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liver mets
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liver mets

› Forums › Cutaneous Melanoma Community › liver mets

  • Post
    • November 20, 2010 at 5:09 pm
    jenniperry
    Participant
      So we ended up not doing the biopsy due to subcutaneous tumors popping up in 5 spots. They scheduled him for a pet and ct. They figured the skin was pointless to biopsy due to the fact that we knew it had grown. The pet showed the mets we can feel and a few that aren’t detectable yet. One of his liver lesions was unchanged at 3.1 cm, however the other that was 1.8 grew to 5.1 x 3.4 in less than a month. It also moved to the porta hepatis region of his liver and is protruding out. It is still considered to be inside the liver.

      So we ended up not doing the biopsy due to subcutaneous tumors popping up in 5 spots. They scheduled him for a pet and ct. They figured the skin was pointless to biopsy due to the fact that we knew it had grown. The pet showed the mets we can feel and a few that aren’t detectable yet. One of his liver lesions was unchanged at 3.1 cm, however the other that was 1.8 grew to 5.1 x 3.4 in less than a month. It also moved to the porta hepatis region of his liver and is protruding out. It is still considered to be inside the liver. They gave us the option of a vaccine trial where they removed a lot of blood and then do something to the blood and return it and be hospitalized for a week for the vaccine to be placed in a catheter in the leg. They also said we could try IL2 again. He’s not a candidate for chemo or BRaff. Not sure what to do.

    Viewing 9 reply threads
    • Replies
        • November 20, 2010 at 5:40 pm
        vickirs
        Participant

          I too have liver mets.  I am starting ipi this tuesday.  Have you considered that.

          vicki

          • November 20, 2010 at 5:40 pm
          vickirs
          Participant

            I too have liver mets.  I am starting ipi this tuesday.  Have you considered that.

            vicki

            • November 20, 2010 at 6:24 pm
            EricNJill
            Participant

              Hey Jenni,

              No worries on your post on FB to my page.  Thank you for taking the time to do that.  I am looking into a fundraiser page on the internet that I can link to facebook.  I also spent a lot of time last night on bended knee and have more clarity this morning on the direction I feel we need to go.  Thank you for that.

              I didn't know if you noticed but on Eric's Cancer Page on FB I have pictures posted of the Leukapherisis and the catheter that they implanted as well as him getting a dose of the vaccine by a nurse.  Probably won't help in the decision but it will show you what to expect.

              Thanking of you!  Hugs, JillNEric in OH

                • November 20, 2010 at 6:42 pm
                killmel
                Participant

                  Hi Jill,

                   

                  Thank you forthe post..Ihope that Eric will soon become NED.

                  Please describe the Leukapherisis process Eric went through.I am considering a vaccine & need this Leukapherisi. Was it difficultfor ERic???? I cannot find Eric cancerpage.What is FBI…can you give me the link.

                  Thanks for your help.

                  • November 20, 2010 at 8:46 pm
                  EricNJill
                  Participant

                    http://www.facebook.com/home.php#!/group.php?gid=325873209183

                     

                    You'll have to request to join and tell me where you read about us.  The Leukapherisis wasn't a big deal.  The running of the catheter was painful for him but it's like a PICC line so no worse than that.  The Intralymphatic Vaccine treatment was VERY easy but didn't work for him.

                    • November 20, 2010 at 8:46 pm
                    EricNJill
                    Participant

                      http://www.facebook.com/home.php#!/group.php?gid=325873209183

                       

                      You'll have to request to join and tell me where you read about us.  The Leukapherisis wasn't a big deal.  The running of the catheter was painful for him but it's like a PICC line so no worse than that.  The Intralymphatic Vaccine treatment was VERY easy but didn't work for him.

                      • November 20, 2010 at 6:42 pm
                      killmel
                      Participant

                        Hi Jill,

                         

                        Thank you forthe post..Ihope that Eric will soon become NED.

                        Please describe the Leukapherisis process Eric went through.I am considering a vaccine & need this Leukapherisi. Was it difficultfor ERic???? I cannot find Eric cancerpage.What is FBI…can you give me the link.

                        Thanks for your help.

                      • November 20, 2010 at 6:24 pm
                      EricNJill
                      Participant

                        Hey Jenni,

                        No worries on your post on FB to my page.  Thank you for taking the time to do that.  I am looking into a fundraiser page on the internet that I can link to facebook.  I also spent a lot of time last night on bended knee and have more clarity this morning on the direction I feel we need to go.  Thank you for that.

                        I didn't know if you noticed but on Eric's Cancer Page on FB I have pictures posted of the Leukapherisis and the catheter that they implanted as well as him getting a dose of the vaccine by a nurse.  Probably won't help in the decision but it will show you what to expect.

                        Thanking of you!  Hugs, JillNEric in OH

                        • November 20, 2010 at 8:39 pm
                        jag
                        Participant

                          Have you been to see a melanoma specialist? I was just reading through your patnet, and I'm wondering where you are getting advice.  Either way, I would look into biochemotherapy or ipilimumab to see if there are any results.

                          Best

                          John

                          • November 20, 2010 at 8:39 pm
                          jag
                          Participant

                            Have you been to see a melanoma specialist? I was just reading through your patnet, and I'm wondering where you are getting advice.  Either way, I would look into biochemotherapy or ipilimumab to see if there are any results.

                            Best

                            John

                            • November 20, 2010 at 9:09 pm
                            James from Sydney
                            Participant

                              Contact Delcath they have a system which delivers high dose drugs isolated to the liver at much higher doses than the whole body can handle. Apparently results were promising that were presented at ASCO this year.

                               

                              best wishes

                              James

                              • November 20, 2010 at 9:09 pm
                              James from Sydney
                              Participant

                                Contact Delcath they have a system which delivers high dose drugs isolated to the liver at much higher doses than the whole body can handle. Apparently results were promising that were presented at ASCO this year.

                                 

                                best wishes

                                James

                                • November 23, 2010 at 2:14 am
                                Rocklove
                                Participant

                                  Jenny,

                                  I have liver mets and have been through bio-chemo, finished 6 rounds then 2 months of maintenance then detected more  new tumors in the liver.

                                  I am starting the PD-1 With Vacine Trial 1st week of December @ Moffit and praying I am a responder.

                                  This trial will not accept you if you were on ipi first, but you can do ipi if the PD-1 does not work.

                                  Sending you Positive Thoughts & Prayers.

                                  Rocky (Stage IV Liver Mets)

                                  • November 23, 2010 at 2:14 am
                                  Rocklove
                                  Participant

                                    Jenny,

                                    I have liver mets and have been through bio-chemo, finished 6 rounds then 2 months of maintenance then detected more  new tumors in the liver.

                                    I am starting the PD-1 With Vacine Trial 1st week of December @ Moffit and praying I am a responder.

                                    This trial will not accept you if you were on ipi first, but you can do ipi if the PD-1 does not work.

                                    Sending you Positive Thoughts & Prayers.

                                    Rocky (Stage IV Liver Mets)

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