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I had my scans, blood work, Dr Visit and Anti PD 1 today

Forums General Melanoma Community I had my scans, blood work, Dr Visit and Anti PD 1 today

  • Post
    LynnLuc
    Participant

    My scans are fine, blood work fine…had my treatment…here is the skinny I will share…
    Saw Dr Weber and he thinks my rash/hives on my hands and soft parts of my feet of
    probably side effects from Anti-PD-1. It has been there since mid December.
    He says I am doing fantastic and would hate for me to stop…I told him I
    can live with it…but so far my hands and feet have NOT gotten worse since
    my infusion today, so I am hoping it is NOT related!
    ….in my trial it is required to be NED ( no evidence of disease)
    which could be by chemotherapy, surgery or immunotherapy or radiation.
    Some who enter the trial start right out of surgery and such, so their NED
    is somewhat questionable, if you know what I mean. Anyways, 29 people
    are/were enrolled. 2 progressed and died of brain mets.
    1 progressed and was put on another immunotherapy and is again NED. 1
    progressed ( and this is the kicker….he now experienced spontaneous
    REGRESSION of his melanoma! 25 remain stable and NED.
    This is week 72 of my Anti-PD-1/vaccine trial (MDX 1106)

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  • Replies
      melmar
      Participant
      Such great news! Thanks for keeping us updated.
      melmar
      Participant
      Such great news! Thanks for keeping us updated.
      melmar
      Participant
      Such great news! Thanks for keeping us updated.
      MaryD
      Participant

      Fantastic news – very happy for you!    I love Dr. Weber  – I live on the west coast and was in a trial with him at USC in LA and followed him to Tampa for a resected Ipi trial.   Still see him once a  year .

      Keep up the great work!

      Mary

      MaryD
      Participant

      Fantastic news – very happy for you!    I love Dr. Weber  – I live on the west coast and was in a trial with him at USC in LA and followed him to Tampa for a resected Ipi trial.   Still see him once a  year .

      Keep up the great work!

      Mary

      MaryD
      Participant

      Fantastic news – very happy for you!    I love Dr. Weber  – I live on the west coast and was in a trial with him at USC in LA and followed him to Tampa for a resected Ipi trial.   Still see him once a  year .

      Keep up the great work!

      Mary

      aldakota22
      Participant

      Happy for the good news.Keep the good reports comming always. Bless you.    Al

      aldakota22
      Participant

      Happy for the good news.Keep the good reports comming always. Bless you.    Al

      aldakota22
      Participant

      Happy for the good news.Keep the good reports comming always. Bless you.    Al

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