› Forums › Mucosal Melanoma Community › Clinical trial options after Nivo/Ipi combo- any experience or recommendations
- This topic has 2 replies, 2 voices, and was last updated 6 years, 5 months ago by BrianP.
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- July 6, 2018 at 7:33 am
I am a daughter and caregiver from China. My mum(53) was diagnosed with mucosal melanoma last October, she had a surgery with clean margin to remove the tumor but it came back two months ago and we are under immunotherapy ( Nivolumab +Ipilimumab ) now.
Since my mum has low TMB and PD-L1 expression, there are high chances that the immunotherapy would not work for her. In fact, in the first one month treatment the liver mestastisis grew so quickly that we need to have surgery again to remove that. That is why now I want to search for suitable clinical trial for my mum globally.
Researching on clinical trials now, but there seems a lot of trials in process. How is your experience with those trials? Do you have any recommending trials that eligible for someone not respond to immunotherapy combo?
Thanks!!
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- July 13, 2018 at 8:36 am
Searched on clinicaltrial.gov So many trials are going on, but not sure which has the promising result……Anyone has the answer?
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- July 14, 2018 at 3:46 am
Wendy,
Sorry no response to your initial question but you really ask a tough question. I think if I was in your shoes and had the ability to travel I would consider going to MDAnderson in Houston, Tx. They are doing a lot of good stuff. There are patients from all over the world there and they seem to have a great system to support all of the foreign patients. I would check out this website:
If you have any questions on a particular trial you can ask the question and maybe someone could give you so information
Brian
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Tagged: caregiver, mucosal melanoma
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