I am new to forum. Diagnosed with stage 4 in March of this year. After months of headaches, had CT of brain and found large mass.
I am new to forum. Diagnosed with stage 4 in March of this year. After months of headaches, had CT of brain and found large mass. Had emergency surgery (awesome team of dr.s) and the MRI after showed no other lesions and they got all of the tumor. Had PET and found it in nodes on left side near armpit. Here goes the history….my dad was diagnosed in 2009 with metastatic melanoma. Right side large tumor involving lots of nodes. Tumor was so big couldn't operate. Went to MDA then on to Arkansas for compassion trial of IPI. Showed response after first cycle but passed away soon afterwards as his body went into septic shock (he was my heart). I was his caregiver and my sister took care of our mom who was diagnosed with stage 4 renal cell carcinoma close to the same time as my dad. She passed 16 days after him..soulmates…fastfoward several months later. My sister and I had gastric bypass surgery on the same day…two weeks post op they found lump under her arm….after CT and surgery, was diagnosed with stage 4 metastic melanoma. Oddly enough her's is on the left side as is mine. She is being treated at MDA…I am being treated at home in Louisiana. I had MRI of the brain 2 month post op and everything is still clear. Minimal node involvement. We are (my sister and I) both BRAF positive and both on Zelboraf. I just started mine last week…so many stories here…praying for all!! GOD IS GOOD and with us always…..
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