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My father’s fight update
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My father’s fight update

› Forums › Cutaneous Melanoma Community › My father’s fight update

  • Post
    • January 20, 2019 at 8:01 pm
    Nympha
    Participant
      Hello everybody,

      My much beloved father (67) was diagnosed with III C stage of nodular melanoma, with ulceration ( breslow 2,2mm) and mets in two lymph nodes 9 months ago. Doctor said his future is very short, prognoses said 3-6 months.. After 9 months our hero is still here with us, fighting with painful metastases in skin every day. He has about two big purple balls on his skin full of white mass inside, and two small. He has just got 4 keytruda infusion and something very weird just happened.. His blood marker S100 was increasing every month from 300 to 1500, and now, after 4 th keytruda.. There was no marker in his blood.. Is that possible?

      Does it mean keytruda is working?

      His skin lesions are softer.. Doctor doesn’t say anything now.. Just that nothing is lost.. And that father can fight that, because after 9 months, he still does not have mets in organs..

      Thank you all, that you are here, prepared to help and share your stories, experience with your fight and way.

      Veronika

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    • Replies
        • January 20, 2019 at 10:45 pm
        BillB
        Participant

          Hi, won’t be much help with the S100 value but I also had a nodular melanoma, 7mm, ulcerated, 15 mitotic rate and neuro/vascular invasion. Advanced to my lung ~8 months after initial removal. I too was on Keytruda and scans at the 8 week mark (after 3 infusions) prior to fourth infusion were NED. FYI if that helps at all and I would think you would want scans to see if it’s working. Good luck.

          Bill

            • January 21, 2019 at 7:14 am
            Nympha
            Participant
              Bill, I am very thankful for your honest reply. We are helpless, he is permanently in constant pain because of these lesions. I’ve heard a lot about mirracles which keytruda did.. But haven’t met anybody who had so much burning lesions.. So I don’t know if keytruda will let them dissapear.
              Thank you much for reply.

              Veronika

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