Diagnosised and treated in the last 2 weeks
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Diagnosised and treated in the last 2 weeks

› Forums › General Melanoma Community › Diagnosised and treated in the last 2 weeks

  • Post
    • January 31, 2016 at 12:33 am
    Vrsomerset
    Participant

    I was disgnosised with chorodial melanoma 2 weeks ago and had plaque therapy last week.  My regular eye doctor is excellent and has been keeping a close eye on the nevus for years.  It was removed this past Monday.  I'm being treated at the Wills Eye Hospital in Philadelphia.  I'm very scared that I may lose my eye and of the cancer spreading.  I had the biopsy done but don't have the results yet.  The tumor was small and they say the results of my treatment should be good.  There's not much information out there to read up on and I have no one to talk to about my fears and how they've made out.  Any help and info from other CM folks is appreciated.  Thank you, Vicki

     

Viewing 2 reply threads
  • Replies
      • February 8, 2016 at 8:33 pm
      Adam-MRF
      Keymaster

      Hi Vicki,

      Thank you for reaching out, we would like to be of assistance to you. It's good to know that you are actively engaged with your healthcare team and have been so observant over the years. We have multiple resources available that you may find helpful:

      On March 4-6, the MRF's CURE OM initiative is hosting the Eyes on a Cure: Patient and Caregiver Symposium, bringing together the nationwide ocular melanoma community for a weekend of research updates, discussion with experts and the chance to meet and talk with fellow patients, survivors and caregivers in the OM community. Registration is still open and we would love for you to join us: http://www.melanoma.org/get-involved/calendar-of-events/eyes-cure-patient-caregiver-symposium-0

      The CURE OM Facebook page is an active, supportive community of people who can offer insight from their own experience, we invite you to join us on in that community as well: https://www.facebook.com/cureom/

      The MRF website has information about the diagnosis and treatment of OM with links to support resources, questions to ask your doctor, educational events and more. In particular you may find the Phone Buddy program beneficial as a means to talk directly with another person who may share a similar experience. http://www.melanoma.org/understand-melanoma/what-is-melanoma/ocular-melanoma/ocular-melanoma-resources

      In addition, please feel free to reach out directly to Lauren Johnston, CURE OM Program Coordinator at ljohnston@melanoma.org. We hope you find these resources helpful, and please let us know if we can be of any other assistance to you.

      Sincerely,
      Adam, MRF

      • February 8, 2016 at 8:33 pm
      Adam-MRF
      Keymaster

      Hi Vicki,

      Thank you for reaching out, we would like to be of assistance to you. It's good to know that you are actively engaged with your healthcare team and have been so observant over the years. We have multiple resources available that you may find helpful:

      On March 4-6, the MRF's CURE OM initiative is hosting the Eyes on a Cure: Patient and Caregiver Symposium, bringing together the nationwide ocular melanoma community for a weekend of research updates, discussion with experts and the chance to meet and talk with fellow patients, survivors and caregivers in the OM community. Registration is still open and we would love for you to join us: http://www.melanoma.org/get-involved/calendar-of-events/eyes-cure-patient-caregiver-symposium-0

      The CURE OM Facebook page is an active, supportive community of people who can offer insight from their own experience, we invite you to join us on in that community as well: https://www.facebook.com/cureom/

      The MRF website has information about the diagnosis and treatment of OM with links to support resources, questions to ask your doctor, educational events and more. In particular you may find the Phone Buddy program beneficial as a means to talk directly with another person who may share a similar experience. http://www.melanoma.org/understand-melanoma/what-is-melanoma/ocular-melanoma/ocular-melanoma-resources

      In addition, please feel free to reach out directly to Lauren Johnston, CURE OM Program Coordinator at ljohnston@melanoma.org. We hope you find these resources helpful, and please let us know if we can be of any other assistance to you.

      Sincerely,
      Adam, MRF

      • February 8, 2016 at 8:33 pm
      Adam-MRF
      Keymaster

      Hi Vicki,

      Thank you for reaching out, we would like to be of assistance to you. It's good to know that you are actively engaged with your healthcare team and have been so observant over the years. We have multiple resources available that you may find helpful:

      On March 4-6, the MRF's CURE OM initiative is hosting the Eyes on a Cure: Patient and Caregiver Symposium, bringing together the nationwide ocular melanoma community for a weekend of research updates, discussion with experts and the chance to meet and talk with fellow patients, survivors and caregivers in the OM community. Registration is still open and we would love for you to join us: http://www.melanoma.org/get-involved/calendar-of-events/eyes-cure-patient-caregiver-symposium-0

      The CURE OM Facebook page is an active, supportive community of people who can offer insight from their own experience, we invite you to join us on in that community as well: https://www.facebook.com/cureom/

      The MRF website has information about the diagnosis and treatment of OM with links to support resources, questions to ask your doctor, educational events and more. In particular you may find the Phone Buddy program beneficial as a means to talk directly with another person who may share a similar experience. http://www.melanoma.org/understand-melanoma/what-is-melanoma/ocular-melanoma/ocular-melanoma-resources

      In addition, please feel free to reach out directly to Lauren Johnston, CURE OM Program Coordinator at ljohnston@melanoma.org. We hope you find these resources helpful, and please let us know if we can be of any other assistance to you.

      Sincerely,
      Adam, MRF

        • February 13, 2016 at 3:57 am
        Vrsomerset
        Participant

        Thank you, Adam.  I will look at all the resources you mentioned.  Vicki

        • February 13, 2016 at 3:57 am
        Vrsomerset
        Participant

        Thank you, Adam.  I will look at all the resources you mentioned.  Vicki

        • September 6, 2016 at 10:22 am
        phytonikita
        Participant

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        • September 6, 2016 at 10:22 am
        phytonikita
        Participant

        HellO sir…We are here for helping you

        Double Stemcell For Treatment Of All Type Of Cancer

        Double stemcell prevent abnormal cells that include the ability to occupy or spread to other parts of body.Double Stem cells from the curious apple are use to protector skin cell regeneration as well as therefore delay the beginning of wrinkle.It can begin almost every place in the human body, which is prepared up of trillions of cells. In general, human cells cultivate as well as divide to shape new cells as the body wants them. I the cells produce old otherwise become injured, they die, and furthermore new cells get their place.  

        http://www.phytoscienceteamasia.com/

        • September 6, 2016 at 10:22 am
        phytonikita
        Participant

        HellO sir…We are here for helping you

        Double Stemcell For Treatment Of All Type Of Cancer

        Double stemcell prevent abnormal cells that include the ability to occupy or spread to other parts of body.Double Stem cells from the curious apple are use to protector skin cell regeneration as well as therefore delay the beginning of wrinkle.It can begin almost every place in the human body, which is prepared up of trillions of cells. In general, human cells cultivate as well as divide to shape new cells as the body wants them. I the cells produce old otherwise become injured, they die, and furthermore new cells get their place.  

        http://www.phytoscienceteamasia.com/

        • February 13, 2016 at 3:57 am
        Vrsomerset
        Participant

        Thank you, Adam.  I will look at all the resources you mentioned.  Vicki

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