Ask for a biopsy !!
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Ask for a biopsy !!

› Forums › General Melanoma Community › Ask for a biopsy !!

  • Post
    • May 24, 2016 at 2:38 pm
    knittingirl
    Participant

    3 weeks ago I had a check-up PET/CT scan .My manubrium and pubic bone showed a high SUV ( 9.4 and 8.6), I had a chest MRI that confirmed that it was  malignant. My cancer was back despite I was successfull last fall with ipi/nivo combo. The doctor wanted me to have a pubic bone biopsy just to be sure before starting any new treatment. It was quite unpleasant and painful ,but it was worth it as it came back negative: no melanoma in my bones. It's an inflammation that triggers the high activity on my scan. Doctor thinks that my immune system (stimulated with ipi/nivo ) is now attacking my bone. I have hypothyroidism and during winter I had severe colitis and high level of liver enzyms.

    As I have no pain, doc doesn't want me to take any drug( prednisone……I hate this drug) for my bone. I will see him in July and go through an other PET/CT sacn in August.

    I was supposed to start a maintenance phase of nivo or keytruda but as my body is still reacting to nivo/ipi, it is going to be delayed for the future.

    Do not hesitate toask for a biopsy. Even if it not pleasant, sometimes the outcome can be positive.

    Best,

Viewing 8 reply threads
  • Replies
      • May 25, 2016 at 2:50 pm
      BrianP
      Participant

      Good advice and congrats on the good news.  I'm sure that was some heck of an emotional roller coaster for a few days!

      • May 25, 2016 at 2:50 pm
      BrianP
      Participant

      Good advice and congrats on the good news.  I'm sure that was some heck of an emotional roller coaster for a few days!

      • May 25, 2016 at 2:50 pm
      BrianP
      Participant

      Good advice and congrats on the good news.  I'm sure that was some heck of an emotional roller coaster for a few days!

      • May 25, 2016 at 9:59 pm
      LaurieGayle
      Participant

      Excellent advice and news for you!

      • May 25, 2016 at 9:59 pm
      LaurieGayle
      Participant

      Excellent advice and news for you!

      • May 25, 2016 at 9:59 pm
      LaurieGayle
      Participant

      Excellent advice and news for you!

      • May 25, 2016 at 10:20 pm
      jenny22
      Participant

      Great news…..Nice to have conclusive info that  it is not CANCER……

      will hope it continues for your next scans!

       

      best,

      jenny

      • May 25, 2016 at 10:20 pm
      jenny22
      Participant

      Great news…..Nice to have conclusive info that  it is not CANCER……

      will hope it continues for your next scans!

       

      best,

      jenny

      • May 25, 2016 at 10:20 pm
      jenny22
      Participant

      Great news…..Nice to have conclusive info that  it is not CANCER……

      will hope it continues for your next scans!

       

      best,

      jenny

Viewing 8 reply threads
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