› Forums › General Melanoma Community › Gluten/Celiac
- This topic has 15 replies, 4 voices, and was last updated 13 years, 10 months ago by
bella001.
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- December 31, 2011 at 5:25 am
Hello!
I was dx w/ stage 1 Melanoma is 2004. I had a WLE and have been NED since. Last year I learned I have Celiac. After doing a ton of research on that I'm finding more and more info about a much higher Melanoma rate among Celiacs. It's relating it to a vitamin D problem. Anybody else have Celiac or gluten intolerance and also Melanoma? Just curious if I'm unique or not.
Thanks!
Hello!
I was dx w/ stage 1 Melanoma is 2004. I had a WLE and have been NED since. Last year I learned I have Celiac. After doing a ton of research on that I'm finding more and more info about a much higher Melanoma rate among Celiacs. It's relating it to a vitamin D problem. Anybody else have Celiac or gluten intolerance and also Melanoma? Just curious if I'm unique or not.
Thanks!
- Replies
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- December 31, 2011 at 2:40 pm
It is so interesting you posted this. I've alway had "tummy" troubles and 25 years ago when I was having an upper GI in a little town in Michigan the radiologist said that it looked like celiac/sprue. My Dr. and everyone I talked to said I didn't fit the profile and they couldn't believe that's what I had so I was diagnosed with IBS. I have wanted to look back at the possilbe celiac diagnosis now that so many seem to be diagnosed with it. When I started researching it I found the melanoma link. I think it's becsause of the autoimmune properties of celiac. I've tried on my own to just stop gluten and see if my "tummy" troubles get better, but I always end up not making it becasue so much has gluten in it. I am taking vitamin D because my levels were a little low.
Amy S. in Michigan
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- December 31, 2011 at 2:40 pm
It is so interesting you posted this. I've alway had "tummy" troubles and 25 years ago when I was having an upper GI in a little town in Michigan the radiologist said that it looked like celiac/sprue. My Dr. and everyone I talked to said I didn't fit the profile and they couldn't believe that's what I had so I was diagnosed with IBS. I have wanted to look back at the possilbe celiac diagnosis now that so many seem to be diagnosed with it. When I started researching it I found the melanoma link. I think it's becsause of the autoimmune properties of celiac. I've tried on my own to just stop gluten and see if my "tummy" troubles get better, but I always end up not making it becasue so much has gluten in it. I am taking vitamin D because my levels were a little low.
Amy S. in Michigan
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- December 31, 2011 at 3:25 pm
Hi Amy!
What I've learned is that most doctors are still in the stone age with their info on Celiac. I had to fight with mine to get her to listen to me. She told me the same thing since I didn't have one of the known symptoms. Think some of them like to just throw a pill at problems and this is one they cannot. They have found over 200 symptoms that can be related to it now. I've had stomach issues since a child. It's been blammed on everything from stress to IBS.
You are right that it is very hard to avoid gluten, but it can be done. I've been free from it for a year and a half now. I basically eat meats, fruits, veggies, and dairy. Eating out and fast food I cannot do. I also cannot eat most boxed items at the store.
Best Of Luck!
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- December 31, 2011 at 3:25 pm
Hi Amy!
What I've learned is that most doctors are still in the stone age with their info on Celiac. I had to fight with mine to get her to listen to me. She told me the same thing since I didn't have one of the known symptoms. Think some of them like to just throw a pill at problems and this is one they cannot. They have found over 200 symptoms that can be related to it now. I've had stomach issues since a child. It's been blammed on everything from stress to IBS.
You are right that it is very hard to avoid gluten, but it can be done. I've been free from it for a year and a half now. I basically eat meats, fruits, veggies, and dairy. Eating out and fast food I cannot do. I also cannot eat most boxed items at the store.
Best Of Luck!
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- December 31, 2011 at 3:25 pm
Hi Amy!
What I've learned is that most doctors are still in the stone age with their info on Celiac. I had to fight with mine to get her to listen to me. She told me the same thing since I didn't have one of the known symptoms. Think some of them like to just throw a pill at problems and this is one they cannot. They have found over 200 symptoms that can be related to it now. I've had stomach issues since a child. It's been blammed on everything from stress to IBS.
You are right that it is very hard to avoid gluten, but it can be done. I've been free from it for a year and a half now. I basically eat meats, fruits, veggies, and dairy. Eating out and fast food I cannot do. I also cannot eat most boxed items at the store.
Best Of Luck!
-
- December 31, 2011 at 2:40 pm
It is so interesting you posted this. I've alway had "tummy" troubles and 25 years ago when I was having an upper GI in a little town in Michigan the radiologist said that it looked like celiac/sprue. My Dr. and everyone I talked to said I didn't fit the profile and they couldn't believe that's what I had so I was diagnosed with IBS. I have wanted to look back at the possilbe celiac diagnosis now that so many seem to be diagnosed with it. When I started researching it I found the melanoma link. I think it's becsause of the autoimmune properties of celiac. I've tried on my own to just stop gluten and see if my "tummy" troubles get better, but I always end up not making it becasue so much has gluten in it. I am taking vitamin D because my levels were a little low.
Amy S. in Michigan
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- January 3, 2012 at 2:28 am
I am stage IV NED and I seem to have developed a sensitivity to whole wheat- skin reaction- since my melanoma treatment. Since I quit wheat and dairy all my digestive issues have gotten better. I would be interested to learn more about this connection.
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- January 3, 2012 at 2:28 am
I am stage IV NED and I seem to have developed a sensitivity to whole wheat- skin reaction- since my melanoma treatment. Since I quit wheat and dairy all my digestive issues have gotten better. I would be interested to learn more about this connection.
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- January 3, 2012 at 2:28 am
I am stage IV NED and I seem to have developed a sensitivity to whole wheat- skin reaction- since my melanoma treatment. Since I quit wheat and dairy all my digestive issues have gotten better. I would be interested to learn more about this connection.
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- May 20, 2012 at 9:32 pm
Hi! I was also Stage I in late 2004 (Breslow 0.4mm, Clarks IV), and was just diagnosed with Celiac Disease about a month ago. Did not have classic Celiac symptoms, but some of the symptoms I've had since I was 13! So one of the websites I'm reading says that Celiac patients have a higher risk of Melanoma…..I'm thinking, WHAT??? I do think that, for me, my melanoma was Vitamin D deficiency related. After diagnosis (about 4 years after) I was tested for Vit D levels and found to be extremely low. I have been taking the high-dose Vitamin D once weekly ever since. I was diagnosed with atypical mole syndrome and I was getting biopsies on my "weird" moles every 6 months and always have 3 or 4 excisions (lots of moderate to severe atypia) but since I've been on the Vitamin D I've had maybe 2 biopsies, no excisions. My last appointment in December was the first time, since diagnosis, that I had no biopsies! It was great! I'm hopeful that now that I've gone gluten free my Vitamin D absorption problems will resolve and that my chances for future melanomas will be that much less!
Danica
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- May 20, 2012 at 9:32 pm
Hi! I was also Stage I in late 2004 (Breslow 0.4mm, Clarks IV), and was just diagnosed with Celiac Disease about a month ago. Did not have classic Celiac symptoms, but some of the symptoms I've had since I was 13! So one of the websites I'm reading says that Celiac patients have a higher risk of Melanoma…..I'm thinking, WHAT??? I do think that, for me, my melanoma was Vitamin D deficiency related. After diagnosis (about 4 years after) I was tested for Vit D levels and found to be extremely low. I have been taking the high-dose Vitamin D once weekly ever since. I was diagnosed with atypical mole syndrome and I was getting biopsies on my "weird" moles every 6 months and always have 3 or 4 excisions (lots of moderate to severe atypia) but since I've been on the Vitamin D I've had maybe 2 biopsies, no excisions. My last appointment in December was the first time, since diagnosis, that I had no biopsies! It was great! I'm hopeful that now that I've gone gluten free my Vitamin D absorption problems will resolve and that my chances for future melanomas will be that much less!
Danica
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- May 20, 2012 at 9:32 pm
Hi! I was also Stage I in late 2004 (Breslow 0.4mm, Clarks IV), and was just diagnosed with Celiac Disease about a month ago. Did not have classic Celiac symptoms, but some of the symptoms I've had since I was 13! So one of the websites I'm reading says that Celiac patients have a higher risk of Melanoma…..I'm thinking, WHAT??? I do think that, for me, my melanoma was Vitamin D deficiency related. After diagnosis (about 4 years after) I was tested for Vit D levels and found to be extremely low. I have been taking the high-dose Vitamin D once weekly ever since. I was diagnosed with atypical mole syndrome and I was getting biopsies on my "weird" moles every 6 months and always have 3 or 4 excisions (lots of moderate to severe atypia) but since I've been on the Vitamin D I've had maybe 2 biopsies, no excisions. My last appointment in December was the first time, since diagnosis, that I had no biopsies! It was great! I'm hopeful that now that I've gone gluten free my Vitamin D absorption problems will resolve and that my chances for future melanomas will be that much less!
Danica
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