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Thanks Becky for sharing the hope. Thats what keep me going. I have hunch there are lot more survivors but probably not many on this forum. I am going to start a trial of Keytruda,Ipi and aspirin in two weeks. Surgery is not possible and it would need taking out the bladder and the rectum. I was hoping to see more survival stories.
Yes mucosal melanoma prettty uncommon ( and oral even more so) and what little info I read at the time was very scary! But things have changed. Like you I loved hearing survival stories….here is hoping you will soon be one of them!
My husband did not have mucosal melanoma but did become stage IV with an unresectable tumor on his cervical spine at C1, C2 area with mets in his liver and lungs as well. He did Ipi 30 mg/kg and GMCSF and he became NED in July 2012 and has remained NED for over 6 years. If you would like to read more of his story you can on his profile.
Most long term survivors only visit occasionally. But there is still hope. We actually watched the tumors that were visible shrink away. Prayers that things work out well for you.
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