The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Calling all Nexavar users-Past and Present

Forums General Melanoma Community Calling all Nexavar users-Past and Present

  • Post
    JenM
    Participant

      Hi all,

      Some of you have replied to my previous posts—thank you so much.  I just thought I would re post again and see if I could get more replies.  I started Nexavar last Friday.  Wanted to know what side effedts people experienced?  If your response was positive how much time passed before you started to feel better?  Was it 2 weeks or longer? 

      Thanks,

      JenM

      Hi all,

      Some of you have replied to my previous posts—thank you so much.  I just thought I would re post again and see if I could get more replies.  I started Nexavar last Friday.  Wanted to know what side effedts people experienced?  If your response was positive how much time passed before you started to feel better?  Was it 2 weeks or longer? 

      Thanks,

      JenM

    Viewing 0 reply threads
    • Replies
        James from Sydney
        Participant

          Hi Jen

          Nexevar is also known as Sorafenib so you might like to alter the post to attract others who know it as Sorafenib. I would do it for you but still am a bit lost on the new Board!

          In any case our son used it as part of the Bay Trial but it was combined with Carboplatin and Taxol. Results were seen in a few weeks with SubQ’s dissapearing or getting smaller. Michael got some internal reductions and was stable for 6 months until Brain got involved. I know of a couple on this Board that have had great success and i am hoping you join them.

          best wishes

          James

            JenM
            Participant

              Thanks for the reply James.  I will repost with the different title. 

              Take care,

              Jen

        Viewing 0 reply threads
        • You must be logged in to reply to this topic.
        About the MRF Patient Forum

        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.