I have a question for all you warriors and caregivers! I need help because I am not dealing well!
Darryel, my husband, was originally diagnosed Stage IV in 1/2012-mets to spine, liver, pelvis, lymph nodes. He started on Zelborad and had been doing pretty well on it. The oncologist did CT scans, first every three months, then every four months, but only of his abdomen. November 2013, one week after a clean CT scan, he had a seizure. MRI found brain mets. Now he is on Tafinlar, seems to be doing relatively well, aside from extreme fatigue and some morning nausea.
I am totally stressing, maybe b/c I wonder why only abdominal scans were done. His onc, not a melonama specialist, has no plans on doing a CT scan anytime soon! Darryel is scheduled to have a follow-up MRI of his brain in March, which is great, but I am terrified of waiting so long to do a scan of his abdomen!! I asked yesterday if we could just do another scan at least at the 6-month mark (which would be May) but was told NO.
Am I putting too much emphasis on the scans? And how in the world do we live any kind of normal life with the fear of all these unknowns??
Any advice would be greatly appreciated-thank you all for being here!
