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Help with CT scan results

Forums Mucosal Melanoma Community Help with CT scan results

  • Post
    claudia-uk
    Participant

    My husband has mucosal melnoma which has spread recently.

    We received the CT scan results but don't quite understand them. We will have a hospital appointment in a week but it would be good to hear what other people are thinking:

    Multiple sub-centimetre pulmonary nodules (left upper lobe 4mm, middle lobe 5mm.

    No enlarged lymph nodes

    Multiple hepatic lesions. Largest 5.7cm, this is heterogeneous and lies within segment 5/8.

    A 1cm peritoneal nodule is present.

    No focal bony involvement.

     

    My husband has mucosal melnoma which has spread recently.

    We received the CT scan results but don't quite understand them. We will have a hospital appointment in a week but it would be good to hear what other people are thinking:

    Multiple sub-centimetre pulmonary nodules (left upper lobe 4mm, middle lobe 5mm.

    No enlarged lymph nodes

    Multiple hepatic lesions. Largest 5.7cm, this is heterogeneous and lies within segment 5/8.

    A 1cm peritoneal nodule is present.

    No focal bony involvement.

     

    Does that all sound very bad? 5cm sounds already quite big.

    Husband will start with chemotherapy in a week, but only 2 or 3 cycles and then he will go on to Ipilimumab compassionate trial.

    We asked for PD-1 trials, but they are not available in the UK yet. As he has mucosal melanoma he is not eleigible formany trials and he was also tested negative for braf and c-kit, which seems that his only possibility at the moment is Ipi.

     

    Thanks for your help!

    Claudia

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  • Replies
      Lori C
      Participant

      Hi,

      Someone else will be able to do this better but as weekends are slow here, I will give you my two cents.

      Multiple sub-centimetre pulmonary nodules (left upper lobe 4mm, middle lobe 5mm.

      There are more than one < than a centimetre lung tumors in the upper left lobe.  These are very small.

      No enlarged lymph nodes

      This is pretty self explanatory, just no abnormal lymph nodes seen.

      Multiple hepatic lesions. Largest 5.7cm, this is heterogeneous and lies within segment 5/8.

      This is the one of most concern to me.  There are many liver tumors. 

      A 1cm peritoneal nodule is present.

      There is a tumor in the peritoneal cavity.

      No focal bony involvement.

      There are no mets observed in the skeletal areas.

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      Lori C
      Participant

      Hi,

      Someone else will be able to do this better but as weekends are slow here, I will give you my two cents.

      Multiple sub-centimetre pulmonary nodules (left upper lobe 4mm, middle lobe 5mm.

      There are more than one < than a centimetre lung tumors in the upper left lobe.  These are very small.

      No enlarged lymph nodes

      This is pretty self explanatory, just no abnormal lymph nodes seen.

      Multiple hepatic lesions. Largest 5.7cm, this is heterogeneous and lies within segment 5/8.

      This is the one of most concern to me.  There are many liver tumors. 

      A 1cm peritoneal nodule is present.

      There is a tumor in the peritoneal cavity.

      No focal bony involvement.

      There are no mets observed in the skeletal areas.

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        claudia-uk
        Participant

        Thank you Lori!

        Could someone please let me know if that is a lot of metastases, or normal , can the liver mets removed surgically or is that not possible with the size or if there are too many already?

        Did Ipi work for people with liver and lung mets?

        I would just like to collect some more information before we have the hospital appointment in a week.

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        claudia-uk
        Participant

        Thank you Lori!

        Could someone please let me know if that is a lot of metastases, or normal , can the liver mets removed surgically or is that not possible with the size or if there are too many already?

        Did Ipi work for people with liver and lung mets?

        I would just like to collect some more information before we have the hospital appointment in a week.

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        James from Sydney
        Participant

        Claudia, a systemic approach is the most logical and it sounds you are heading that way. They can operate on the liver but  they may advise against it based on the location on the liver and the fact there is disease elsewhere. You would expect a long process of healing following a liver Operation which therefore allows the disease in other parts to keep growing.

        Ask about the Delcath delivery method which isolates the Liver and delivers a large dose of chemo without affecting the rest of his body. Ippilimumab hopefully will yield the best response.

        best wishes

        James

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        James from Sydney
        Participant

        Claudia, a systemic approach is the most logical and it sounds you are heading that way. They can operate on the liver but  they may advise against it based on the location on the liver and the fact there is disease elsewhere. You would expect a long process of healing following a liver Operation which therefore allows the disease in other parts to keep growing.

        Ask about the Delcath delivery method which isolates the Liver and delivers a large dose of chemo without affecting the rest of his body. Ippilimumab hopefully will yield the best response.

        best wishes

        James

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        claudia-uk
        Participant

        James, thank you so much for your very useful information!

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        claudia-uk
        Participant

        James, thank you so much for your very useful information!

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