Advice please
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Advice please

› Forums › General Melanoma Community › Advice please

  • Post
    • July 29, 2018 at 2:29 pm
    TracyW1965
    Participant
    Hi, I am from the UK and my husband have stage 4 melanoma with Mets in his lungs, liver, spleen, peritoneum, sacrum and clavicle. He started pembrolizumab in January and initial response was good with tumours shrinking. However after 9 treatments response has stopped and the cancers are growing again. He starts his first dose of ipilimimab on Tues. Has anyone had any experience of this and can pass on any advice about side effects etc please?
Viewing 0 reply threads
  • Replies
      • July 29, 2018 at 9:05 pm
      Edwin
      Participant

      I began receiving pembrolizumab ( Keytruda ) in November 2015.  In February 2016 walking was painful. My March 2016 PET scan showed melanoma had spread to many more bones.  Keytruda was not helping me.  I began receiving ipilimumab ( Yervoy ) and nivolumab ( Opdivo ) on April 1, 2016.  I lost 11 lbs and had very bad diarrhea.  By July 2016 I could run again and my August 2016 PET scan showed the mets had shrunk.   I continune to receive nivolumab every 2 weeks.

        • July 30, 2018 at 2:58 am
        gopher38
        Participant

        That's encouraging to hear.

Viewing 0 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics