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When do you decide to start targeted radiation therapy?
My mom has anal mucosal melanoma, so I won't be much help. However, there is a facebook group for mucosal melanoma patients that has a lot of people who have done the radiation, but I feel like you're right in that they did the radiation after surgery. I would ask the other patients who have that primary in the group: https://www.facebook.com/groups/906485416088740/
I feel like the facebook group is good to compare personal experiences, while I think the MRF forum is better to stay up-to-date on treatments. It seems like a lot of the mucosal people are much more private due to the areas of their primaries and don't really come here. I wish there was a better place for everyone to find each other since it's a rarer disease!
The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.
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