Daughter’s biopsies returned benign!!
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Daughter’s biopsies returned benign!!

› Forums › General Melanoma Community › Daughter’s biopsies returned benign!!

  • Post
    • February 15, 2013 at 3:08 pm
    shep
    Participant

    my daughter's 4 lymph nodes found to be sentinals two each under her arms were returned negative!!! her WLE from primary and 4 other dysplastic nevi all returned benign also. she was diagnosed melanoma positive on 1/22, had her SLNB and WLE surgeries on feb 7 and drove with us 5 1/2 hours south the next morning to help coach her sister thru her first child's birth… very proud of her. we were so worried because the radioctive isotopes only took 15 minutes to reach the sentinals. results came back on tues 2/12 and i burst into tears at the news.

    my daughter's 4 lymph nodes found to be sentinals two each under her arms were returned negative!!! her WLE from primary and 4 other dysplastic nevi all returned benign also. she was diagnosed melanoma positive on 1/22, had her SLNB and WLE surgeries on feb 7 and drove with us 5 1/2 hours south the next morning to help coach her sister thru her first child's birth… very proud of her. we were so worried because the radioctive isotopes only took 15 minutes to reach the sentinals. results came back on tues 2/12 and i burst into tears at the news. we are so thankful and am wishing well to all in this forum who have helped me get a handle on this disease. now she realizes how important it is to keep up on her nevi conditions.                                

                                                                     

Viewing 14 reply threads
  • Replies
      • February 15, 2013 at 4:04 pm
      POW
      Participant

      That's great news, Shep. Thank you for posting it. 

      I am glad that your daughter will be getting thorough check-ups to keep an eye on her dysplastic nevii. Very good! She is still a Stage II melanoma patient, however. If it were me, I would want a CT scan or at least a PET scan at least once a year for the next couple of years to be certain that that one melanoma has not spread. The chances of that are very slight, especially since her SNB was negative. However, you can't tell by looking at the skin whether the original melanoma has spread. I would feel more secure with a periodic scan, even if I had to pay for it myself. It's not worth actively worrying about, but why not make use of these new imaging technologies as part of a rational approach to vigilance? 

      • February 15, 2013 at 4:04 pm
      POW
      Participant

      That's great news, Shep. Thank you for posting it. 

      I am glad that your daughter will be getting thorough check-ups to keep an eye on her dysplastic nevii. Very good! She is still a Stage II melanoma patient, however. If it were me, I would want a CT scan or at least a PET scan at least once a year for the next couple of years to be certain that that one melanoma has not spread. The chances of that are very slight, especially since her SNB was negative. However, you can't tell by looking at the skin whether the original melanoma has spread. I would feel more secure with a periodic scan, even if I had to pay for it myself. It's not worth actively worrying about, but why not make use of these new imaging technologies as part of a rational approach to vigilance? 

      • February 15, 2013 at 4:04 pm
      POW
      Participant

      That's great news, Shep. Thank you for posting it. 

      I am glad that your daughter will be getting thorough check-ups to keep an eye on her dysplastic nevii. Very good! She is still a Stage II melanoma patient, however. If it were me, I would want a CT scan or at least a PET scan at least once a year for the next couple of years to be certain that that one melanoma has not spread. The chances of that are very slight, especially since her SNB was negative. However, you can't tell by looking at the skin whether the original melanoma has spread. I would feel more secure with a periodic scan, even if I had to pay for it myself. It's not worth actively worrying about, but why not make use of these new imaging technologies as part of a rational approach to vigilance? 

        • February 15, 2013 at 7:23 pm
        shep
        Participant

        thanks POW, we go to see the oncologist on feb 22 to discuss the next steps in my daughter's treatments. i will post the discussion after we have it.

        • February 15, 2013 at 7:23 pm
        shep
        Participant

        thanks POW, we go to see the oncologist on feb 22 to discuss the next steps in my daughter's treatments. i will post the discussion after we have it.

        • February 15, 2013 at 7:23 pm
        shep
        Participant

        thanks POW, we go to see the oncologist on feb 22 to discuss the next steps in my daughter's treatments. i will post the discussion after we have it.

      • February 15, 2013 at 5:32 pm
      JC
      Participant

      one reason why not is the high radiation exposure of CT scans

      • February 15, 2013 at 5:32 pm
      JC
      Participant

      one reason why not is the high radiation exposure of CT scans

      • February 15, 2013 at 5:32 pm
      JC
      Participant

      one reason why not is the high radiation exposure of CT scans

      • February 17, 2013 at 12:58 am
      NYKaren
      Participant
      Great news and a grandchild all in the same week!

      I’m sure you’ll discuss risk/benefit factors when you see onc.

      So, boy or girl?

      All the best,
      Karen

      • February 17, 2013 at 12:58 am
      NYKaren
      Participant
      Great news and a grandchild all in the same week!

      I’m sure you’ll discuss risk/benefit factors when you see onc.

      So, boy or girl?

      All the best,
      Karen

      • February 17, 2013 at 12:58 am
      NYKaren
      Participant
      Great news and a grandchild all in the same week!

      I’m sure you’ll discuss risk/benefit factors when you see onc.

      So, boy or girl?

      All the best,
      Karen

        • February 18, 2013 at 6:42 pm
        shep
        Participant

        8lb 5oz 19" baby boy…  thanks!!!!!!!!!

        • February 18, 2013 at 6:42 pm
        shep
        Participant

        8lb 5oz 19" baby boy…  thanks!!!!!!!!!

        • February 18, 2013 at 6:42 pm
        shep
        Participant

        8lb 5oz 19" baby boy…  thanks!!!!!!!!!

      • February 25, 2013 at 4:24 pm
      shep
      Participant

      we saw the oncologist last friday, 2-22 and he said he recommends no adjuvant treatments (which we were hoping) but was not keen on PET scan or ultra sound. My daughter and I think she should probably have a PET scan, but not sure when for her ST IIB melanoma. He told us that there were not conclusive evidence of longevity in using a PET or not. He says to be aware of any changes, aches or pains, and notify him as soon as any abnormalities show, if they do. He told us that you are never 'cured' of melanoma and wants to see her for follow ups every three months, and continue with her dermatologist appointments. She still has several nevii that are due to be removed on various parts of her skin. We had been under the understanding that a PET scan was a normal part of treatment for a stage IIB after 6 months to a year as a precautionary measure. We may press for a scan at the 6 month interval and see what he says at that time.

      Thanks all for listening, and hope each and every one of you has been able to keep up good spirits.

      • February 25, 2013 at 4:24 pm
      shep
      Participant

      we saw the oncologist last friday, 2-22 and he said he recommends no adjuvant treatments (which we were hoping) but was not keen on PET scan or ultra sound. My daughter and I think she should probably have a PET scan, but not sure when for her ST IIB melanoma. He told us that there were not conclusive evidence of longevity in using a PET or not. He says to be aware of any changes, aches or pains, and notify him as soon as any abnormalities show, if they do. He told us that you are never 'cured' of melanoma and wants to see her for follow ups every three months, and continue with her dermatologist appointments. She still has several nevii that are due to be removed on various parts of her skin. We had been under the understanding that a PET scan was a normal part of treatment for a stage IIB after 6 months to a year as a precautionary measure. We may press for a scan at the 6 month interval and see what he says at that time.

      Thanks all for listening, and hope each and every one of you has been able to keep up good spirits.

      • February 25, 2013 at 4:24 pm
      shep
      Participant

      we saw the oncologist last friday, 2-22 and he said he recommends no adjuvant treatments (which we were hoping) but was not keen on PET scan or ultra sound. My daughter and I think she should probably have a PET scan, but not sure when for her ST IIB melanoma. He told us that there were not conclusive evidence of longevity in using a PET or not. He says to be aware of any changes, aches or pains, and notify him as soon as any abnormalities show, if they do. He told us that you are never 'cured' of melanoma and wants to see her for follow ups every three months, and continue with her dermatologist appointments. She still has several nevii that are due to be removed on various parts of her skin. We had been under the understanding that a PET scan was a normal part of treatment for a stage IIB after 6 months to a year as a precautionary measure. We may press for a scan at the 6 month interval and see what he says at that time.

      Thanks all for listening, and hope each and every one of you has been able to keep up good spirits.

        • February 25, 2013 at 10:09 pm
        JerryfromFauq
        Participant

        I could see a PET/CT at either 6 months or a year.  Odds are they will be clear, but this gives one more piece of mind.

        An x-ray or CT of the lung area would be appropriate in the future as the lump nodes then the lungs aare the most likely path for Melanoma to follow.  PETs are not definitive, they just measure glucose uptake which may or may not indicate tumors.  They are just a starting point.

        • February 25, 2013 at 10:09 pm
        JerryfromFauq
        Participant

        I could see a PET/CT at either 6 months or a year.  Odds are they will be clear, but this gives one more piece of mind.

        An x-ray or CT of the lung area would be appropriate in the future as the lump nodes then the lungs aare the most likely path for Melanoma to follow.  PETs are not definitive, they just measure glucose uptake which may or may not indicate tumors.  They are just a starting point.

        • February 25, 2013 at 10:09 pm
        JerryfromFauq
        Participant

        I could see a PET/CT at either 6 months or a year.  Odds are they will be clear, but this gives one more piece of mind.

        An x-ray or CT of the lung area would be appropriate in the future as the lump nodes then the lungs aare the most likely path for Melanoma to follow.  PETs are not definitive, they just measure glucose uptake which may or may not indicate tumors.  They are just a starting point.

      • February 25, 2013 at 4:40 pm
      JC
      Participant

      "He told us that you are never 'cured' of melanoma "               I like Doctors that talk honestly like that.  Sometimes I hear Stage I people being told after WLE they are "cured" or the surgery was "curative."  How could they know that? Maybe it was, maybe it wasn't.  Nobody knows.

      • February 25, 2013 at 4:40 pm
      JC
      Participant

      "He told us that you are never 'cured' of melanoma "               I like Doctors that talk honestly like that.  Sometimes I hear Stage I people being told after WLE they are "cured" or the surgery was "curative."  How could they know that? Maybe it was, maybe it wasn't.  Nobody knows.

      • February 25, 2013 at 4:40 pm
      JC
      Participant

      "He told us that you are never 'cured' of melanoma "               I like Doctors that talk honestly like that.  Sometimes I hear Stage I people being told after WLE they are "cured" or the surgery was "curative."  How could they know that? Maybe it was, maybe it wasn't.  Nobody knows.

Viewing 14 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.