New lung met most likely, treatments??
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New lung met most likely, treatments??

› Forums › General Melanoma Community › New lung met most likely, treatments??

  • Post
    • July 27, 2015 at 7:46 am
    davekarrie
    Participant

    I had a CT scan today and there is a 3.4cm mass in my right lung, and consistent with melanoma. Will get a PET this week to determine for sure. Still praying it isn't but unfortunately looks like the beast is back. There is also an area of concern in left lung that is 1cm by 8cm, but this has fluid in it. I have had a cough/cold so hoping maybe this is infection?  Just hope PET doesn't reveal more areas, so scared, I have  4 year old son and want to see him grow up!  I am wondering what treatements have worked for lung mets, is resection an option? I will be going to Mayo clinic and working with a Mel specialist but wanted to get input from this great group. Thank you so much for any help. Dave

Viewing 11 reply threads
  • Replies
      • July 27, 2015 at 3:36 pm
      Bruce Davis
      Participant

      Hi Dave,

      Sorry to hear of your mets.

      Just thought I would tell you of my experience as we seem to be along the same path.

      April 2011 I had all lymph nodes removed under left armpit.

      CT scan revealed mets to lungs in July of 2011.

      I was fortunate to be Braf+ and have been on Zelboraf since September of 2011.

      There are many new choice drugs out there now. The main thing is to stay positive and find what new medication works for you.

      I wish you the very best!

      Bruce

        • July 28, 2015 at 6:13 am
        davekarrie
        Participant

        Thanks for the info, has anyone had a lung met 3.4cm? Went to pulmonologist yesterday and he said it has to come out, it is near the heart.

        • July 28, 2015 at 6:13 am
        davekarrie
        Participant

        Thanks for the info, has anyone had a lung met 3.4cm? Went to pulmonologist yesterday and he said it has to come out, it is near the heart.

        • July 28, 2015 at 6:13 am
        davekarrie
        Participant

        Thanks for the info, has anyone had a lung met 3.4cm? Went to pulmonologist yesterday and he said it has to come out, it is near the heart.

      • July 27, 2015 at 3:36 pm
      Bruce Davis
      Participant

      Hi Dave,

      Sorry to hear of your mets.

      Just thought I would tell you of my experience as we seem to be along the same path.

      April 2011 I had all lymph nodes removed under left armpit.

      CT scan revealed mets to lungs in July of 2011.

      I was fortunate to be Braf+ and have been on Zelboraf since September of 2011.

      There are many new choice drugs out there now. The main thing is to stay positive and find what new medication works for you.

      I wish you the very best!

      Bruce

      • July 27, 2015 at 3:36 pm
      Bruce Davis
      Participant

      Hi Dave,

      Sorry to hear of your mets.

      Just thought I would tell you of my experience as we seem to be along the same path.

      April 2011 I had all lymph nodes removed under left armpit.

      CT scan revealed mets to lungs in July of 2011.

      I was fortunate to be Braf+ and have been on Zelboraf since September of 2011.

      There are many new choice drugs out there now. The main thing is to stay positive and find what new medication works for you.

      I wish you the very best!

      Bruce

      • July 27, 2015 at 5:28 pm
      kylez
      Participant

      Dave, 

      In terms of lung mets, the treatment choices they recommend to me had a lot to do with location and quantity. I think it's very specific to each situation. In one situation in 2010 they only offered systemic treatment. In a more recent sitaution, 2014, they offered surgery and cyberknife as two other choices.

      In 2010 I had 8 detectable small lung mets (less than 1cm) across both lungs. Because of the quantity and spread, they felt there ere probably more they weren't seeing. They did do VATS surgery, but only to biopsy to qualify me for systemic treatment, which in 2010 was high-dose IL2 for me. The lungs themselves have been in remsision since high-dose IL2. 

      Fast forward to 2014 they saw a single lymph node in my chest (turned out to be 2). I signed up for systemic treatment again, a clinical trial this time. This time, surgery and also cyberknife were offered as choices, not just systemic treatment.

      Good luck in your melanoma specialist appt at Mayo.

      • July 27, 2015 at 5:28 pm
      kylez
      Participant

      Dave, 

      In terms of lung mets, the treatment choices they recommend to me had a lot to do with location and quantity. I think it's very specific to each situation. In one situation in 2010 they only offered systemic treatment. In a more recent sitaution, 2014, they offered surgery and cyberknife as two other choices.

      In 2010 I had 8 detectable small lung mets (less than 1cm) across both lungs. Because of the quantity and spread, they felt there ere probably more they weren't seeing. They did do VATS surgery, but only to biopsy to qualify me for systemic treatment, which in 2010 was high-dose IL2 for me. The lungs themselves have been in remsision since high-dose IL2. 

      Fast forward to 2014 they saw a single lymph node in my chest (turned out to be 2). I signed up for systemic treatment again, a clinical trial this time. This time, surgery and also cyberknife were offered as choices, not just systemic treatment.

      Good luck in your melanoma specialist appt at Mayo.

      • July 27, 2015 at 5:28 pm
      kylez
      Participant

      Dave, 

      In terms of lung mets, the treatment choices they recommend to me had a lot to do with location and quantity. I think it's very specific to each situation. In one situation in 2010 they only offered systemic treatment. In a more recent sitaution, 2014, they offered surgery and cyberknife as two other choices.

      In 2010 I had 8 detectable small lung mets (less than 1cm) across both lungs. Because of the quantity and spread, they felt there ere probably more they weren't seeing. They did do VATS surgery, but only to biopsy to qualify me for systemic treatment, which in 2010 was high-dose IL2 for me. The lungs themselves have been in remsision since high-dose IL2. 

      Fast forward to 2014 they saw a single lymph node in my chest (turned out to be 2). I signed up for systemic treatment again, a clinical trial this time. This time, surgery and also cyberknife were offered as choices, not just systemic treatment.

      Good luck in your melanoma specialist appt at Mayo.

      • July 29, 2015 at 1:08 am
      _Paul_
      Participant

      Hi Dave,

      I was dx`ed last Sept. with lung, liver and gallbladder mets. My oncologist told me about the RADVAX trial where one receives stereotactic radiation to one tumor plus ipi. The hope is that antigens released by the irradiated tumor allow the immune system to recognize the cancer abd the ipi to "take the brakes off".

      In my case the lung and liver tumors stopped growing and a subsequent PET showed no FDG uptake in the lung mets.

      I am now on pembro and remain stable.

      Best of luck!

      Paul

       

       

      • July 29, 2015 at 1:08 am
      _Paul_
      Participant

      Hi Dave,

      I was dx`ed last Sept. with lung, liver and gallbladder mets. My oncologist told me about the RADVAX trial where one receives stereotactic radiation to one tumor plus ipi. The hope is that antigens released by the irradiated tumor allow the immune system to recognize the cancer abd the ipi to "take the brakes off".

      In my case the lung and liver tumors stopped growing and a subsequent PET showed no FDG uptake in the lung mets.

      I am now on pembro and remain stable.

      Best of luck!

      Paul

       

       

      • July 29, 2015 at 1:08 am
      _Paul_
      Participant

      Hi Dave,

      I was dx`ed last Sept. with lung, liver and gallbladder mets. My oncologist told me about the RADVAX trial where one receives stereotactic radiation to one tumor plus ipi. The hope is that antigens released by the irradiated tumor allow the immune system to recognize the cancer abd the ipi to "take the brakes off".

      In my case the lung and liver tumors stopped growing and a subsequent PET showed no FDG uptake in the lung mets.

      I am now on pembro and remain stable.

      Best of luck!

      Paul

       

       

      • July 29, 2015 at 6:34 pm
      ckoch
      Participant

      Sorry to hear you could have recurrence.  I had lung met a year ago and was one of the lucky ones that responded to IPI – Yervoy.  Last week's PET showed NED – one year out.

      Best of luck to you

      Cindy

       

      • July 29, 2015 at 6:34 pm
      ckoch
      Participant

      Sorry to hear you could have recurrence.  I had lung met a year ago and was one of the lucky ones that responded to IPI – Yervoy.  Last week's PET showed NED – one year out.

      Best of luck to you

      Cindy

       

      • July 29, 2015 at 6:34 pm
      ckoch
      Participant

      Sorry to hear you could have recurrence.  I had lung met a year ago and was one of the lucky ones that responded to IPI – Yervoy.  Last week's PET showed NED – one year out.

      Best of luck to you

      Cindy

       

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