Diagnosed today Stage 4B
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Diagnosed today Stage 4B

› Forums › General Melanoma Community › Diagnosed today Stage 4B

  • Post
    • August 16, 2012 at 9:11 pm
    ed kv
    Participant

    My wife was diagnosed today with stage 4B melanoma.  Primary location in mid back but heavy in right armpit lymph and several spots in R lung.

    We live in Michigan but are moving to Houston next week so we can go to MD Anderson.  I'm hoping there are trials there that might give us a chance.  So many details to work through with the move AND the medical stuff!!!! 

    My wife was diagnosed today with stage 4B melanoma.  Primary location in mid back but heavy in right armpit lymph and several spots in R lung.

    We live in Michigan but are moving to Houston next week so we can go to MD Anderson.  I'm hoping there are trials there that might give us a chance.  So many details to work through with the move AND the medical stuff!!!! 

Viewing 14 reply threads
  • Replies
      • August 16, 2012 at 10:29 pm
      Theresa123
      Participant

      You will be in good hands.  Trust in God.  Check out Zelboraf and anti PD1 trials.  There is hope

       

      Terri

      stage 4 melanoma since 2009

      • August 16, 2012 at 10:29 pm
      Theresa123
      Participant

      You will be in good hands.  Trust in God.  Check out Zelboraf and anti PD1 trials.  There is hope

       

      Terri

      stage 4 melanoma since 2009

      • August 16, 2012 at 10:29 pm
      Theresa123
      Participant

      You will be in good hands.  Trust in God.  Check out Zelboraf and anti PD1 trials.  There is hope

       

      Terri

      stage 4 melanoma since 2009

      • August 17, 2012 at 4:58 pm
      Tina D
      Participant

      So sorry you have received this report. It is daunting and frightening, we know… but there is indeed hope.  There is much I do not know about her situation but I can say that, thank God, I was diagnosed as stage 4 back in 2005, and am currently rejoicing over a clear scan report. Will be praying for you both…

      Tina

      • August 17, 2012 at 4:58 pm
      Tina D
      Participant

      So sorry you have received this report. It is daunting and frightening, we know… but there is indeed hope.  There is much I do not know about her situation but I can say that, thank God, I was diagnosed as stage 4 back in 2005, and am currently rejoicing over a clear scan report. Will be praying for you both…

      Tina

      • August 17, 2012 at 4:58 pm
      Tina D
      Participant

      So sorry you have received this report. It is daunting and frightening, we know… but there is indeed hope.  There is much I do not know about her situation but I can say that, thank God, I was diagnosed as stage 4 back in 2005, and am currently rejoicing over a clear scan report. Will be praying for you both…

      Tina

      • August 18, 2012 at 1:16 am
      MattF
      Participant

      So sorry for the news. I will be thinking about you both.

       

      Matt

      • August 18, 2012 at 1:16 am
      MattF
      Participant

      So sorry for the news. I will be thinking about you both.

       

      Matt

      • August 18, 2012 at 1:16 am
      MattF
      Participant

      So sorry for the news. I will be thinking about you both.

       

      Matt

      • August 21, 2012 at 3:44 am
      LynnLuc
      Participant

      I was dx'ed stage 4 in 2009. I have been doing anti pd-1 and have been NED 2 years 5 months. I go to Moffitt Cancer Center in Tampa. WE moved from North Dakota to do my trial. I am in the booster phase now and only have 3  infusions of Anti PD-1 to do. I get one on Sept 5 and then I will just have 2. I get them now only once every 3 months. Be positive!! Also if MDA doesn't have Anti PD 1 I know Moffitt still has a few openings although they seem to fill up fast.

      • August 21, 2012 at 3:44 am
      LynnLuc
      Participant

      I was dx'ed stage 4 in 2009. I have been doing anti pd-1 and have been NED 2 years 5 months. I go to Moffitt Cancer Center in Tampa. WE moved from North Dakota to do my trial. I am in the booster phase now and only have 3  infusions of Anti PD-1 to do. I get one on Sept 5 and then I will just have 2. I get them now only once every 3 months. Be positive!! Also if MDA doesn't have Anti PD 1 I know Moffitt still has a few openings although they seem to fill up fast.

      • August 21, 2012 at 3:44 am
      LynnLuc
      Participant

      I was dx'ed stage 4 in 2009. I have been doing anti pd-1 and have been NED 2 years 5 months. I go to Moffitt Cancer Center in Tampa. WE moved from North Dakota to do my trial. I am in the booster phase now and only have 3  infusions of Anti PD-1 to do. I get one on Sept 5 and then I will just have 2. I get them now only once every 3 months. Be positive!! Also if MDA doesn't have Anti PD 1 I know Moffitt still has a few openings although they seem to fill up fast.

      • August 22, 2012 at 5:13 am
      JerryfromFauq
      Participant

      Zelboraf is only a possibility if one has the BRAF DNA mutation in ones Melanoma tumors.  Has this test been run yet?  The Anti-PD-1 is expected to be both more effective and to work against many other types of melanoma's. 

        Know what you mean about the learning curve!  A whole new language to learn!

      MDA is a good place to go.  Let us know who is your Melanoma specialist there.  They have some Good ones.

      While stage IV is serious and y'all are in for a battle, don't give up early Y'all sound like fighters.

          Read Charley's post above.  He went to Stage IV 16 years ago and has seldom if ever been NED since then, but he is still living, learning and fighting the fight.

        This is a good group of people that like to h help others. 

      Feel open to ask any questions you like, to complain, moan, pray.  We've been through it too.

      • August 22, 2012 at 5:13 am
      JerryfromFauq
      Participant

      Zelboraf is only a possibility if one has the BRAF DNA mutation in ones Melanoma tumors.  Has this test been run yet?  The Anti-PD-1 is expected to be both more effective and to work against many other types of melanoma's. 

        Know what you mean about the learning curve!  A whole new language to learn!

      MDA is a good place to go.  Let us know who is your Melanoma specialist there.  They have some Good ones.

      While stage IV is serious and y'all are in for a battle, don't give up early Y'all sound like fighters.

          Read Charley's post above.  He went to Stage IV 16 years ago and has seldom if ever been NED since then, but he is still living, learning and fighting the fight.

        This is a good group of people that like to h help others. 

      Feel open to ask any questions you like, to complain, moan, pray.  We've been through it too.

      • August 22, 2012 at 5:13 am
      JerryfromFauq
      Participant

      Zelboraf is only a possibility if one has the BRAF DNA mutation in ones Melanoma tumors.  Has this test been run yet?  The Anti-PD-1 is expected to be both more effective and to work against many other types of melanoma's. 

        Know what you mean about the learning curve!  A whole new language to learn!

      MDA is a good place to go.  Let us know who is your Melanoma specialist there.  They have some Good ones.

      While stage IV is serious and y'all are in for a battle, don't give up early Y'all sound like fighters.

          Read Charley's post above.  He went to Stage IV 16 years ago and has seldom if ever been NED since then, but he is still living, learning and fighting the fight.

        This is a good group of people that like to h help others. 

      Feel open to ask any questions you like, to complain, moan, pray.  We've been through it too.

Viewing 14 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.