Participant

      Sara,

       

      Thanks you also for the link!

      Ashley

      • April 15, 2012 at 8:27 pm
      abrown
      Participant

      Sara,

       

      Thanks you also for the link!

      Ashley

      • April 15, 2012 at 8:27 pm
      abrown
      Participant

      Sara,

       

      Thanks you also for the link!

      Ashley

      • April 15, 2012 at 8:25 pm
      abrown
      Participant

      Paul,

       

      Thanks for all the information.  I will definitely check out the list serv you linked.  My ocular oncologist does do the genetic testing.  I have heard his name mentioned a few different times on the other bulliten boards that I am a member of, and so far I have heard a lot of positive things about him.

      However, I have already found that I have to be my own advocate.  This has been a challenge for me and I am continuing to work on it.  I appreciate every piece of advice or information that everyone has given me.  There was so much not told to me during my appointments that I would have never known if I hadn't joined websites like this and asked questions from people going through the same situations. 

      Thanks againg,

      Ashley

      • April 15, 2012 at 8:25 pm
      abrown
      Participant

      Paul,

       

      Thanks for all the information.  I will definitely check out the list serv you linked.  My ocular oncologist does do the genetic testing.  I have heard his name mentioned a few different times on the other bulliten boards that I am a member of, and so far I have heard a lot of positive things about him.

      However, I have already found that I have to be my own advocate.  This has been a challenge for me and I am continuing to work on it.  I appreciate every piece of advice or information that everyone has given me.  There was so much not told to me during my appointments that I would have never known if I hadn't joined websites like this and asked questions from people going through the same situations. 

      Thanks againg,

      Ashley

      • April 15, 2012 at 8:25 pm
      abrown
      Participant

      Paul,

       

      Thanks for all the information.  I will definitely check out the list serv you linked.  My ocular oncologist does do the genetic testing.  I have heard his name mentioned a few different times on the other bulliten boards that I am a member of, and so far I have heard a lot of positive things about him.

      However, I have already found that I have to be my own advocate.  This has been a challenge for me and I am continuing to work on it.  I appreciate every piece of advice or information that everyone has given me.  There was so much not told to me during my appointments that I would have never known if I hadn't joined websites like this and asked questions from people going through the same situations. 

      Thanks againg,

      Ashley

      • April 7, 2012 at 4:20 pm
      abrown
      Participant

      Thank you Esther! I appreciate it.

      Ashley

      • April 7, 2012 at 4:20 pm
      abrown
      Participant

      Thank you Esther! I appreciate it.

      Ashley

      • April 7, 2012 at 4:20 pm
      abrown
      Participant

      Thank you Esther! I appreciate it.

      Ashley

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