Anyone taking temodar for liver and spleen mets and radiation for spine mets?
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Anyone taking temodar for liver and spleen mets and radiation for spine mets?

› Forums › General Melanoma Community › Anyone taking temodar for liver and spleen mets and radiation for spine mets?

  • Post
    • December 2, 2011 at 12:27 am
    alicia
    Participant
    I posted earlier about my friend who just found out melanoma has spread to liver, splee, and spine. He just started radiation today, getting 10 doses to the spine then the oncologist wants to start him on temodar when he finishes radiation. He is braf positive and I would think she would recommend one of the newer braf inhibiting drugs. He is seeing his local oncologist who is not a melanoma specialist because he’s not well enough to travel to Vandy to see his Mel specialist.

    I posted earlier about my friend who just found out melanoma has spread to liver, splee, and spine. He just started radiation today, getting 10 doses to the spine then the oncologist wants to start him on temodar when he finishes radiation. He is braf positive and I would think she would recommend one of the newer braf inhibiting drugs. He is seeing his local oncologist who is not a melanoma specialist because he’s not well enough to travel to Vandy to see his Mel specialist. I recommended he at least call his dr at Vandy to see what treatment they would suggest or have his local dr make a suggestion. What are your thoughts? Are any of you doing temodar in this similar situation and are you seeing good results? That’s so much for your time and help. Much love!!!!!

    Alicia stage 3 w/ mult primaries

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  • Replies
      • December 2, 2011 at 3:11 am
      MariaH
      Participant

      Hi Alicia,

      By all means, he should be consulting with Vandy.  My hubby just started Temodar, so no results yet (and as of last scan, mets were contained to lungs and soft tissue).  But if he is B-RAF positive, I would go there before starting Temodar.

      Keep us posted,

      Maria

        • December 7, 2011 at 7:54 pm
        Cooper
        Participant

        Temodar is just an expensive version of Dacarbazine and so far hasn't been proven to do much at all for melanoma.

        • December 7, 2011 at 7:54 pm
        Cooper
        Participant

        Temodar is just an expensive version of Dacarbazine and so far hasn't been proven to do much at all for melanoma.

        • December 7, 2011 at 7:54 pm
        Cooper
        Participant

        Temodar is just an expensive version of Dacarbazine and so far hasn't been proven to do much at all for melanoma.

      • December 2, 2011 at 3:11 am
      MariaH
      Participant

      Hi Alicia,

      By all means, he should be consulting with Vandy.  My hubby just started Temodar, so no results yet (and as of last scan, mets were contained to lungs and soft tissue).  But if he is B-RAF positive, I would go there before starting Temodar.

      Keep us posted,

      Maria

      • December 2, 2011 at 3:11 am
      MariaH
      Participant

      Hi Alicia,

      By all means, he should be consulting with Vandy.  My hubby just started Temodar, so no results yet (and as of last scan, mets were contained to lungs and soft tissue).  But if he is B-RAF positive, I would go there before starting Temodar.

      Keep us posted,

      Maria

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