MRF-Logo2019-Horizontal-RGB
Mucosal melanoma husband just diagnosed
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Mucosal melanoma husband just diagnosed

› Forums › Mucosal Melanoma Community › Mucosal melanoma husband just diagnosed

  • Post
    • October 5, 2016 at 5:19 pm
    Daisy27
    Participant

      My husband has now had four different cancers…bladder, colorectal, vocal chord and now mucosal melanoma.  He is getting Keytruda infusions every three weeks and is waiting to be acceptes for a clinical trial where they will inject directly into the spot on his neck.  Would love to hear from thers with th same unusual melanoma and how it has been treated.

    Viewing 2 reply threads
    • Replies
        • October 5, 2016 at 7:38 pm
        jyc
        Participant

          My father was diagnosed with mucosal melanoma originating in the sinus cavity in 2007.  He too has had a run in with colorectal cancer. He's had numerous nasal and cranial surgeries to deal with local recurrances.  At the end of last year, he went through adjuvant biochemo in hopes of preventing a melanoma recurrance.  This month however, we confirmed that the cancer had metastisized and found tumors in his abdomen during a routine followup and yesterday he started immunotherapy.   He had his first infusion yesterday.  He will have a 30min infusion every other week and after 4 infusions he will get scanned.  That's the plan so far.  Otherwise, you couldn't tell that something was wrong in his body.

          I've been visiting this forum almost everyday for the past 9yrs since his first diagnosis and am amazed at the progress and evolution of the treatment of this disease.  The fact that there has been more advancement in treatment in the past 5yrs than there has been in the last 40yrs is encouraging.

            • October 5, 2016 at 9:31 pm
            Daisy27
            Participant

              Thank you.  Just found this forum today and it is very informative.  Husband has one in his nose and the other in his neck.  He started on Keytruda and he is fine, playing golf, eating well.

              • October 5, 2016 at 9:31 pm
              Daisy27
              Participant

                Thank you.  Just found this forum today and it is very informative.  Husband has one in his nose and the other in his neck.  He started on Keytruda and he is fine, playing golf, eating well.

                • October 5, 2016 at 9:31 pm
                Daisy27
                Participant

                  Thank you.  Just found this forum today and it is very informative.  Husband has one in his nose and the other in his neck.  He started on Keytruda and he is fine, playing golf, eating well.

                • October 5, 2016 at 7:38 pm
                jyc
                Participant

                  My father was diagnosed with mucosal melanoma originating in the sinus cavity in 2007.  He too has had a run in with colorectal cancer. He's had numerous nasal and cranial surgeries to deal with local recurrances.  At the end of last year, he went through adjuvant biochemo in hopes of preventing a melanoma recurrance.  This month however, we confirmed that the cancer had metastisized and found tumors in his abdomen during a routine followup and yesterday he started immunotherapy.   He had his first infusion yesterday.  He will have a 30min infusion every other week and after 4 infusions he will get scanned.  That's the plan so far.  Otherwise, you couldn't tell that something was wrong in his body.

                  I've been visiting this forum almost everyday for the past 9yrs since his first diagnosis and am amazed at the progress and evolution of the treatment of this disease.  The fact that there has been more advancement in treatment in the past 5yrs than there has been in the last 40yrs is encouraging.

                  • October 5, 2016 at 7:38 pm
                  jyc
                  Participant

                    My father was diagnosed with mucosal melanoma originating in the sinus cavity in 2007.  He too has had a run in with colorectal cancer. He's had numerous nasal and cranial surgeries to deal with local recurrances.  At the end of last year, he went through adjuvant biochemo in hopes of preventing a melanoma recurrance.  This month however, we confirmed that the cancer had metastisized and found tumors in his abdomen during a routine followup and yesterday he started immunotherapy.   He had his first infusion yesterday.  He will have a 30min infusion every other week and after 4 infusions he will get scanned.  That's the plan so far.  Otherwise, you couldn't tell that something was wrong in his body.

                    I've been visiting this forum almost everyday for the past 9yrs since his first diagnosis and am amazed at the progress and evolution of the treatment of this disease.  The fact that there has been more advancement in treatment in the past 5yrs than there has been in the last 40yrs is encouraging.

                Viewing 2 reply threads

                Tagged: 

                • You must be logged in to reply to this topic.
                About the MRF Patient Forum

                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                Popular Topics