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Balance Issues

Forums General Melanoma Community Balance Issues

  • Post
    smiller
    Participant

      My husband's last treatment of opdivo/yervoy was in June of 2017.  He had three of the four that he was scheduled to take before the side effects got the best of him and he had to discontinue treatment.  Latest scans showed tumors shrinking and that's great news!  One thing that seems to keep hanging on and actually seems worse now is a "balance" issue.  That's the best way I can describe it–he walks fine and then suddenly it seems as if he is stumbling.  He hasn't fallen but has come close.  He had a brain scan several months ago when this started happening but it was clear. Anyone else experiencing this?  Could it be contributed to something else altogether and we just want to blame everything on what's been happening the past year?  Any help is greatly appreciated—thanks!

    Concerned Wife

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  • Replies
      tedtell1
      Participant

      Hi;

      I will be interested in hearing answers to this. I was diagnosed with Melanoma stage IV after what we thought was a cyst was a secondary tumor. I have been having issues on and off with dizzieness for a couple of months, kind of scary, then my MRI/PET were clear except the original tumor area. Brain was clear…..but I still have the dizziness…I can suddenly feel like the room is going sideways or feel like me feet aren't going where I want them to! I too am mystified…

      Hope someone may be able to shed light on this.

      Ted

        smiller
        Participant

        Are you on any treatment at this time?  As I mentioned, my husband's last treatment was last June!  His scan in December showed treatment was still working and his next scan will be this month around the 20th.  I am not sure if he will start back with any treatment or not, no matter what the scan shows, because of all the side effects he went through with the the three treatments that he had.

        Sandra

      DZnDef
      Participant

      I am sorry that your husband is dealing with balance issues on top of everything else.  I have a long history with balance problems that pre date cancer. Many balance issues can derive from excess fluid in the inner ear which is where our vestibular system is located that sends messages to the brain about our position.  In the case of excess fluid in the inner ear, there is not a problem with the brain as the brain is reacting properly to the signals it is receiving.  But the signals themselves are wrong due to excess fluid pressure.  In my situation, I would experience extreme vertigo with the room spinning.  Other balance problems can result from normal crystals that exist in the inner ear getting loose and floating into a position where they constantly stimulate the wrong section of the vestibular nerve.  This also tends to result in vertigo rather than mild imbalance and is called BPPV.  There are simple maneuvers that can be done to move the crystals away from the vestibular nerve.  In any event, you might want to check with an ear, nose, throat doctor as this may have nothing to do with cancer and cancer is what your current doctors are focused on.  A good ENT may be able to work from the scans you've already had done.  I have no information as to whether any imbalane is due to any medications he may be on.

      I hope this is of some help to you both.

      Cheers,

      Maggie

      TomW
      Participant

      I have stage 4 melanoma.  Initially, I had swelling in brain and had significant balance problems.  After radiation (8 months ago), I have been going to physical therapy on a regular basis. Therapist is very knowledgeable regarding balance problems.   Balance is good now except when I become tired and then I become “wobbly”.  

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