Leg lymphoma

I think you're talking about lymphedema and fibrosis. I had the same problems after having 17 lymph nodes taken out of my inguinal area and upper thigh. I saw a very talented therapist for about 3 weeks. she taught me how to do the massage myself, how to wrap my leg (but NOT with Ace bandages) and how to massage the fibrotic tissue. I had what felt like a felt tip marker lying under the skin and parallel to the fold between my leg and my groing. first – keep your leg elevated whenever you're sitting. i wasn't doing that and it was a big help. then use the cream that your therapist may hgave recommended both Aquaphor and Dimethicone Protectant (also used for diaper rashes and you'll probably find it on that isle.) and find a certified lymphatic massage therapist. there was only 1 in my town of about 150,000 people. and if possible find one trained in Germany. Best of luck if you learn to work with this early you shouldn't be hampered too much.

I think you're talking about lymphedema and fibrosis. I had the same problems after having 17 lymph nodes taken out of my inguinal area and upper thigh. I saw a very talented therapist for about 3 weeks. she taught me how to do the massage myself, how to wrap my leg (but NOT with Ace bandages) and how to massage the fibrotic tissue. I had what felt like a felt tip marker lying under the skin and parallel to the fold between my leg and my groing. first – keep your leg elevated whenever you're sitting. i wasn't doing that and it was a big help. then use the cream that your therapist may hgave recommended both Aquaphor and Dimethicone Protectant (also used for diaper rashes and you'll probably find it on that isle.) and find a certified lymphatic massage therapist. there was only 1 in my town of about 150,000 people. and if possible find one trained in Germany. Best of luck if you learn to work with this early you shouldn't be hampered too much.

I think you're talking about lymphedema and fibrosis. I had the same problems after having 17 lymph nodes taken out of my inguinal area and upper thigh. I saw a very talented therapist for about 3 weeks. she taught me how to do the massage myself, how to wrap my leg (but NOT with Ace bandages) and how to massage the fibrotic tissue. I had what felt like a felt tip marker lying under the skin and parallel to the fold between my leg and my groing. first – keep your leg elevated whenever you're sitting. i wasn't doing that and it was a big help. then use the cream that your therapist may hgave recommended both Aquaphor and Dimethicone Protectant (also used for diaper rashes and you'll probably find it on that isle.) and find a certified lymphatic massage therapist. there was only 1 in my town of about 150,000 people. and if possible find one trained in Germany. Best of luck if you learn to work with this early you shouldn't be hampered too much.

Hi, First off the term I think you want to use is lymphedema.  Lymphoma is another type of cancer.  Anyway, I have lymphedema in my arm (not nearly as bad as the leg) but I'll share my experience.  To get the swelling under control it took about 4-5 trip to a lymphedema massage therapist.  The sleeve that I got from the specialty place irritated my skin so I went on line and ordered something different, much more comfortable.  I suspect that is the same problem you are having with your ankle rash.  My swelling comes and goes, depending on what I am doing, the weather, a whole variety of things.  It's something you will learn to cope with.  

There are a couple good web sites devoted to lymphedema.  One is lymphedemapeople. 

Mary

Stage 3

Hi, First off the term I think you want to use is lymphedema.  Lymphoma is another type of cancer.  Anyway, I have lymphedema in my arm (not nearly as bad as the leg) but I'll share my experience.  To get the swelling under control it took about 4-5 trip to a lymphedema massage therapist.  The sleeve that I got from the specialty place irritated my skin so I went on line and ordered something different, much more comfortable.  I suspect that is the same problem you are having with your ankle rash.  My swelling comes and goes, depending on what I am doing, the weather, a whole variety of things.  It's something you will learn to cope with.  

There are a couple good web sites devoted to lymphedema.  One is lymphedemapeople. 

Mary

Stage 3

Hi, First off the term I think you want to use is lymphedema.  Lymphoma is another type of cancer.  Anyway, I have lymphedema in my arm (not nearly as bad as the leg) but I'll share my experience.  To get the swelling under control it took about 4-5 trip to a lymphedema massage therapist.  The sleeve that I got from the specialty place irritated my skin so I went on line and ordered something different, much more comfortable.  I suspect that is the same problem you are having with your ankle rash.  My swelling comes and goes, depending on what I am doing, the weather, a whole variety of things.  It's something you will learn to cope with.  

There are a couple good web sites devoted to lymphedema.  One is lymphedemapeople. 

Mary

Stage 3

Hello,

I had a complete groin lymph node disection, and wore compression stocking for a whole year.  I tried to keep my leg elevated when ever I could.  I must say that I have had very little swelling. 

The only times that I have issue are when I am out and get bug bites, or poison ivy, or even a scratch or scrape.  The least little wound causes swelling, and takes forever to heal.

Wear the stockings (even though they are a pain) and take care ofyourself.

Mike from Richond.

Hello,

I had a complete groin lymph node disection, and wore compression stocking for a whole year.  I tried to keep my leg elevated when ever I could.  I must say that I have had very little swelling. 

The only times that I have issue are when I am out and get bug bites, or poison ivy, or even a scratch or scrape.  The least little wound causes swelling, and takes forever to heal.

Wear the stockings (even though they are a pain) and take care ofyourself.

Mike from Richond.

Hello,

I had a complete groin lymph node disection, and wore compression stocking for a whole year.  I tried to keep my leg elevated when ever I could.  I must say that I have had very little swelling. 

The only times that I have issue are when I am out and get bug bites, or poison ivy, or even a scratch or scrape.  The least little wound causes swelling, and takes forever to heal.

Wear the stockings (even though they are a pain) and take care ofyourself.

Mike from Richond.

I was so worried about the lymphedema that developed in my leg following my first surgeries.  I looked at pictures on the internet and was so scared.  I have to say, I have been pleasantly surprised at how managable it has been for me.  It has been 5 years and my leg is only slightly bigger.  I wear a compression stocking every day (unless I'm at the beach).  I also wrap my legs every now and then (taught by a lymphedema specialist).   Good luck!

I was so worried about the lymphedema that developed in my leg following my first surgeries.  I looked at pictures on the internet and was so scared.  I have to say, I have been pleasantly surprised at how managable it has been for me.  It has been 5 years and my leg is only slightly bigger.  I wear a compression stocking every day (unless I'm at the beach).  I also wrap my legs every now and then (taught by a lymphedema specialist).   Good luck!

I was so worried about the lymphedema that developed in my leg following my first surgeries.  I looked at pictures on the internet and was so scared.  I have to say, I have been pleasantly surprised at how managable it has been for me.  It has been 5 years and my leg is only slightly bigger.  I wear a compression stocking every day (unless I'm at the beach).  I also wrap my legs every now and then (taught by a lymphedema specialist).   Good luck!