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Bring Mucosal Melanoma Together

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  • Post
    • June 17, 2015 at 8:56 pm
    EricaLoney78
    Participant

      Hello, my name is Erica and I have posted before about my mom have Oral Mucosal Melanoma.

      I want to bring us all together. I have been posting everywhere people with melanoma are to share with them my new FB PAGE. If we all have a meeting place specifically for MM then it's easier… Please come to

      https://www.facebook.com/Mucosalmelanomawarriors

      thank you so much and see you there!

    Viewing 2 reply threads
    • Replies
        • June 21, 2015 at 3:07 pm
        Becky
        Participant

          erica

          Thanks for starting this facebook page. I will be follwoing it, but hesitiate to post for now, only becuase my son is a little private about this. my son Ben was also diagnosed with oral melanoma right before he turned 21. His was on the tip of his tongue . Oral melanoma rare enough, and the location even rarer!

          His had spread to one lymph node. Had CLD and a year of interferon. He is now 5 years NED!

          At the time of dx I knew better than to do too much googling and researciing on the ineternet, but couldnt help myslef. All I saw were very grim statisitics and so this was a very scary time for us. It still is, espiecally during the wait to find out scan results.

          again, thanks for giving a voice to those with this rare form of melanoma.

           

          Becky

            • June 21, 2015 at 3:08 pm
            Becky
            Participant

              ps…this site needs automatic spell check, I just noticed all my typos!

              • June 21, 2015 at 3:08 pm
              Becky
              Participant

                ps…this site needs automatic spell check, I just noticed all my typos!

                • June 21, 2015 at 3:08 pm
                Becky
                Participant

                  ps…this site needs automatic spell check, I just noticed all my typos!

                • June 21, 2015 at 3:07 pm
                Becky
                Participant

                  erica

                  Thanks for starting this facebook page. I will be follwoing it, but hesitiate to post for now, only becuase my son is a little private about this. my son Ben was also diagnosed with oral melanoma right before he turned 21. His was on the tip of his tongue . Oral melanoma rare enough, and the location even rarer!

                  His had spread to one lymph node. Had CLD and a year of interferon. He is now 5 years NED!

                  At the time of dx I knew better than to do too much googling and researciing on the ineternet, but couldnt help myslef. All I saw were very grim statisitics and so this was a very scary time for us. It still is, espiecally during the wait to find out scan results.

                  again, thanks for giving a voice to those with this rare form of melanoma.

                   

                  Becky

                  • June 21, 2015 at 3:07 pm
                  Becky
                  Participant

                    erica

                    Thanks for starting this facebook page. I will be follwoing it, but hesitiate to post for now, only becuase my son is a little private about this. my son Ben was also diagnosed with oral melanoma right before he turned 21. His was on the tip of his tongue . Oral melanoma rare enough, and the location even rarer!

                    His had spread to one lymph node. Had CLD and a year of interferon. He is now 5 years NED!

                    At the time of dx I knew better than to do too much googling and researciing on the ineternet, but couldnt help myslef. All I saw were very grim statisitics and so this was a very scary time for us. It still is, espiecally during the wait to find out scan results.

                    again, thanks for giving a voice to those with this rare form of melanoma.

                     

                    Becky

                Viewing 2 reply threads

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