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How many of us had pathology misread?

Forums General Melanoma Community How many of us had pathology misread?

  • Post
    mlbjab
    Participant

      Were you told benign mole or minimally atypical and turned out it was actually malignant?  VERY frustrated.

      Were you told benign mole or minimally atypical and turned out it was actually malignant?  VERY frustrated.

    Viewing 5 reply threads
    • Replies
        yoopergirl
        Participant

          I was told in July of 2006 that I had Malignant Melanoma but the patholgy report said insitu after a portion of my finger was removed so was just follow up with a Dermatoligist,  well in Nov of 2010 a lump showed up on my forearm, had that removed by a local surgeon and sure enough it has spread!!!! went to my Dermotoligist and he said most path reports are not done correct so he had it sent to a Dermapatholigist and it came back Metastatic Melanoma and since then have had many surgeries and now on Yervoy. I was mad at first but couldn't blame the doctor since the outside facilty made that mistake. I am a fighter so will continue to do so.

            SteveBMe
            Participant

              Here…..

              Mole turned malignant in 1987. In 1990, two weeks before I was to get married, I decided to "do the responsible thing" and see a dermatologist.

              Went in after work one day, saw doc, showed him the mole. He looked at it, froze it with nitrogen, took it in back, supposedly looked at it under a microscope, and came back 10 minutes later with the words– it's benign, go have a nice life.

              So, living on the beach, working outdoors, 30 yrs of age, getting ready to get married, and head to Kauai for a 9 day honeymoon– you bet yur britches I went out and had a nice life…. La vida loca babeee….

              Just days before I got married, the clinic called with the pathology report– it's benign.

              that was around August 23, 1990. I got married that Saturday….

              In 1992, I got some kind of an infection, in the left groin– location where the mets would've initialized. I went to the gp doc and received some antibiotics. 

              In explaining to him that it really hurt, and was a lump in my groin, about the size of a quarter, he said it was probably an infection, and the lymph nodes took on the infection and became scar tissue. Made sense to me, so I moved on. As the antibiotics killed what I had believed to be an infection– pain was gone– I moved on with my life.

              In 2000, at what would be my final week with my mother before her own lung cancer would kill her T-day weekend, I called the dermatologist whom I'd then come to believe had initially misdiagnosed me, and made an appointment.

              I was headed fo my own, 3rd by then, surgery ten days after my mother died, and so I had a CT report showing more tumor, so I confronted him, and matter-of-factly said– I just wanted to thank you for murdering me, as I handed him the report.

              I said it in a rather sacastic, but flat manner, so it was a shock to him, and you could see it on his face (if you ever get misdiagnosed– try it sometime… it's an interesting feeling to actually have proof someone whom you trusted– and paid– has treated you in a manner that could realistically result in your death). They pulled my then 10 year old file out of archives, and noticed the records– benign. So, the director of the clinic pulled my biopsy– also out of archives– and had the pathology redone.

              I received a report in the mail on December 6, 2000, 4 days before surgery #3, and it said metastatic melanoma, clark's level 4.

              So, almost 14 years after onset, 10 years after misdiagnosis, 3-1/2 years after a correct diagnosis, 3 years into a 4 year clinical drug trial, just days before my 3rd tumor surgery, working on my final lower division physics classes, a week and a half after my mother's death to her own lung cancer, 7 months after my mother in law had died of kdney failure from adult onset diabetes, and 4-1/2 years of my wife's own major, as yet unexplainable medical issues….

              I finally got news that I had been screwed and still, to this day, I have no idea why I was misdiagnosed. Was it deliberate? Did the guy have to go potty and chose not to wait? Did he have a golf game to get to, and was in a hurry? Did he just not pay attention– for any one of a thousand different reasons?

              So… yea… it happens.

              If you ever have any doubts– get a second opinion…. even if it seems silly to doubt. Technology today is better than it was in 1990. I've finally come to the polnt where I actually believe now that he did me a favor by misdiagnosing me. I was young enough, healthy, and active enough, that it wasn't until my late 30's that I had become so worn down from working so many hours, eating so poorly, that I had lasted long enough to gain access to much better technology, that was nowhere near as caustic to my body as existed in 1990.

              I have come the place now that I actually believe had I been correctly diagnosed in 1990, I'd have been dead by 1993, if not sooner.

              Life is an amazing thing… I really do believe that things happen for reasons that I beyond our understanding at the time they happen…. some reasons become clear later, and some will have to wait until eternity.

              I'm now alive, after 25 years…. and not one of my docs can explain it… Some say it's a miracle, and others just shrug their shoulders and move on.

              As it's been said before– I stand atop the highest mountains where I live, and scream out at the tops of my lungs– Thank God I'm alive!!!!!!! Sometimes I'll even do it in the alleyways, and gutters…. just so the depair-filled can hear that there's hope– inspite of ourselves….

               

               

              SteveBMe
              Participant

                Here…..

                Mole turned malignant in 1987. In 1990, two weeks before I was to get married, I decided to "do the responsible thing" and see a dermatologist.

                Went in after work one day, saw doc, showed him the mole. He looked at it, froze it with nitrogen, took it in back, supposedly looked at it under a microscope, and came back 10 minutes later with the words– it's benign, go have a nice life.

                So, living on the beach, working outdoors, 30 yrs of age, getting ready to get married, and head to Kauai for a 9 day honeymoon– you bet yur britches I went out and had a nice life…. La vida loca babeee….

                Just days before I got married, the clinic called with the pathology report– it's benign.

                that was around August 23, 1990. I got married that Saturday….

                In 1992, I got some kind of an infection, in the left groin– location where the mets would've initialized. I went to the gp doc and received some antibiotics. 

                In explaining to him that it really hurt, and was a lump in my groin, about the size of a quarter, he said it was probably an infection, and the lymph nodes took on the infection and became scar tissue. Made sense to me, so I moved on. As the antibiotics killed what I had believed to be an infection– pain was gone– I moved on with my life.

                In 2000, at what would be my final week with my mother before her own lung cancer would kill her T-day weekend, I called the dermatologist whom I'd then come to believe had initially misdiagnosed me, and made an appointment.

                I was headed fo my own, 3rd by then, surgery ten days after my mother died, and so I had a CT report showing more tumor, so I confronted him, and matter-of-factly said– I just wanted to thank you for murdering me, as I handed him the report.

                I said it in a rather sacastic, but flat manner, so it was a shock to him, and you could see it on his face (if you ever get misdiagnosed– try it sometime… it's an interesting feeling to actually have proof someone whom you trusted– and paid– has treated you in a manner that could realistically result in your death). They pulled my then 10 year old file out of archives, and noticed the records– benign. So, the director of the clinic pulled my biopsy– also out of archives– and had the pathology redone.

                I received a report in the mail on December 6, 2000, 4 days before surgery #3, and it said metastatic melanoma, clark's level 4.

                So, almost 14 years after onset, 10 years after misdiagnosis, 3-1/2 years after a correct diagnosis, 3 years into a 4 year clinical drug trial, just days before my 3rd tumor surgery, working on my final lower division physics classes, a week and a half after my mother's death to her own lung cancer, 7 months after my mother in law had died of kdney failure from adult onset diabetes, and 4-1/2 years of my wife's own major, as yet unexplainable medical issues….

                I finally got news that I had been screwed and still, to this day, I have no idea why I was misdiagnosed. Was it deliberate? Did the guy have to go potty and chose not to wait? Did he have a golf game to get to, and was in a hurry? Did he just not pay attention– for any one of a thousand different reasons?

                So… yea… it happens.

                If you ever have any doubts– get a second opinion…. even if it seems silly to doubt. Technology today is better than it was in 1990. I've finally come to the polnt where I actually believe now that he did me a favor by misdiagnosing me. I was young enough, healthy, and active enough, that it wasn't until my late 30's that I had become so worn down from working so many hours, eating so poorly, that I had lasted long enough to gain access to much better technology, that was nowhere near as caustic to my body as existed in 1990.

                I have come the place now that I actually believe had I been correctly diagnosed in 1990, I'd have been dead by 1993, if not sooner.

                Life is an amazing thing… I really do believe that things happen for reasons that I beyond our understanding at the time they happen…. some reasons become clear later, and some will have to wait until eternity.

                I'm now alive, after 25 years…. and not one of my docs can explain it… Some say it's a miracle, and others just shrug their shoulders and move on.

                As it's been said before– I stand atop the highest mountains where I live, and scream out at the tops of my lungs– Thank God I'm alive!!!!!!! Sometimes I'll even do it in the alleyways, and gutters…. just so the depair-filled can hear that there's hope– inspite of ourselves….

                 

                 

                SteveBMe
                Participant

                  Here…..

                  Mole turned malignant in 1987. In 1990, two weeks before I was to get married, I decided to "do the responsible thing" and see a dermatologist.

                  Went in after work one day, saw doc, showed him the mole. He looked at it, froze it with nitrogen, took it in back, supposedly looked at it under a microscope, and came back 10 minutes later with the words– it's benign, go have a nice life.

                  So, living on the beach, working outdoors, 30 yrs of age, getting ready to get married, and head to Kauai for a 9 day honeymoon– you bet yur britches I went out and had a nice life…. La vida loca babeee….

                  Just days before I got married, the clinic called with the pathology report– it's benign.

                  that was around August 23, 1990. I got married that Saturday….

                  In 1992, I got some kind of an infection, in the left groin– location where the mets would've initialized. I went to the gp doc and received some antibiotics. 

                  In explaining to him that it really hurt, and was a lump in my groin, about the size of a quarter, he said it was probably an infection, and the lymph nodes took on the infection and became scar tissue. Made sense to me, so I moved on. As the antibiotics killed what I had believed to be an infection– pain was gone– I moved on with my life.

                  In 2000, at what would be my final week with my mother before her own lung cancer would kill her T-day weekend, I called the dermatologist whom I'd then come to believe had initially misdiagnosed me, and made an appointment.

                  I was headed fo my own, 3rd by then, surgery ten days after my mother died, and so I had a CT report showing more tumor, so I confronted him, and matter-of-factly said– I just wanted to thank you for murdering me, as I handed him the report.

                  I said it in a rather sacastic, but flat manner, so it was a shock to him, and you could see it on his face (if you ever get misdiagnosed– try it sometime… it's an interesting feeling to actually have proof someone whom you trusted– and paid– has treated you in a manner that could realistically result in your death). They pulled my then 10 year old file out of archives, and noticed the records– benign. So, the director of the clinic pulled my biopsy– also out of archives– and had the pathology redone.

                  I received a report in the mail on December 6, 2000, 4 days before surgery #3, and it said metastatic melanoma, clark's level 4.

                  So, almost 14 years after onset, 10 years after misdiagnosis, 3-1/2 years after a correct diagnosis, 3 years into a 4 year clinical drug trial, just days before my 3rd tumor surgery, working on my final lower division physics classes, a week and a half after my mother's death to her own lung cancer, 7 months after my mother in law had died of kdney failure from adult onset diabetes, and 4-1/2 years of my wife's own major, as yet unexplainable medical issues….

                  I finally got news that I had been screwed and still, to this day, I have no idea why I was misdiagnosed. Was it deliberate? Did the guy have to go potty and chose not to wait? Did he have a golf game to get to, and was in a hurry? Did he just not pay attention– for any one of a thousand different reasons?

                  So… yea… it happens.

                  If you ever have any doubts– get a second opinion…. even if it seems silly to doubt. Technology today is better than it was in 1990. I've finally come to the polnt where I actually believe now that he did me a favor by misdiagnosing me. I was young enough, healthy, and active enough, that it wasn't until my late 30's that I had become so worn down from working so many hours, eating so poorly, that I had lasted long enough to gain access to much better technology, that was nowhere near as caustic to my body as existed in 1990.

                  I have come the place now that I actually believe had I been correctly diagnosed in 1990, I'd have been dead by 1993, if not sooner.

                  Life is an amazing thing… I really do believe that things happen for reasons that I beyond our understanding at the time they happen…. some reasons become clear later, and some will have to wait until eternity.

                  I'm now alive, after 25 years…. and not one of my docs can explain it… Some say it's a miracle, and others just shrug their shoulders and move on.

                  As it's been said before– I stand atop the highest mountains where I live, and scream out at the tops of my lungs– Thank God I'm alive!!!!!!! Sometimes I'll even do it in the alleyways, and gutters…. just so the depair-filled can hear that there's hope– inspite of ourselves….

                   

                   

                  natasha
                  Participant

                    My first pathology report says I HAVE 2 MM MELANOMA

                    I decided it is odd ,because breslow is 2mm but Clark is only 2.

                    I asked my doctors for second opinion in different lab in different country.

                    Second opinion came as 0.2 mm ,instead of 2 mm

                    My second pathologust contacted first lab and first pathologyst realised he has done typing mistake in my report.

                    I was living in ''2 mm'' stress for one month and half.

                    natasha
                    Participant

                      My first pathology report says I HAVE 2 MM MELANOMA

                      I decided it is odd ,because breslow is 2mm but Clark is only 2.

                      I asked my doctors for second opinion in different lab in different country.

                      Second opinion came as 0.2 mm ,instead of 2 mm

                      My second pathologust contacted first lab and first pathologyst realised he has done typing mistake in my report.

                      I was living in ''2 mm'' stress for one month and half.

                      natasha
                      Participant

                        My first pathology report says I HAVE 2 MM MELANOMA

                        I decided it is odd ,because breslow is 2mm but Clark is only 2.

                        I asked my doctors for second opinion in different lab in different country.

                        Second opinion came as 0.2 mm ,instead of 2 mm

                        My second pathologust contacted first lab and first pathologyst realised he has done typing mistake in my report.

                        I was living in ''2 mm'' stress for one month and half.

                      yoopergirl
                      Participant

                        I was told in July of 2006 that I had Malignant Melanoma but the patholgy report said insitu after a portion of my finger was removed so was just follow up with a Dermatoligist,  well in Nov of 2010 a lump showed up on my forearm, had that removed by a local surgeon and sure enough it has spread!!!! went to my Dermotoligist and he said most path reports are not done correct so he had it sent to a Dermapatholigist and it came back Metastatic Melanoma and since then have had many surgeries and now on Yervoy. I was mad at first but couldn't blame the doctor since the outside facilty made that mistake. I am a fighter so will continue to do so.

                        yoopergirl
                        Participant

                          I was told in July of 2006 that I had Malignant Melanoma but the patholgy report said insitu after a portion of my finger was removed so was just follow up with a Dermatoligist,  well in Nov of 2010 a lump showed up on my forearm, had that removed by a local surgeon and sure enough it has spread!!!! went to my Dermotoligist and he said most path reports are not done correct so he had it sent to a Dermapatholigist and it came back Metastatic Melanoma and since then have had many surgeries and now on Yervoy. I was mad at first but couldn't blame the doctor since the outside facilty made that mistake. I am a fighter so will continue to do so.

                          s Mom
                          Participant

                            This happened to my son.  Here's the shortened version:

                            Sept., 2006 – funny looking mole on scalp was excised.  It came back benign – we were relieved!

                            4.2 years later he discovers a lump in parotid (Nov. 2010)

                            Feb. 2011 – surgery and it's malignant melanoma.  He told his doctors about the original mole, so they requested the original slide.  Board certified derma pathologist missed it – it was melanoma.

                            So…Jeff is now Stage 4 with mets to liver and lungs.  He has a beautiful family – he is an amazing person who does not deserve this.  If they had made the correct diagnosis he wouldn't be going through all of this.  And, he cannot sue because of Illinois' "awesome" statute of repose (discovery of malpractice must be within a 4 year period).  

                            Lousy doctors are protected by a lousy law…

                            Jeff's Mom

                              boot2aboot
                              Participant

                                suspicious mole removed from my right scapula in december…pathed 'benign'…4mos later, a golf ball sized melanoma under my right armpit…go figure….

                                boots

                                boot2aboot
                                Participant

                                  suspicious mole removed from my right scapula in december…pathed 'benign'…4mos later, a golf ball sized melanoma under my right armpit…go figure….

                                  boots

                                  boot2aboot
                                  Participant

                                    suspicious mole removed from my right scapula in december…pathed 'benign'…4mos later, a golf ball sized melanoma under my right armpit…go figure….

                                    boots

                                  s Mom
                                  Participant

                                    This happened to my son.  Here's the shortened version:

                                    Sept., 2006 – funny looking mole on scalp was excised.  It came back benign – we were relieved!

                                    4.2 years later he discovers a lump in parotid (Nov. 2010)

                                    Feb. 2011 – surgery and it's malignant melanoma.  He told his doctors about the original mole, so they requested the original slide.  Board certified derma pathologist missed it – it was melanoma.

                                    So…Jeff is now Stage 4 with mets to liver and lungs.  He has a beautiful family – he is an amazing person who does not deserve this.  If they had made the correct diagnosis he wouldn't be going through all of this.  And, he cannot sue because of Illinois' "awesome" statute of repose (discovery of malpractice must be within a 4 year period).  

                                    Lousy doctors are protected by a lousy law…

                                    Jeff's Mom

                                    s Mom
                                    Participant

                                      This happened to my son.  Here's the shortened version:

                                      Sept., 2006 – funny looking mole on scalp was excised.  It came back benign – we were relieved!

                                      4.2 years later he discovers a lump in parotid (Nov. 2010)

                                      Feb. 2011 – surgery and it's malignant melanoma.  He told his doctors about the original mole, so they requested the original slide.  Board certified derma pathologist missed it – it was melanoma.

                                      So…Jeff is now Stage 4 with mets to liver and lungs.  He has a beautiful family – he is an amazing person who does not deserve this.  If they had made the correct diagnosis he wouldn't be going through all of this.  And, he cannot sue because of Illinois' "awesome" statute of repose (discovery of malpractice must be within a 4 year period).  

                                      Lousy doctors are protected by a lousy law…

                                      Jeff's Mom

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