I need some help from you folks

So I  was  supposed  to be at UCSF  on the 9th. That's  been  canceled  as my insurance  has denied  me twice , and is now on appeal .  I thought , and was told that the appeal  was also cancelled , but it turns  out that my primary  care provider  doesn't  know  how  to do an appeal , and after being  held by the hand by the great people  at UCSF , the proper  paperwork  is now where  it needs  to  be . All the frustration  I have  experienced  navigating  the system  out here ,is now shared by fully  4 other people  at UCSF , who have been  in  constant  contact  with  me , really  going  the extra  mile to get me there. We have shared a laugh  or two on the phone after they receive progress  notes, instead  of pathology  reports  that were requested .  The  system  here is broken , and that's  putting  it mild. There have been uncountable  such diversions  in simple  routine  things  that should  take five  minutes  , stretching  into  months . 

In the  meantime , I'm  up to my 11th  primary . I have so many  more  biopsies  needed it's  overwhelming . My surgeon  and  I  are just playing  whack-a-mole. He has forwarded  a letter to my insurance  to get me to SF. Neither  of us  are  comfortable  with  the  fact it's just me and  him chasing  this around . Fully ,10 of my primaries  have gone unnoticed  by three  dermatologists . I have literally  had to beg everyone  of those dermatologists  to biopsy  what I knew was a bad lesion .  I am  flying  under  the  radar  with them.

I had family  support to financially  get me to SF after the first  two denials , but UCSF  is now talking  to my insurance  company , primary  care people  and anyone  else  needed  to move this along . They told me yesterday  to sit tight  possibly  another  month  to allow  the process  to unfold . They also  asked me if I   had ever had any genetic  mutation  testing  done, which I have not. They also  asked  if it can be done out here,and I actually  don't  know. This is the first  time that subject  has come up for me. Which brings  me  to  what I  need  some  help  with  from  anyone  of you that might  know . 

I am flying  to Honolulu  on Thursday  for a PET  /CT , and  a visit  with  my oncologist  afterwards .  I have only seen him twice before  for a grand total  of no more  than 15 minutes  of his time,combined . His only  comments  to me was that I looked fine to him considering  how much Melenoma  I've  had. That was referring  to just looking at me. This will  be my fourth  scan in 5year's . The first one showed a suv value of 3.8 in the rectum,followed  by unremarkable  colonoscopy. The second  one showed suv of 6.8 in same area ,followed by another  unremarkable  colonoscopy . Third one showed suv of 8.3,same exact area,followed by yet another  unremarkable  colonoscopy ,then a MRI which noted a 15 mm mass on my liver. That was a year ago,with no follow  up since. Just several  more skin primaries  since,and so many  lesions  coming  up ,I  can't  keep  them  straight . Not a word from my oncologist  about anything  I just mentioned . What should  I  be asking  for here? Genetic  testing ?  I don't  have a clue. I've  been  working  hard  as I can  just to get cut off what I can. I just want to go in with a plan since I know  I'll  get precious  few moments  with someone  who doesn't  know  much about  melanoma .  I just  have to keep  moving  this along until  I can get to SF.

Many  thanks  as always , 

Bob