› Forums › Cutaneous Melanoma Community › Mucosal Melanoma Community
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- January 8, 2016 at 9:39 pm
https://www.facebook.com/groups/906485416088740/#
Hello Everyone, My name is Erica. I am the caregiver of for my mom who was stage 4 oral mucosal melanoma. Her diagnosis came last May after a long battle with gum pain. Since then, she has had to have her upper jaw removed, her hard pallete removed and wears a prosthetic now and has had 30 rounds of radiation.
Stage 2 Lung Cancer was also picked up on the PETscan so a Lobectomy was in order and due to mets to the lymphnodes, chemotherapy has actually begun today.
I have been very active in the melanoma community since this past summer to help bring awareness to this terrible cancer.. whether MM or cutaneous melanoma. Awareness is key.
i also find it is hard to bring all of us together…so, we opened a group on facebook to bring us all together;
Mucosal Melanoma Warriors who are trying to find others like them. They suffers from MM in areas such as :
Vulva
Vagina
Nasal
Oral
Rectum
You will find the link at the top of this post. Thank you and best wishes.
Tagged: caregiver, cutaneous melanoma, mucosal melanoma
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