My father lost his fight on September 15. He was diagnosed last November with stage IV melanoma in the skull, unknown primary (eventually thought to be ocular, though it was never 100% confirmed), and was surgically resected to NED status. Unfortunately this didn't last long, and in March his scans showed widespread tumors in liver and bones. His oncologist had no suggestions but to go home and give up, or perhaps to try Temodar, although she admitted it wouldn't work. Thanks to the information I got from all of you and your experiences, we insisted on a course of ipi, and consulted a melanoma specialist and entered the Merck anti-PD1 trial at UCSF. He got through three infusions before his liver gave out and they kicked him out of the trial. Our last visit to UCSF was August 27, and we had no idea he had only two and a half weeks left. He went from completely independent living to being unable to shift position in bed in just a few weeks, but he never had more pain than a few Tylenol could cure, which was a real blessing.
This message board gave me so much information and support while I was trying to figure out the best course of treatment for him. We had hope and Plans A, B, and C right up to the end of August. I know my dad was very grateful, and I have asked friends to donate to MRF in his memory, but I really wanted to thank the incredibly giving community here– so, thank you.
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